In this, the final episode of Noncompliant, I spoke with Shannon Rosa, editor of Thinking Person’s Guide to Autism. She shared her memories of her good friend Steve Silberman, author of the groundbreaking history of autism & the neurodiversity movement, Neurotribes, which featured Shannon and her family. We talked about Steve and his legacy for our community.

This episode features clips from the first episode of Noncompliant, where Steve talks about autism and his work, and  includes a closing note of thanks to Noncompliant listeners as the podcast ends.

Listen by pressing play below, or find it on streaming sites like  Spotify,   ApplePodcasts,  Pandora, etc.

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I had an amazing conversation with Nancy Marshall, a therapist and researcher, who previously worked as Child and Youth Counselor in Toronto public schools. We discussed her new, qualitative research on autistic people’s experiences with and perception of ABA. We also talked about the impact of the neurodiversity movement on autism services, and the evolution of new supports and educational practices that are neuro-affirming.

Listen to the podcast by playing the audio file below, or on streaming sites like  Spotify,   ApplePodcasts,  Pandora, etc

I was honoured to speak with the amazing Guy Stephens, founder of the Alliance Against Seclusion & Restraint about what’s new in human rights advocacy for autistic &  developmentally disabled students.

AASR has a groundbreaking new program, Reframing Behaviour, in partnership with the Crisis Prevention Institute, rolling out across America–neuroscience-based training for educators to eliminate seclusion & stop the traumatization of our special ed students. 

Listen to the podcast by playing the audio file below, or on streaming sites like  Spotify,   ApplePodcasts,  Pandora, etc

Read the podcast transcript below the audio file.

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More about the Reframing Behaviour program 

Alliance Against Seclusion & Restraint: Parent Guide

I was so excited to speak with Dr. Ryan, a trailblazer in Canadian autism research! Her work was the first participatory autism research in Canada and it has inspired more. We talk about inclusion, autonomy, research methods, our collaborative work and how to improve services for intellectually disabled people in Canada’s west and throughout the world.

Listen to the audio below or on streaming services like Spotify,  ApplePodcasts & Pandora.

Transcript coming soon!

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Sources

Professor Carl Elliott’s new book The Occasional Human Sacrifice, is about whistleblowers in medicine. In this episode, we discuss the whistleblowers at Willowbrook, a residential institution for autistic and developmentally disabled people that was exposed for human rights abuses in 1972. We also talk about the experience of being a whistleblower and its impact on mental health, as well as strategies for reporters and whistleblowers.

Listen to the podcast by playing the audio file below, or on streaming sites like Spotify,  ApplePodcasts, Pandora, etc 

Read the transcript, below the audio.

Cw for institution survivors: Abuses in residential institutions discussed at 5:30-11:05 and 32:45-37:03

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Resources

Former residents of Willowbrook recall its horrors as fight for disability rights continues. Times Union. March 27, 2023.

Willowbrook State School. Wikipedia.

Stop the Shock at Judge Rotenberg Center: Action Alerts. Autistic Self Advocacy Network (US).

I was thrilled to talk with Tony Spiridakis and Alex Plank about the new film Ezra, which Tony wrote and produced alongside director Tony Goldwyn, and which Alex associate produced, acted and consulted on. (Read my review of Ezra here.) We take a look behind the scenes at how the film was developed and produced on set, and how the film is aspirational for new films with autistic characters.

Listen to the podcast by playing the audio file below, or on streaming sites like Spotify,  ApplePodcasts, Pandora, etc 

Read the transcript, below the audio.

Tony Spiridakis is an award-winning screenwriter, director, producer, and actor with nearly four decades in the film and television industry. He is a father of two and a strong advocate for autism awareness. He supports a variety of autism-related schools and organizations, including The Help Group, The Center School, Birch Family Services, Exceptional Minds, and We’ve Got Friends.

Alex Plank is a producer and actor, known for Ezra, The Good Doctor, The Bridge and other works. He is also well known in our community as the founder of Wrong Planet, an online community for autistic people and a place where a lot of autistic people found each other and found out more about themselves. Alex is an associate producer of Ezra and consulted on the film from a neurodiversity perspective.

While the podcast is on a brief hiatus as I finish my book (yay!), I’m sharing this interview that Shawn Pickard hosted with me for Voices for Abilities radio. We discussed how Canadian autism policy needs to move from a charity perspective to a rights perspective and how the inclusion and neurodiversity movements are working for the changes that autistic people & families need.

Listen to the podcast by playing the audio file below, or on streaming sites like Spotify, Stitcher or ApplePodcasts.

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Her upcoming book, The Children Do Not Consent: The search for autism’s “cure”—and the kids who pay the cost will be published in 2023.

I spoke with Dr. Molly Colvin and Dr. Tannahill Glen about their new book, Altered Trajectories: How the COVID-19 Pandemic Impacted Children’s Education, Mental Health and Neurodevelopment, co-authored with Dr. Jennifer Linton Reesman. We discussed the educational impact of school closures, as well as the mental health impact on kids. A crucial topic as we look for solutions today, both within and outside education.

Listen to the podcast by playing the audio file below, or on streaming sites like Spotify, Stitcher or ApplePodcasts.

Dr. Molly Colvin is director of the Learning and Emotional Assessment Program (LEAP) at Massachusetts General Hospital and an Assistant Professor of Psychology at Harvard Medical School. She is also Co-Director of the Child Psychology Internship program at MGH.

Dr. Tannahill Glen is a clinical neuropsychologist at the MD Anderson Cancer Center. She specializes in diagnosis and treatment planning for neurologic conditions with impact on thinking, mood and behavior.  Most recently her publications have centered on the neuropsychological consequences of prolonged pandemic related educational disruption.

I had the honour of speaking with Keenan Wellar, founder of LiveWorkPlay about the organization’s work helping the community welcome and include people with intellectual disabilities, autistic persons, and those with a dual diagnosis in housing, work and leisure.  LiveWorkPlay is a model for the paradigm shift that is needed in developmental services!

Listen to the podcast by playing the audio file below, or on streaming sites like Spotify, Stitcher or ApplePodcasts.

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I spoke with Dr. Andrew Whitehouse from the University of Western Australia about autistic life, gut hype, same-foods, the problem of pseudoscience and the shifting nature of autism research.

Listen to the podcast by playing the audio file below, or on streaming sites like Spotify, Stitcher or ApplePodcasts.

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