When Nisha Lobo was four years old, a woman at a shopping mall spat on her and told her mother she shouldn't bring a child "like that" out in public.
Nisha's response, sitting in the car afterwards while her mother cried: "Mama, what she did is her problem, not mine."
Nobody taught her that. It was just how she saw it.
Nisha was born with lamellar ichthyosis — a rare genetic skin condition that affects approximately one in a million people — and has around 10% vision in one eye. She is also a TEDx speaker, a Satyamev Jayate guest, the subject of the internationally screened Vicks Touch of Care film, and today, a full-time item data specialist at Target who takes a cab to work and argues with her mother about walking on busy roads.
In this episode of Off Syllabus, Nisha sits with Dr. Aloma Lobo — her mother, a doctor, and someone who has spent decades working with the placement of abandoned and special needs children — for a conversation that covers a remarkable amount of ground without ever feeling like it's trying to.
You will hear about the school that told Dr. Lobo to take Nisha away, and the school whose principal held her hand on the first day. About the classroom where only one hand went up when a teacher asked if anyone didn't have a problem. About the brother who made Nisha a stack of cards that read: "I have ichthyosis. It is not contagious. I am just like you." About the family who saw Nisha and brought their child with Down syndrome back home from an orphanage.
And you will hear Nisha herself — calm, funny, entirely unbothered — talk about history being her favourite subject in school, crochet being her current hobby, and why she's been watching detective shows lately instead of anything remotely inspirational.
For parents especially, this episode asks a question worth sitting with: are we raising our children to handle the world, or are we handling the world so our children never have to?
Off Syllabus is the podcast of Brigade Schools. New episodes explore the conversations that shape children beyond the syllabus.