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Noncompliant - the podcast
By Anne Borden KingSociety & Culture
Noncompliant - the podcast episodes
- Episode 50. Remembering Steve Silberman: A conversation with Shannon RosaMe and Steve
In this, the final episode of Noncompliant, I spoke with Shannon Rosa, editor of Thinking Person’s Guide to Autism. She shared her memories of her good friend Steve Silberman, author of the groundbreaking history of autism & the neurodiversity movement, Neurotribes, which featured Shannon and her family. We talked about Steve and his legacy for our community.
This episode features clips from the first episode of Noncompliant, where Steve talks about autism and his work, and includes a closing note of thanks to Noncompliant listeners as the podcast ends.
Listen by pressing play below, or find it on streaming sites like Spotify, ApplePodcasts, Pandora, etc.
Transcripts below audio file.https://noncompliantpodcast.com/wp-content/uploads/2024/11/Anne-Shannon-MIX-2.mp3Transcript: Transcript- Noncompliant Podcast-Remembering Steve Silberman A conversation with Shannon Rosa (1).mp3(2)Bio
Shannon Rosa is senior editor of Thinking Person’s Guide to Autism, an autism information and advocacy nexus. Her writing can be found in The Washington Post and the anthology Autistic Community and the Neurodiversity Movement, among other places. She lives near San Francisco, California, with her husband and adult autistic son.43 min - Episode 49. Transforming schools and autism therapy: A conversation with Dr. Nancy Marshall
I had an amazing conversation with Dr. Nancy Marshall, a therapist and researcher, who previously worked as Child and Youth Counselor in Toronto public schools. We discussed her new, qualitative research on autistic people’s experiences with and perception of ABA. We also talked about the impact of the neurodiversity movement on autism services, and the evolution of new supports and educational practices that are neuro-affirming.
Listen to the podcast by playing the audio file below, or on streaming sites like Spotify, ApplePodcasts, Pandora, etc
https://noncompliantpodcast.com/wp-content/uploads/2024/11/Anne-Nancy.mp3BioNancy Marshall is a registered social worker and youth worker who holds a PhD in Education from York University, Toronto. She has close to 20 years experience as a Child and Youth Worker (CYW) supporting autistic children, youth, and families with neuro-affirming and relational approaches in a variety of settings, mainly in special education settings and one-on-one counselling settings. Currently, she works as a child therapist at Ripple Effect Children’s Services in Toronto, Ontario and as a Course Director at York University teaching Inclusion, Disabilities, and Education to preservice K to 12 teacher candidates. Her mixed methods doctoral research examined the impact of ABA on the wellbeing of autistic people using survey analyses and stories from lived experiences.26 min - Episode 48. A journey to transform special education: Catching up with Guy Stephens at Alliance Against Seclusion & RestraintImage courtesy of the Alliance Against Seclusion & Restraint
I was honoured to speak with the amazing Guy Stephens, founder of the Alliance Against Seclusion & Restraint about what’s new in human rights advocacy for autistic & developmentally disabled students.
AASR has a groundbreaking new program, Reframing Behaviour, in partnership with the Crisis Prevention Institute, rolling out across America–neuroscience-based training for educators to eliminate seclusion & stop the traumatization of our special ed students.
Listen to the podcast by playing the audio file below, or on streaming sites like Spotify, ApplePodcasts, Pandora, etc
Read the podcast transcript below the audio file.
https://noncompliantpodcast.com/wp-content/uploads/2024/07/Anne-Guy-Stephens-July-29-Mix-2.mp3Transcript: NCP_Transcript_Guy StephensBio
Guy Stephens is one of the best-known parent advocates in our community. Through his work at AASR, he has been helping to inform changes in policy and practice to reduce and eliminate the use of restraint and seclusion in schools and other settings. Guy promotes trauma-informed, neuroscience-aligned, collaborative approaches to working with kids–and in just a few years he’s led AASR to become a leader in the field, presenting their work across North America with groundbreaking education for educators, as well as toolkits for parents. Guy also currently serves on the board of directors for The Arc of Maryland and PDA North America.Links
Reframing Behaviour: Neuroscience-based Training for EducatorsMore about the Reframing Behaviour program
Alliance Against Seclusion & Restraint: Parent Guide
57 min - Episode 46. Dr. Jackie Ryan on inclusive research & service models for intellectually disabled Canadians
I was so excited to speak with Dr. Ryan, a trailblazer in Canadian autism research! Her work was the first participatory autism research in Canada and it has inspired more. We talk about inclusion, autonomy, research methods, our collaborative work and how to improve services for intellectually disabled people in Canada’s west and throughout the world.
Listen to the audio below or on streaming services like Spotify, ApplePodcasts & Pandora.
