Join us as we start a brand new series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. In this episode, we speak to Ashley Cámara, a Myelodysplastic Syndromes (MDS) survivor and advocate and Dr. Lucy Godley from The University of Chicago Medicine. Ashley shares her story of having two MDS diagnoses in her family – first her brother and then herself. Dr. Godley then delves deeper into inherited myeloid malignancies and how genetic links may lead to preventative treatment options. 

Mentioned

• Myelodysplastic Sydromes (MDS)
• Stem Cell Transplantation
• Hereditary Myeloid Malignancies – University of Chicago Medicine
• Dr. Lucy Godly Contact
• Young Adult Resources

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations

Support for this episode provided by Taiho Oncology.

The post Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with Blood Cancer United Podcast.