Parkinson's Empowerment

When Janet Kearns first faced the reality of Parkinson's, it wasn't just a diagnosis—it was a shadow of her mother's own struggle with the same disease. On the Parkinson's Empowerment Podcast, Janet's profound story unfolds, revealing how denial morphed into determination.  Through the echoes of the past and the challenges of a global pandemic, Janet shares how exercise and the solidarity of a community became her cornerstones in the battle against Parkinson's.

In a candid exchange,  we discuss challenges that can arise when mobility challenges are not apparent to those around you.  We illuminate the early signals of Parkinson's and Janet's personal tactics for maximizing her medication's potency. Then, pulling on the gloves, we celebrate the lighter side of living with Parkinson's. From  'fighter names' to  friendships, Janet and I punch through the notion that this journey is a solitary one. The laughter in a boxing class is just as essential as the jabs and hooks—it's about fighting back with joy.

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Val Muse is back, and her story is nothing short of empowering. When we last spoke with her, Val was navigating the early stages of Parkinson's disease, harnessing the power of the LSVT Big physical therapy program to manage her symptoms. Fast forward to today, and Val's journey has led her to the high-energy punches and uppercuts of Rock Steady Boxing. In this intimate conversation, she's here to share how this program has not only ramped up her physical strength but also instilled a mental resilience that's redefining her approach to life with Parkinson's.

Imagine stepping into a community that fights not just with gloves, but with unwavering support and shared determination. That's the reality Val found in Rock Steady Boxing in Victor, NY, where each jab and hook carry the weight of her indomitable spirit. Val's experience is a powerful testament to the idea that engaging in the activities you're passionate about is a potent prescription for enhancing one's quality of life. She's discovered a newfound vigor and a morning routine that starts with purpose and promise. Join us as Val's infectious enthusiasm punches through the perceived limits of Parkinson's,

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Ever wondered how a tool as simple as walking poles could transform the lives of those battling Parkinson's disease? Brace yourself for an enlightening conversation with Joy Cochran, a clinical evidence specialist for urban polling. Discover the fascinating history of urban polling and the unique features of activator poles that have become game-changers in our clinical practice. Hear heartening stories of improved posture and relief from joint pain, testaments to the power of these tools.

Switch gears as we delve into the remarkable benefits of the activator poles for Parkinson's patients. Our experience as physical therapists comes to life through success stories of exercise, balance, and Nordic walking. Learn about the safety features that make these poles a boon for those with tremors or weak grip strength. More than physical aid, these poles are catalysts for improved quality of life and community involvement. Wrap up with us as we advocate for spreading the word on these life-altering resources, and leave feeling inspired by the positive impact of urban polling on those with Parkinson's. Tune in and join us on this journey of discovery and transformation.

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You've heard of smartwatches tracking your steps, but what about tracking Parkinson's symptoms? That's the reality with StrivePD, an incredible app developed by the team at Rune Labs. In a unique conversation, Brianna unveils how this free app, compatible with the Apple ecosystem, enables Parkinson's patients to closely monitor their symptoms, including tremors and dyskinesia. Originally created by Aura Oslapas, a PD patient herself, StrivePD was acquired by Rune Labs in 2018. Brianna shares how StrivePD can revolutionize the way patients and clinicians communicate, leading to a more informed health journey. It's time to get savvy about your health, and this conversation is a great start.

The chat takes a futuristic turn as we plunge into the fascinating world of Rune Labs' brain sense technology. Imagine a world where Parkinson's patients can track symptoms more effectively and clinicians can adjust programming and medications based on the tracking with the StrivePD App ! Well, it's happening. With the integration of fall detection technology and an activity logging system, Brianna highlights how StrivePD provides users with an in-depth understanding of their health. But that's not all; there are exciting developments on the horizon, including the integration of heart rate metrics into the clinician portal. Tune in to learn how technology like StrivePD is not just changing, but truly revolutionizing care and treatment for Parkinson's.

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Join us on a fascinating journey with Speech Language Pathologist, Brittany Peck,   as we unravel the complexities of swallowing and what people with Parkinson's may be experiencing.  Brittany's expertise illuminates how the reduction of dopamine, can lead to a slow-down in the oral musculature, causing difficulties in swallowing. Yet, as we learn, there's a beacon of hope with retraining and awareness. 

 We discuss the clinical swallow evaluation process, potential treatments, and even share some handy tricks for taking medication. If you're in a remote location, fret not! Brittany enlightens us about her home-based practice in the Finger Lakes region of New York, and how she's leveraging technology to deliver speech-language pathology services to those in rural and remote areas. Finally, we list some key indicators that could signal swallowing difficulties. So, come aboard and learn how to manage and improve swallowing issues related to Parkinson's.

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On today's podcast Dr. Gillum and I discuss the gut brain connection and Parkinson's, constipation and the steps you can take to ameliorate your symptoms and the connection between diabetes and Parkinson disease.  

Dr. Gillim  received his medical degree from Stanford University School of Medicine

And studied internal medicine and gastroenterology at Cornell University in NYC. 
Thank you taking the time to be on the podcast Dr. Gillim!

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Check out our website www.safeathompt.com
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Val had heard about boxing and Parkinson's and had been meaning to look into the program. She saw the Rock Steady Boxing Victor Magnet on a car at one of her medical appointments, and knew it  was a sign. She took a picture of it and gave us a call. The trip to our clinic/gym was her first time meeting other people with Parkinson's. Listen to this episode and learn more about how Parkinson's presented initially and what she is doing about it now. 

Check out our website www.safeathompt.com
give us a call at (585)398-6050
or send us an email at [email protected]

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Valerie Hall, a Medicare Advisor, has some great information on things to consider with open enrollment.  Valerie's Medicare Corner (585)490-9491
[email protected]

There is great information in this podcast for people with and without Parkinson Disease. 

In network, out out of network.... what does that mean for you? Important information you should know before choosing a plan. 

Check out our website www.safeathompt.com
give us a call at (585)398-6050
or send us an email at [email protected]

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See what has changed for Ivana since completing high frequency physical therapy and beginning PD exercise classes at Safe at Home Physical Therapy. 

Check out our website www.safeathompt.com
give us a call at (585)398-6050
or send us an email at [email protected]

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Boxing exercises include training for agility, speed, reaction time, endurance, focus, hand-eye coordination, footwork and strength. Exercise to help slow progression and reduce symptoms must  push the participants beyond what they perceive they are capable of performing.  

Our Rock Steady Classes  in Victor, NY, are offered at two different levels so that participants get the most out of them, and those that need to can work up to being able to get to the level of working out  with intensity. We also offer PWR! Moves classes which are more moderately paced and focus on functional movements (getting up off the floor, in and out of car) , stretching, balance, focus and fine motor. Our Cardio Cognitive class helps people build up their aerobic endurance using various cardio equipment with an added cognitive challenge each class. 

Thank you for your service Terry!

Check out our website www.safeathompt.com
give us a call at (585)398-6050
or send us an email at [email protected]

Thanks for listening!