Read the transcript below the audio file.https://noncompliantpodcast.com/wp-content/uploads/2024/05/Anne-Podcast-May-23.mp3Transcript coming soon!
Bio
Jackie Ryan is an autistic autism researcher with a PhD in Rehabilitation Science from the University of Alberta. Her recent doctoral research was about understanding self-determination and autonomy from the perspective of autistic adults with intellectual disabilities, using a community-based participatory research approach. Included in her research was the preparation of the Research 101 open-access training to build capacity for autistic people to collaborate more in autism research.Sources
Being able to be myself: Understanding autonomy and autonomy-support from the perspectives of autistic adults with intellectual disabilities. Ryan, et al. Autism. 2024.38 min - Episode 45. Willowbrook, whistleblowers & human rights: Carl Elliott on his new book, The Occasional Human Sacrifice
Professor Carl Elliott’s new book The Occasional Human Sacrifice, is about whistleblowers in medicine. In this episode, we discuss the whistleblowers at Willowbrook, a residential institution for autistic and developmentally disabled people that was exposed for human rights abuses in 1972. We also talk about the experience of being a whistleblower and its impact on mental health, as well as strategies for reporters and whistleblowers.
Listen to the podcast by playing the audio file below, or on streaming sites like Spotify, ApplePodcasts, Pandora, etc
Read the transcript, below the audio.
https://noncompliantpodcast.com/wp-content/uploads/2024/04/Anne-Podcast-Apr-3.mp3Cw for institution survivors: Abuses in residential institutions discussed at 5:30-11:05 and 32:45-37:03
Transcript: Transcript_Carl Elliott_Noncompliant PodcastBio
Carl Elliott is a professor in the Department of Philosophy at the University of Minnesota. He’s a native of Clover, South Carolina, where his father was a family doctor and his mother was a librarian. Before moving to Minnesota, he taught at McGill University in Montreal. Among the awards he has received for his work are a Guggenheim Fellowship, a National Endowment for the Humanities Public Scholar Award, and the Maguire Chair in Ethics and American History at the US Library of Congress.Resources
The Occasional Human Sacrifice: Medical Experimentation and the Price of Saying No, by Carl Elliott (W W Norton)Former residents of Willowbrook recall its horrors as fight for disability rights continues. Times Union. March 27, 2023.
Willowbrook State School. Wikipedia.
Stop the Shock at Judge Rotenberg Center: Action Alerts. Autistic Self Advocacy Network (US).
56 min - Episode 44. Filmmakers Tony Spiridakis & Alex Plank on the new film “Ezra”, autism and representationTony Spiridakis, Bobby Cannavale & Alex Plank
I was thrilled to talk with Tony Spiridakis and Alex Plank about the new film Ezra, which Tony wrote and produced alongside director Tony Goldwyn, and which Alex associate produced, acted and consulted on. (Read my review of Ezra here.) We take a look behind the scenes at how the film was developed and produced on set, and how the film is aspirational for new films with autistic characters.
Listen to the podcast by playing the audio file below, or on streaming sites like Spotify, ApplePodcasts, Pandora, etc
Read the transcript, below the audio.
https://noncompliantpodcast.com/wp-content/uploads/2024/03/Anne-Borden-Mar-8-Final-Edit-Mix-4.mp3Transcript: Transcript_NCPodcast_Tony Spiridakis & Alex PlankBiosTony Spiridakis is an award-winning screenwriter, director, producer, and actor with nearly four decades in the film and television industry. He is a father of two and a strong advocate for autism awareness. He supports a variety of autism-related schools and organizations, including The Help Group, The Center School, Birch Family Services, Exceptional Minds, and We’ve Got Friends.
Alex Plank is a producer and actor, known for Ezra, The Good Doctor, The Bridge and other works. He is also well known in our community as the founder of Wrong Planet, an online community for autistic people and a place where a lot of autistic people found each other and found out more about themselves. Alex is an associate producer of Ezra and consulted on the film from a neurodiversity perspective.
50 min - Episode 42. “How do we break down the barriers?” Anne Borden King, interviewed by Sean Pickard on Voices for Abilities
While the podcast is on a brief hiatus as I finish my book (yay!), I’m sharing this interview that Shawn Pickard hosted with me for Voices for Abilities radio. We discussed how Canadian autism policy needs to move from a charity perspective to a rights perspective and how the inclusion and neurodiversity movements are working for the changes that autistic people & families need.
