Parkinson’s Looks Like Me Podcast

Parkinson’s Looks Like Me Podcast

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Parkinson’s Looks Like Me Podcast episodes

  • Michelle Newman C.O.O of the Kirk Gibson Foundation for Parkinson’s

    Michelle Newman, the Chief Operating Officer of the Kirk Gibson Foundation for Parkinson's, discusses her decision to leave corporate America and join the foundation. She shares her personal connection to Parkinson's disease through her father's experience with the condition, and discusses how he managed his disease. Additionally, she explains the mission and purpose of the Kirk Gibson Foundation for Parkinson's, which is dedicated to supporting individuals with Parkinson's and advancing research on the condition.

    40 min
  • SEGMENT THREE: DEVELOPING A WELLNESS PLAN TO MANAGE YOUR DIAGNOSIS
    Thanks to Ellen Bookman for taking the lead on this series
    Special thanks to StanandTeresa Jackson for coming on the show (Part 3) and sourcing great guests for this series.

     

    Teresa Jackson is a National Board-Certified Health & Wellness Coach (NBC-HWC), Duke Integrative Medicine Coaching Program, and a Certified Coach— International Coaching Federation who will:

    Discuss how to take what you have learned about mental wellness, develop a plan, and apply it to your everyday life in concert with the medical management aspect of the disease.

    Karen Goble, Director at Southern Regional Area Health Education, an ordained chaplain, and a certified Integrative Health Coach and Cognitively Based Compassion Training teacher through the Emory University Center for Contemplative Science and Compassion-Based Ethics will:

    Discuss the benefits of utilizing calming techniques such as meditation and breathing as a tool to maintaining Mental Wellness.

    Mental Health Series

    Segment 2

    https://yopn.podbean.com/e/mental-health-part-2-with-ellen-bookman-and-dr-charles-dent/

    Segment 1

    https://yopn.podbean.com/e/maintaining-emotional-health-is-as-important-as-the-medical-management-of-any-chronic-disease-diagnosis/

    1 hr 4 min
  • Dr. Peter Schmidt talks about Parkinson’s and Covid

    Dr. Schmidt is active in research, specializing in the intersection between mathematics and medicine, with a special interest in mapping the n-dimensional spaces of clinical data. Schmidt serves as an advisor to several government, industry, and foundation initiatives. He has been involved in several national-scale quality initiatives including with the US National Quality Forum and the Fresco Network in Italy. Schmidt has recent or current advisory engagements in wearable sensors, telemedicine, remote monitoring, and clinical trial design. He has contributed to AHRQ and Commonwealth Fund publications and has been an invited speaker for NIH and diverse international patient and professional conferences. Schmidt previously worked in corporate finance-focused on healthcare innovation, created chronic disease management systems, and served as Chief Operating Officer of a joint venture of Oxford, Stanford, and Yale delivering online education. Educated at Harvard and Cornell, he had a fellowship

    50 min
  • PMD Alliance and the ALL IN summit

    In this Episode we spoke with Andrea Merriam, CEO and Anissa Mitchell, LCSW, Chief Program Officer of the PMD Alliance about the ALL IN summit


    The ALL IN summit was held October 22-25 in Washington DC
    This national in-person summit gathered community + support group leaders and allies from around the country, convening prospective leaders, newbies, and veterans to connect, collaborate, and embrace the magic that happens when we come together to learn.


    About the PMD alliance


    PMD Alliance is a 501c3 nonprofit organization dedicated to educating, empowering, and connecting people with movement disorders, their families, and the healthcare providers and community members who care for them.

    1 hr
  • PART 2: Mental Health: Navigating through Life with Ellen Bookman and Dr. Charles Dent

    Welcome to Segment 2 of our mental health series

    Segment 1 included

    MENTAL HEALTH SYMPTOMS ASSOCIATED WITH A YOPD DIAGNOSIS which can be found here

    https://twomikespdpodcast.podbean.com/e/maintaining-emotional-health-is-as-important-as-the-medical-management-of-any-chronic-disease-diagnosis/

    In segment 2 we discuss a PRIMER ON WAYS TO STAY MENTALLY HEALTHY AS YOU NAVIGATE THOSE THINGS IN LIFE THAT where we:

    Discuss how we process and understand feelings and emotions as we deal with situations unique to those diagnosed with YOPD

    Offer insight into managing and expressing feelings

    Dive into how we connect with others

    Describe how we function or “put the pieces together” to make life decisions such as family, marriage, work, retirement, etc.

