Once Upon A Blue Moon

Once Upon A Blue Moon

By Our Leaders: Pooja, Liesha, Anirudh, and Cayla!ScienceLife Sciences
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Once Upon A Blue Moon episodes

  • A Discussion with Katie Callaghan

    This week, we spoke to Katie Callaghan, works with Rare Youth Revolution and runs an organization called Cards for Bravery. Tune in as we speak about Katie's experience with her own rare diseases and how she works to advocate for the rare disease community. A huge thanks to Katie for joining us on this episode!!

    19 min
  • Update + Rare Disease Day
    Happy new year! A big thank you to all of our listeners who have stuck with us so far. In this episode, we speak about the events of the past two months and what we hope to do in the next year.
    10 min
  • Victoria Jackson’s Story with Endosalpingiosis and Endometriosis: A Lesson in Self-Advocacy
    Victoria’s story battling endometriosis and endosalpingiosis is one of true strength and bravery. Facing the intense pain and debilitating health issues that accompany endosalpingosis, she has struggled to get the help that she needs and deserves through all her life. Her story is one of resilience and learned to fight for oneself; it's truly an inspiring lesson in self-advocacy! Note: an earlier version of this podcast incorrectly defined endometriosis and endosalpingiosis. We have fixed the definition - sorry for the mixup!
    7 min
  • Sofie’s Journey with Spina Bifida

    Sofie Cox is a champion athlete and renowned dancer - she’s travelled around the world, competed numerous times, and has several awards to her name. But what you wouldn't expect is that Sofie also lives with spina bifida; a rare congenital disorder that has left her paralyzed from the waist down. Her story of strength and passion is truly inspiring, as she shows that her disability will never limit her talent and speaks out for other disabled individuals. Tune in to find out more about Sofie and how spina bifida has impacted her life!

    6 min
  • Ali’s Journey with Pediatric Wild-Type GIST
    Ali lives like many other 22 year olds - she’s a student, blogger, activist. But Ali also lives with GIST cancer. Listen through this episode to learn about Ali’s diagnosis and how she lives with this cancer. Ali’s story is extremely empowering and inspiring - thank you to Ali for sharing her story with us! 💜
    9 min
  • Sickle Cell Awareness

    Join cohost Liesha Yenduri as she discuss the various aspects and implications of Sickle Cell Disease in honor of National Sickle Cell Awareness Month. Please be sure to check out our website (https://shapingfoundations.wixsite.com/shapingfoundations) and socials (shapingfoundations) for more content! 

    5 min
  • Tabitha L. Frank’s Journey with Endosalpingiosis

    This week, we talk about our rare star of the week - Tabitha L. Frank - and her journey with endosalpingiosis. Tune in to find out more about her struggle with her diagnosis and how she made her way to meeting with politicians to advocate for women with endosalpingiosis!

    Be sure to also check out Tabitha's nonprofit and Facebook page for endosalpingiosis: https://www.endosalfoundation.org/ and Endosalpingiosis Foundation INC. 

    10 min
  • Meet the Directors!
    In this episode, the four directors of this organization answers questions about the organization and questions from our social media. Find our more about the origins of this organization and about the directors themselves!
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    Support this podcast: https://podcasters.spotify.com/pod/show/shapingfoundations/support
    37 min
  • Interview with Rare Disease Advocate: Dr. Shyamala Peesapati

    Hello everyone and welcome back to our podcast! This week, we have a recorded interview with Dr. Shyamala Peesapati, a dentist currently residing in Bangalore, India, who has become a powerful and inspirational voice in the rare community. She has used the experiences of her past to drive her forward and to raise awareness in the rare community, spreading positivity and hope wherever she goes. We hope you enjoy this interview with this amazing rare star! You can find her on Instagram @shyamala_peesapati and on Facebook at Shyamala Peesapati, and if you have any questions feel free to contact her!

    21 min

About Once Upon A Blue Moon

From the publisher's feed

Shaping Foundations is a 501(c)(3) student-led nonprofit that aims to raise awareness, advocate, and fundraise for rare diseases. These diseases, although mysterious and fascinating, are often ignored in the healthcare industry. This means that there is little research, funds, and treatment options available for rare diseases and the people who have them. By listening to this podcast, not only will you educate yourself about this topic, you will also support our cause and provide help to those who really need it!