On One Condition

Seth saw how Huntington's Disease (HD) affected his mum and impacted his family. He talks about going through genetic testing aged 20 and the lack of mental health support when being told he also had HD. Whilst he may not experience symptoms yet, he shares his eagerness to take part in clinical trials, and his frustration with the pharmaceutical industry not offering trials for pre-symptomatic HD patients.

The song Seth chose is Feel So Close by Calvin Harris.

Alex’s journey with depression is profound. He talks about extremely tough times, multiple hospitalisations and almost taking his own life. His determination is exceptional though, an example of how to overcome your own challenges.

The song Alex selected is Dance Monkey by Tones & I.

Jay was diagnosed with fibromyalgia in 2020, and he believes he has had this condition for 20 years before being diagnosed. In this episode, we talk about Deftones, how firbomyalgia affects Jay, and how he balances doing what he enjoys in life with the risk of having a flare-up. 

The music selected by Jay is the album White Poney by Deftones. 

Emily discovered that she has the BRCA gene mutation by chance. It has led her to have multiple surgeries to reduce her risks of having breast and ovarian cancer. Through her journey, Emiliy has realized that the healthcare system does not provide the support patients need. She now advocates for more support for patients within the healthcare industry.

I apologize for mispronouncing BRCA. By listening to Emily, I now know how to pronounce it!

The song Emily chose is Two for the road by Henry Mancini.