Show Notes:

Host Ashley Frye discusses her family's journey to a SYNGAP1 diagnosis for her son Nathan and living with and caring for a young child with a rare disease.

What is SYNGAP1:  https://www.syngapresearchfund.org/home/what-is-syngap1

Syngap Research Fund:  https://www.syngapresearchfund.org/

Follow Ashley:

Facebook:  https://www.facebook.com/ashley.hewettfrye

LinkedIn:  https://www.linkedin.com/in/ashley-frye-62095582/

Nathan’s Warrior Story:  https://www.syngapresearchfund.org/syngap-warrior/nathan

Connect with SRF:

Facebook:  https://www.facebook.com/cureSYNGAP1

Twitter:  https://twitter.com/intent/user?screen_name=cureSYNGAP1

Instagram:  https://www.instagram.com/curesyngap1/

LinkedIn:  https://www.linkedin.com/company/18940628/admin/

TikTok:  https://www.tiktok.com/@curesyngap1

SYNGAP10 Weekly Video Podcast with Mike:  https://www.youtube.com/playlist?list=PLjpr3a14_ls38mAeOZeErFpEjbrw5mGhR

Cannonball For A Cure:  https://www.syngapresearchfund.org/post/pr-12-ufd-tech-hosts-second-annual-cannonball-for-the-cure-charity-stream-to-benefit-syngap-research-fund

Wednesday Zoom Meeting for Syngap Families:

Syngap.Fund/SRFfam Meeting ID - 972 0059 2178 Passcode - 848417

Comments and suggestions:  [email protected]

Music:  In the Forest... by Lesfm from Pixabay 

Episode 001 SynGAP Stories, February 7, 2023

#Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id  #anxiety #raredisease #epilepsyawareness #autismawareness  #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy  #GCchat #Neurology