Non-Hodgkin lymphoma – The Bloodline with LLS

Delve into the complex landscape of non-Hodgkin lymphoma research, where a cure is pursued amidst a backdrop of over 100 subtypes of this disease.

In this episode, Dr. Kieron Dunleavy, of MedStar Georgetown University Hospital, breaks down the differences in treatments, prognosis and goals for both slow-growing and aggressive subtypes of non-Hodgkin lymphoma. Discover the remarkable momentum of scientific progress that increased the understanding and management of lymphoma, igniting a renewed sense of hope for patients and their loved ones.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this episode provided by: Eli Lilly and Company and Genentech, Inc. & Biogen.

Join us as we highlight how pivots in therapy and self-advocacy were used to treat a young woman’s diagnosis of non-Hodgkin lymphoma.

In this episode, Caitlyn Householder, diagnosed with diffuse large B-cell lymphoma in 2019, shares her incredible journey after finding out that she was pregnant the day she was admitted to the hospital to treat her lymphoma. An ever-evolving plan was then set into motion to not only save Caitlyn’s life but allow for her pregnancy to continue.  

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this episode provided by: Bristol Myers Squibb, Eli Lilly and Company, Genentech, Inc. & Biogen, and Merck & Company.

Most blood cancer patients can experience side effects from their cancer diagnosis, or its treatments. In certain blood cancers, an urgent condition called tumor lysis syndrome (TLS) can develop. Dr. Tina Bhatnagar of the West Virginia University Cancer Institute joins us in this episode to explain why tumor lysis syndrome occurs and how it is treated. Although considered a medical emergency, Dr. Bhatnagar reviews how prevention and treatment can be successful in the treatment of TLS.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this program is provided by: Sanofi US.

Join us as we speak to Veronika Panagiotou, a non-Hodgkin lymphoma survivor and Alique Topalian, a two-time AML survivor. In this episode, Veronika and Alique discuss the long-term side effects they have been experiencing as a result of their chemotherapy treatments.

While their lives have been impacted by these treatments, they have been able to find joy and peace as they work to overcome these side effects. Don’t miss out on this important episode, as blood cancer patients learn to give themselves grace during challenging days in treatment and beyond.

Mentioned on this episode: 

• Diffuse large b cell lymphoma (DLBCL)
• Acute myeloid leukemia (AML)
• LIVE! At CancerCon: A Journey Through Survivorship podcast episode
• Armenian Bone Marrow Donor Registry
• Cancer-related cognitive impairment
• The Gathering Place
• Gilda’s Club Kentuckiana (other cities available)
• Caring for Kids and Adolescents Workbook
• Survivorship Workbook

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Free booklets 
• Patti Robinson Kaufmann First Connection Program
• Clinical Trial Support Center
• LLS Financial Assistance Program
• LLS Community 
• Online chats 
• Caregiver support 
• Support groups 
• Caregiver Workbook
• Free Nutrition Consultations 
• LLS Advocacy

Support for this episode provided by: Pharmacyclics, An AbbVie Company and Janssen Biotech.

Join us as we speak to Laurie Adami, a follicular lymphoma (non-Hodgkin lymphoma) survivor. In this episode, Laurie shares her long journey through multiple cancer treatments, which eventually led to CAR T-cell therapy and complete remission.

Hear one patient’s story of hope, as new treatments continued to come out, keeping her stable until the one that finally worked was approved for her disease. Her story of resilience and determination to stay alive for her young son is the inspiration that so many blood cancer patients need.

Mentioned on this episode: 

• Follicular Lymphoma
• CAR T-cell Therapy
• Sjorgren’s Syndrome
• Patti Robinson Kaufmann First Connection Program
• Allogeneic Stem Cell Transplant
• Graft-Vs-Host Disease (GVHD)
• LLS Public Policy & Advocacy
• Light The Night
• Woman of The Year (Visionaries of the Year)
• Student of The Year
• Team In Training

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Free booklets 
• Clinical Trial Support Center
• LLS Community 
• Online chats 
• Support groups 
• Caregiver support 
• Caregiver Workbook
• Free Nutrition Consultations 
• LLS Advocacy
• Survivorship Workbook

Support for this episode provided by: Allogene Therapeutics; Bristol Myers Squibb; CRISPR Therapeutics; Janssen Oncology & Legend Biotech; Kite, A Gilead Company; Novartis Oncology.

Join us as we speak to lymphoma patient, Leona, her husband and caregiver, Howell, and Tia Newcomer, the CEO of CaringBridge®. In this episode, Leona and Howell discuss the benefits of utilizing patient and caregiver support resources like the online journaling site, CaringBridge, to communicate with loved ones after Leona’s diagnosis. They were comforted that the site also afforded the opportunity for family members and friends to engage and give them support.

Tia then shares the mission of CaringBridge and how it has evolved into a community of over one million pages where patients and caregivers communicate their updates and needs with family members from diagnosis through survivorship.

