As a former college athlete, sales executive, and father of two, I thrived on living life to the fullest until a "nervous tick" in my left arm led to a life-changing diagnosis of young onset Parkinson's Disease in 2016 at age 42.
The tick developed into a severe tremor affecting my left side, causing constant pain, embarrassment, and a sharp decline in my quality of life. I struggled with daily activities and business meetings, and intense situations like coaching my son’s basketball games became nearly unbearable.
In 2020, I discovered a clinical trial for Focused Ultrasound, a promising new tremor treatment. Thanks to a supportive employer and a dedicated medical team at the University of Pennsylvania, I underwent this transformative therapy in June 2022.
On June 9, 2022, I traveled to the University of Pennsylvania filled with hope but anxious about the procedure. During the MRI, I experienced intense physical and emotional strain. However, after the third sonication, I felt my tremors cease and my muscles relax for the first time in years. It was a profound moment of relief and stillness.
Since then, I’ve shared my Parkinson’s journey and Focused Ultrasound experience at Capitol Hill, Princeton University, and Rock Steady Boxing. These encounters have shown me the hope my story brings but also highlighted the challenges many face in accessing this treatment. This realization led to the creation of the Be Still Foundation to address these issues and support others in need. https://www.bestill.foundation