Listen to the podcast by playing the audio file below, or on streaming sites like Spotify, Stitcher or ApplePodcasts.
https://noncompliantpodcast.com/wp-content/uploads/2024/01/Anne-Edit-Jan-8.mp3Bio
Anne Borden King is a Toronto-based podcaster, writer and human rights advocate. Her work has appeared in the New York Times, Healthy Debate, FactKeepers and Thinking Person’s Guide to Autism, among other publications. She is the host of Noncompliant, a popular podcast about neurodiversity. A co-founder of Autistics for Autistics, the Canadian autistic self-advocacy organization, she has presented before the United Nations and the Canadian Senate among others, on autism policy.Her upcoming book, The Children Do Not Consent: The search for autism’s “cure”—and the kids who pay the cost will be published in 2023.
32 min - Episode 41. The impact of pandemic-related school closures: A conversation with Molly Colvin & Tannahill Glen
I spoke with Dr. Molly Colvin and Dr. Tannahill Glen about their new book, Altered Trajectories: How the COVID-19 Pandemic Impacted Children’s Education, Mental Health and Neurodevelopment, co-authored with Dr. Jennifer Linton Reesman. We discussed the educational impact of school closures, as well as the mental health impact on kids. A crucial topic as we look for solutions today, both within and outside education.
Listen to the podcast by playing the audio file below, or on streaming sites like Spotify, Stitcher or ApplePodcasts.
https://noncompliantpodcast.com/wp-content/uploads/2024/01/Anne-Podcast-Dec-21-Remix.mp3BiosDr. Molly Colvin is director of the Learning and Emotional Assessment Program (LEAP) at Massachusetts General Hospital and an Assistant Professor of Psychology at Harvard Medical School. She is also Co-Director of the Child Psychology Internship program at MGH.
Dr. Tannahill Glen is a clinical neuropsychologist at the MD Anderson Cancer Center. She specializes in diagnosis and treatment planning for neurologic conditions with impact on thinking, mood and behavior. Most recently her publications have centered on the neuropsychological consequences of prolonged pandemic related educational disruption.
ResourcesMy interview with Jennifer Reesman: Middle-school minds in teenage bodies: The post-pandemic crisis in our high schools. Healthy Debate. November 2023.38 min - Episode 40. Keenan Wellar from LiveWorkPlay: Transforming Canada’s housing & programs for intellectually disabled CanadiansJulie Kingstone & Keenan Wellar, co-leaders of LiveWorkPlay
I had the honour of speaking with Keenan Wellar, founder of LiveWorkPlay about the organization’s work helping the community welcome and include people with intellectual disabilities, autistic persons, and those with a dual diagnosis in housing, work and leisure. LiveWorkPlay is a model for the paradigm shift that is needed in developmental services!
Listen to the podcast by playing the audio file below, or on streaming sites like Spotify, Stitcher or ApplePodcasts.
https://noncompliantpodcast.com/wp-content/uploads/2023/12/Anne-Podcast-Dec-6-Edit.mp3Transcript: Transcript_KeenanWellar_NCP_PodcastBio
Keenan Wellar has served as Co-Leader and Director of Communications for charitable organization LiveWorkPlay since 1997. LiveWorkPlay helps the community welcome and include people with intellectual disabilities and autistic persons to live, work, and play as valued citizens. The organization has earned numerous accolades, including Ottawa Board of Trade’s Best Non-Profit of 2019. Keenan serves as LiveWorkPlay event host as well as media spokesperson. He currently appears monthly on the Weekly Roundup show on 580 CFRA talk radio .52 min - Episode 39. “What outcomes are we looking at?” Talking with Dr. Andrew Whitehouse about the shifting course of autism research & services
I spoke with Dr. Andrew Whitehouse from the University of Western Australia about autistic life, gut hype, same-foods, the problem of pseudoscience and the shifting nature of autism research.
Listen to the podcast by playing the audio file below, or on streaming sites like Spotify, Stitcher or ApplePodcasts.
https://noncompliantpodcast.com/wp-content/uploads/2023/11/Anne-Podcast-Nov-14-Remix-1.mp3Transcript: NoncompliantPodcast_trscrt_WhitehouseBio
Dr. Whitehouse is the Angela Wright Bennett Professor of Autism Research and the Director of Clini-Kids at the Telethon Kids Institute. He is Professor of Autism Research at the University of Western Australia and Research Strategy Director of the Cooperative Research Centre for Living with Autism (Autism CRC). He has published over 300 peer-reviewed journal articles and is an advisor to State and Commonwealth Governments on policies relating to autistic children. He was awarded a Eureka Prize for his research and in 2023, he was a Western Australian of the Year award winner.Links
Will Mozart Make My Baby Smart?Autism-related dietary preferences mediate autism-gut microbiome associationsCooperative Research Centre for Living with Autism (Autism CRC)35 min
About Noncompliant - the podcast
From the publisher's feed
Noncompliant is a podcast about autistic rights and neurodiversity. Host Anne Borden King interviewing authors, advocates and others working for human rights and autistic acceptance.