The podcast episode features a candid conversation about living with chronic illness, specifically lupus. It covers the challenges of diagnosis, the impact of lupus on the body, treatment challenges, the experience of adolescence with chronic illness, and the transition to adulthood and family life. The conversation highlights the importance of finding joy in everyday life and the impact of chronic illness on identity.

Takeaways

• Finding joy in everyday life
• The impact of chronic illness on identity

Chapters

• 00:00 Introduction and Podcast Disclaimer
• 06:15 Variability of Lupus and Its Impact on Individuals
• 16:59 Adolescence and Living with Chronic Illness
• 25:18 Teenage Years and Social Challenges
• 33:07 Transitioning to Adulthood and Family Life

In this trailer episode, we share the story behind why we started this podcast and the conversations that inspired it.

As two women living with chronic illness, we know what it's like to spend years waiting for answers, diagnoses, treatments, and life to feel normal again. But we also know that life doesn't stop while we're waiting.

Outside the Waiting Room is a space for honest conversations about chronic illness, relationships, mental health, identity, grief, resilience, and everything in between. No toxic positivity. No pretending everything is fine. Just real stories, shared experiences, and a reminder that you don't have to navigate this journey alone.

If you've ever felt unseen, isolated, or like the world keeps moving while you're trying to keep up, this podcast is for you.

Welcome. We're so glad you're here. 💜