Mentioned on this episode: 

• CaringBridge®
• Diffuse Large B Lymphoma
• MealTrain
• Write for Life: Persisting in Online Health Communities through Expressive Writing and Social Support
• Caregiver support 
• Caregiver Workbook

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Free booklets 
• LLS Public Policy & Advocacy
• Patti Robinson Kaufmann First Connection Program
• Clinical Trial Support Center
• LLS Community 
• Online chats 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• Survivorship Workbook

Don’t miss this story of a patient who refuses to let cancer define his life.  

Join us as we speak to Bruce Rieder, who was diagnosed in 2019 with mantle cell lymphoma (MCL), a type of non-Hodgkin lymphoma. In this episode, Bruce shares about his diagnosis and subsequent search for a clinical trial. He connected with the LLS Clinical Trial Support Center, sought out a second opinion and ended up with a specialist in a nearby cancer center. He received a stem cell transplant in February 2020, right before the world shut down due to COVID.  

Now, two years after his transplant, Bruce stays active in the LLS Community and has received support from the Patti Robinson Kauffman First Connection® program.

Mentioned on this episode: 

• Mantle Cell Lymphoma
• Mantle Cell Lymphoma (MCL) Part One: Treatment Advances episode
• Mantle Cell Lymphoma (MCL) Part Two: CAR T-Cell Therapy episode
• Stem Cell Transplant
• Non-Hodgkin Lymphoma
• COVID Information
• Patti Robinson Kaufmann First Connection Program
• Clinical Trial Support Center
• LLS Community 

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Free booklets 
• LLS Public Policy & Advocacy
• Online chats 
• Caregiver support 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• Survivorship Workbook

Support for this episode provided by Bristol Myers Squibb, Eli Lilly and Company, Genentech, Inc. & Biogen, and Merck & Co., Inc.

Join us as we speak with Donnie Hill, a chronic lymphocytic leukemia (CLL) / small cell lymphocytic lymphoma (SLL) patient and his doctor, James Essell, MD, of Oncology Hematology Care, Inc. in Cincinnati, OH. In this episode, Donnie and Dr. Essell discuss the importance of shared decision making (SDM) and how they worked together to determine the best treatment course for Donnie’s CLL/SLL. Shared decision making is a key component of patient-centered healthcare that balances risks and expected outcomes with patient preferences and values. Be sure to tune into this real-world example of how SDM works and how patients can have open communication with their healthcare team.

Mentioned on this episode: 

• Chronic Lymphocytic Leukemia (CLL)
• Small Cell Lymphocytic Lymphoma (SLL)
• Shared Decision Making Fact Sheet
• Shared Decision Making in Chronic Leukemias immersive program
• Anxiety and Hope: Living with Chronic Lymphocytic Leukemia (CLL) podcast episode
• Minimal/Measurable Residual Disease
• Information Specialists

Additional LLS Support Resources: 

• Free telephone/web patient programs 
• Clinical Trial Support Center
• Free booklets 
• Financial support
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• LLS Myeloma Link

Support for this episode provided by AbbVie Inc. and Genentech, A Member of the Roche Group.

Join us as we speak to Donnie Hill, a patient living with chronic lymphocytic leukemia (CLL) and small cell lymphocytic lymphoma (SLL). In this episode, Donnie shares his experience and the stresses of living with a chronic disease like CLL/SLL, the various treatments he has had since he was diagnosed in 2008 and how he has worked with his doctor to determine the best treatment for him. Don’t miss this engaging story of how, throughout his cancer journey, Donnie continues to celebrate life and hope with volunteering, advocacy and the love of his family.

Mentioned on this episode: 

• Chronic Lymphocytic Leukemia (CLL)
• Small Cell Lymphocytic Lymphoma (SLL)
• Shared Decision Making in Chronic Leukemias
• Blood Cancer Conferences
• Light The Night
• Man and Woman of the Year
• Patti Robinson Kaufmann First Connection Program
• Information Specialists

Additional LLS Support Resources: 

• Free telephone/web patient programs 
• Clinical Trial Support Center
• Free booklets 
• Financial support
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• LLS Myeloma Link

Support for this episode provided by Eli Lilly.

Join us as we speak to Lyneshia Johnson-Woodland, an internet radio show host, actress and comedian who was diagnosed with non-Hodgkin lymphoma in September 2020.  In this episode, Lyneshia shared how she was diagnosed with lymphoma and the difficult treatments she endured during the COVID-19 global pandemic. She also discussed the emotional impact of cancer and how she is appreciating this second chance at life.

Mentioned on the episode:

• Non-Hodgkin Lymphoma
• Black Women Connexting Communities
• UniverSoul Circus®

Additional LLS Support Resources:

• Information Specialists
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• LLS Young Adult Resources
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Pharmacyclics, An AbbVie Company & Janssen Biotech.