Parkinson’s Looks Like Me Podcast

Join co-hosts Esther, Chris, and Mel as they discuss available advanced therapies, what they've tried, what their doctors have said, and how they chose to move forward with their care.

~~~ HOSTS ~~~

Esther Labib-Kiyarash | @shakinginmyboots1

Chris Sutphin | @cesutphin

with support from hosting organization, Parkinson & Movement Disorder Alliance

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TREATMENTS OVERVIEW | PMD Alliance Treatments Hub

DEEP BRAIN STIMULATION (DBS):

FOCUSED ULTRASOUND (FUS):

INFUSION THERAPY:

JOIN YOPN | PMD Alliance's Free Membership Program for People with YOPD & Care Partners

GET IN-PERSON SUPPORT | PMD Alliance's Directory for Groups, Providers, & Events

Don't forget to follow, subscribe, and share! Because the conversation continues in the comments on Podbean, across social media, and in YOPN's Monthly Community Gatherings. Tell us what you think!

Disclaimer: The views and opinions expressed in this program are those of the authors/producers/guest speakers and do not necessarily reflect the views or opinions of YOPN or PMD Alliance.

Could Parkinson's be the result of an evolutionary adaptation that provides short-term protection from environmental triggers, but results in long-term consequences? Researcher Matthew Farrer, PhD introduced a compelling model for understanding the mechanism behind Parkinson's in his recent paper, and we're diving into all the details with him.

~~~ HOSTS ~~~

Esther Labib-Kiyarash | @shakinginmyboots1

Chris Sutphin | @cesutphin

with support from hosting organization, Parkinson & Movement Disorder Alliance

~~~ GUEST ~~~

Matthew Farrer, PhD 

Professor of Neurology (Molecular Neuroscience and Neurogenetics) at the University of Florida | Find his full bio here.

READ HIS PAPER | A unified evolutionary explanation of Parkinson's disease 

PD & LRRK2 GENE | Video explanation from Parkinson's UK

ALPHA-SYNUCLEIN | Article from Cure Parkinson's

JOIN YOPN | PMD Alliance's Free Membership Program for People with YOPD & Care Partners

GET IN-PERSON SUPPORT | PMD Alliance's Directory for Groups, Providers, & Events

Don't forget to follow, subscribe, and share! Because the conversation continues in the comments on Podbean, across social media, and in YOPN's Monthly Community Gatherings. Tell us what you think!

Disclaimer: The views and opinions expressed in this program are those of the authors/producers/guest speakers and do not necessarily reflect the views or opinions of YOPN or PMD Alliance.

Sit down with co-hosts Mel and Chris to learn what their Deep Brain Stimulation (DBS) procedures were like, the realities of recovering from brain surgery, and how they feel now, 2 years after. This episode does not shy away from the visceral parts of their experiences, including Chris' unique impressions from being awake during his DBS placement.

~~~ HOSTS ~~~

Esther Labib-Kiyarash | @shakinginmyboots1

Chris Sutphin | @cesutphin

with support from hosting organization, Parkinson & Movement Disorder Alliance

READ EARLY ONSET PARKINSON'S DBS STORIES

RECOMMENDED DBS RESOURCES

JOIN YOPN | PMD Alliance's Free Membership Program for People with YOPD & Care Partners

GET IN-PERSON SUPPORT | PMD Alliance's Directory for Groups, Providers, & Events

Don't forget to follow, subscribe, and share! Because the conversation continues in the comments on Podbean, across social media, and in YOPN's Monthly Community Gatherings. Tell us what you think!

Disclaimer: The views and opinions expressed in this program are those of the authors/producers/guest speakers and do not necessarily reflect the views or opinions of YOPN or PMD Alliance.

Jump in the time machine with cohosts Mel, Esther, and Chris to revisit a past conversation from 2024 when Chris and Mel were both preparing for Deep Brain Stimulation (DBS) surgery. Learn about their mindsets and quality-of-life going into the procedure, then next month, come back to hear their DBS impressions almost 2 years later!

~~~ HOSTS ~~~

Esther Labib-Kiyarash | @shakinginmyboots1

Chris Sutphin | @cesutphin

with support from hosting organization, Parkinson & Movement Disorder Alliance

READ EARLY ONSET PARKINSON'S DBS STORIES

RECOMMENDED DBS RESOURCES

JOIN YOPN | PMD Alliance's Free Membership Program for People with YOPD & Care Partners

GET IN-PERSON SUPPORT | PMD Alliance's Directory for Groups, Providers, & Events

Don't forget to follow, subscribe, and share! Because the conversation continues in the comments on Podbean, across social media, and in YOPN's Monthly Community Gatherings. Tell us what you think!

Disclaimer: The views and opinions expressed in this program are those of the authors/producers/guest speakers and do not necessarily reflect the views or opinions of YOPN or PMD Alliance.

Tune in for a frank discussion on the financial and bureaucratic hurdles you may have to overcome while living with Young Onset Parkinson's. Co-hosts Esther, Mel, and Chris open up about the juggling they've done, the hard choices they've had to make, and the guilt that they manage.

~~~ HOSTS ~~~

Esther Labib-Kiyarash | @shakinginmyboots1

Chris Sutphin | @cesutphin

MORE ON PD COST | What Does Parkinson's Actually Cost You? by Beatrice Zatorska, Founder and CEO of PD Buddy App

GET IN-PERSON SUPPORT | PMD Alliance's Directory for Groups, Providers, & Events

Don't forget to follow, subscribe, and share! Because the conversation continues in the comments on Podbean, across social media, and in YOPN's Monthly Community Gatherings. Tell us what you think!

In this special mini-episode, Mel and Chris talk Parkinson's travel and the importance of gathering with community members in anticipation of the upcoming World Parkinson's Congress in Phoenix, AZ.

~~~ HOSTS ~~~

Chris Sutphin | @cesutphin

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JOIN YOPN | PMD Alliance's Free Membership Program for People with YOPD

GET IN-PERSON SUPPORT | PMD Alliance's Directory for Groups, Providers, & Events

 "We need to start moving away from the idea that there will be 'a cure.' There will be many cures, and all cures are not going to come in an equal way..." In this deep-diving episode, we sit down with Alberto Espay, MD to dig into what's really stalling the research community, how bad actors take advantage of the placebo effect, and what people with Parkinson's can do to push for change.

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with support from hosting organization, Parkinson & Movement Disorder Alliance

~~~ GUEST ~~~

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WATCH | Parkinson's Research YouTube Playlist from PMD Alliance

JOIN YOPN | PMD Alliance's Free Membership Program for People with YOPD

"If somebody has random OFF time, it's my failure. I'm failing as a physician..." In this validation-packed episode, we sit down with movement disorder specialist and researcher Rodolfo Savica, MD, PhD to get his perspectives on YOPD and the problems with the current care approach many were taught.

With Valentine's Day coming up, we get into sex, intimacy, connection, and what it all looks like when you're living with PD. This episode is raw and deeply real, and it's packed with context that actually helps. If you've been wondering whether you're alone in this, you're not.

Join us as we explore alternative therapies for Parkinson's disease and share our experiences researching and trying various approaches and also fads. It's time to debunk the junk and separate fact from fiction.