"When you're caring for somebody living with ALS, it's going to be tough. You can't imagine it. You can't explain it. But being there for the person after they're gone, it'll mean the world to you."

Lea Storry, believe it or not, tells stories for a living. An accomplished writer, journalist, and CALI graduate, Lea’s life was profoundly shaped by her experiences with ALS through the diagnoses of her mother, Shela, and her close friend, Pauline. Those experiences led her to create Speaking ALS: An Anthology, a collaborative writing project that amplifies the untold stories of the ALS community. Join us for a conversation spanning grief, love, science, accessibility, support, and the power of storytelling through Speaking ALS.

To support Speaking ALS: An Anthology, visit ourfamilylines.ca/speakingals

For more information on the Carey Me Fund, visit vrhfoundation.ca/carey-me 

For more information on the International ALS/MND Symposium, visit https://www.als-mnd.org/

For more information on ALS, please visit the ALS Canada website at https://als.ca/

Episode Transcript

"In one sentence, our lives were turned upside down."

Andrew Dundas was diagnosed with ALS in December, 2022. Today, he's an official ALS Canada Community Ambassador, an author, and a fierce accessibility advocate who has dedicated his life to inspiring the community around him. Join us as we delve into the details of Andrew's lifelong journey of turning lemons into lemonade!

To join Andrew's Virtual Mobility Challenge, visit https://alslemonade.org/

To read Andrew's blog, visit https://myalschallenge.com/

For more information on the TIME program, visit https://abilitiescentre.org/home

For more information on the Rotary Club of Whitby-Sunrise, visit https://www.rotarywhitbysunrise.com/

For more information on ALS, visit https://als.ca/

A big thank you to Nathalie Picard for providing the music for today's land acknowledgement. We encourage you to check out more of her music here.

Episode Transcript

originALS: more than ALS steps into the world of the incredible people affected by Amyotrophic Lateral Sclerosis or ALS. In each episode, hosts Flynn Mason and ALS Canada Community Ambassador Hayley King highlight firsthand experiences of one special guest. From the challenges of diagnosis to the passions that make each one of us unique, you’ll hear stories of hope for all that is possible, even in the face of a devastating disease. Whether you’re here for inspiration, to learn more, or to feel the power of a community coming together, originALS: more than ALS is for you. Please tune in at the end of the month for the very first episode. We hope you’ll join us.

For more information on ALS and how to join the fight against it, please visit the ALS Canada website.

Episode Transcript