    Our guest is Dr. Charles Dent:

    Dr. Charles Dent, M.Div, PHD., is a licensed Mental Health First Aid Trainer, Coach and Therapist. Dr. Dent, a Veteran of the US Marine Corps

    Special thanks to Ellen Bookman and Theresa Jackson

    53 min
  • Call on the Fighter

    Call on the Fighter" began as a simple idea...create and offer original music to encourage and inspire "fighters" along their Parkinson's journey. Colleen Bridges, owner, and director of Bridges for Parkinson's found the perfect fit in one of her own fighters, Rich Gootee. Rich, an award-winning singer/songwriter, knows all too well the constant and daily struggles as he was diagnosed with Parkinson's disease in 2018. Colleen's experience, research, and regular boxing classes have helped Rich and many others discover the fight within themselves to overcome the otherwise debilitating effects of Parkinson's disease. Together, Colleen, Rich, and their team have grown the music idea into an effort to help even more fighters find restoration and hope by raising funds so that nobody will ever have to be turned away from their local program. Please check out more information about our project and consider purchasing our song at www.callonthefighter.com.

    Thank you for watching!  https://www.youtube.com/watch?v=rq6onvFOC9Y

    Song Written and performed by Greg Anderson and Rich Gootee

    43 min
  • The woman who can smell Parkinson’s

    The woman who can smell Parkinson’s


    Joy Milne’s husband Les was diagnosed with Parkinson’s at the age of 45. However, it had been 12 years earlier when Joy had first noticed that something was different about him.


    Joy has a rare condition called hereditary hypersomnia that gives her a heightened sense of smell. When Les was 33, she noticed that he had started to develop an odor, which she described as a subtle, musky smell.


    She also noticed the same distinct smell when attending meetings organized by the charity Parkinson’s UK. It was at this point that she was able to link the smell to the disease.


     Joy’s ‘super smeller’ abilities would soon go on to make headlines around the world, and along with researchers, they're changing the landscape of diagnosing Parkinson's.

    1 hr 1 min
  • Vestibular Training for Parkinson’s with Sheila Thelen

    Sheila Thelen, owner of Vestibular Training Services LLC (VTS), is a National/International/Master Figure Skating Coach & Worldwide presenters at International Conferences & Events. (She is a Vestibular GENIUS - working with thousands of athletes & kids & rehabilitation groups throughout the world.)

    https://vestibulartrainingservices.com/web/index.php?siteid=420&pageid=3356
    She's here to talk about the benefits that Vestibular training has for people with Parkinson's

    38 min
  • Eli Pollard and the WPC in 2023 plus Alison Miller of Supernus Pharmaceuticals

    Today's guests include Eli Pollard and Alison Miller

    Elizabeth “Eli” Pollard is the Executive Director of the World Parkinson Coalition (https://www.worldpdcoalition.org/) talks about many subjects including the WPC in 2023 being held in Spain. She also discusses the "Parkinson's Tulip Project" what it's about and how to enter. Travel grants and much more!

    Alison Miller, Strategic Partnership Manager with Supernus Pharmaceutical (https://www.supernus.com/commercial-products), talks about building relationships within the Parkinson's Community and the drugs offered by Surpernus to help "on time" as well as the "Parkinson's Tulip Project"

    45 min
  • Maintaining emotional health is as important as the medical management of any chronic disease diagnosis
    Thanks to Ellen Bookman for taking the lead on this series
    Special thanks to StanandTeresa Jackson for coming on the show (Part 2) and sourcing great guests for this series.
     
    Maintaining emotional health is as important as the medical
    management of any chronic disease diagnosis
     
    Monday at 8AM EST on radioparkies.com, we begin a 3-part Mental Wellness series created to educate those diagnosed with YOPD on the importance of maintaining mental wellness
    Many diagnosed with YOPD may experience a flood of emotions, particularly when the diagnosis comes in the prime of life - as it does with YOPD.
    The 3-part Mental Wellness, Sponsored by the Young Onset Parkinson's Network (YOPNetwork.org), will:
     Identify non-motor symptoms such as depression, anxiety, lack of sleep, apathy, etc.
     Discuss how non-motor symptoms can affect everyday life such as how to deal with family, work, retirement, telling people, etc.
     Offer tips on how to develop a mental wellness health plan
     Examine how mediation can be a component in maintaining mental wellness.
     
    SEGMENT ONE:
    MENTAL HEALTH SYMPTOMS ASSOCIATED WITH A YOPD DIAGNOSIS
    Bo Majors, Licensed Social Worker, employed by Texas Children’s Pediatrics in Austin, Texas, who will
     Identify mental health symptoms associated with a YOPD diagnosis.
     Discuss the consequences of physicians focusing only on the diagnosis, clinical assessment, evaluation, and medical management of our symptoms
    46 min

About Parkinson’s Looks Like Me Podcast

From the publisher's feed

Real, in-depth conversations about living with Young Onset Parkinson's Disease (YOPD). Join cohosts Esther, Mel, and Chris as they talk with care partners, healthcare experts, and treatment…

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