Myelodysplastic Syndromes (MDS) - The Bloodline with Blood Cancer United Podcast

Myelodysplastic Syndromes (MDS) - The Bloodline with Blood Cancer United Podcast

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Myelodysplastic Syndromes (MDS) - The Bloodline with Blood Cancer United Podcast episodes

  • Myelodysplastic Syndromes (MDS): Progress, Possibility, and What’s Next
    Jay Yang, MD

    You cannot have progress without research.

    In our latest episode, Dr. Jay Yang of the Karmanos Cancer Institute in Detroit, MI, breaks down the essentials of MDS care, from risk-based treatment plans to managing fatigue and exploring promising new therapies. Tune in to find out why the future of MDS treatment is brighter than ever.

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    CLICK HERE to participate in our episode survey.

    Mentioned on this episode: 

    • Myelodysplastic syndromes (MDS)
    • MDS patient videos
    • Acute myeloid leukemia (AML)
    • Allogeneic stem cell transplant
    • Graft-vs-host disease
    • Clinical Trial Support Center
    • Additional Blood Cancer United Support Resources: 

      • Information Specialists 
      • Free Nutrition Consultations
      • Free telephone/web patient programs 
      • SHARE web series
      • Online videos
      • Free booklets 
      • Young Adult Resources
      • Young Adult Online Chat
      • Support groups 
      • Patient Community
      • Caregiver support
      • Caregiver Workbook
      • Medical Debt Case Management Program
      • Financial support
      • Survivorship Workbook
      • Advocacy and Public Policy
      • Mental Health Resources
      • Episode supported by Bristol Myers Squibb and Taiho Oncology, Inc.

        The post Myelodysplastic Syndromes (MDS): Progress, Possibility, and What’s Next first appeared on The Bloodline with Blood Cancer United Podcast.

        39 min
      • The Bloodline Live! Myelodysplastic Syndromes (MDS) Updates in Research
        Mikkael A. Sekeres, MD, MS

        Curious about what’s new in the world of myelodysplastic syndromes (MDS)? We’re bringing you the latest insights straight from one of the field’s leading experts.

        In this episode, we speak with Dr. Mikkael Sekeres, of the Sylvester Comprehensive Cancer Center at University of Miami Health. Recorded onsite at the 2025 ASH (American Society of Hematology) Annual Meeting and Exposition, this conversation explores what MDS is, how it’s treated today, and what researchers are learning about managing side effects.

        Dr. Sekeres also walks us through the most notable MDS updates presented at ASH, highlighting promising therapies and clinical trial data that may help shape future care. Whether you’re newly learning about MDS or following ongoing research, this episode offers an accessible look at where things stand and what’s on the horizon.

        *This is not an official program of the ASH annual meeting

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        CLICK HERE to participate in our episode survey.

        Mentioned on this episode: 

        • Myelodysplastic syndromes
        • International Prognostic Scoring System for MDS
        • American Society of Hematology
        • Highlights from ASH vlog
        • Blood cancer research 2026: Meeting patients where they want to be | blog post
        • Additional Blood Cancer United Support Resources: 

          • Free Nutrition Consultations
          • Information Specialists 
          • Financial support
          • Clinical Trial Support Center
          • Online Chat
          • Free telephone/web patient programs 
          • Free booklets 
          • Young Adult Resources
          • Support groups 
          • Caregiver support 
          • Caregiver Workbook
          • Survivorship Workbook
          • Advocacy and Public Policy
          • Patient Community
          • Mental Health Resources
          • Episode supported by Geron Corporation and Taiho Oncology, Inc.

            The post The Bloodline Live! Myelodysplastic Syndromes (MDS) Updates in Research first appeared on The Bloodline with Blood Cancer United Podcast.

            19 min
          • MRD Explained: What it Means for You and Your Care
            John Burke, MD

            MRD (minimal/measurable residual disease) testing is changing the way doctors understand and monitor blood cancers.  In this episode, we talk with Dr. John Burke of the Rocky Mountain Cancer Center about how MRD testing works, what the results mean to patients and their care teams, and how ongoing clinical research is helping shape more personalized and hopeful approaches to treatment. 

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            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Minimal/Measurable Residual Disease (MRD) fact sheet
            • Minimal/Measurable Residual Disease (MRD) chart
            • CAR T-cell therapy
            • Additional LLS Support Resources: 

              • Free Nutrition Consultations
              • Information Specialists 
              • Free telephone/web patient programs 
              • Clinical Trial Support Center
              • Advocacy and Public Policy
              • Free booklets 
              • Financial support
              • Young Adult Resources
              • Support groups 
              • Survivorship Workbook
              • Community
              • Caregiver support 
              • Caregiver Workbook
              • Mental Health Resources
              • Supported by Adaptive Biotechnologies Corporation and Allogene Therapeutics.

                The post MRD Explained: What it Means for You and Your Care first appeared on The Bloodline with Blood Cancer United Podcast.

                36 min
              • There’s Always Hope: Myelodysplastic Syndromes (MDS)
                William Shomali, MD

                Research continues to accelerate for myelodysplastic syndromes (MDS), giving hope to patients and their loved ones. In this episode, Dr. William Shomali of Stanford University dives into cutting-edge treatments for both low and high-risk MDS. Learn about the innovative therapies that are enhancing quality of life and explore the promising strides towards curative treatments. Don’t miss this inspiring conversation filled with valuable insights and hope for a brighter future.  

                DOWNLOAD TRANSCRIPT
                CLICK HERE to participate in our episode survey.

                Mentioned on this episode: 

                • Myelodysplastic syndromes (MDS)
                • Acute myeloid leukemia (AML)
                • IPSS-Molecular (IPSS-M) risk stratification
                • Bone marrow transplantation
                • Iron chelation
                • CAR T-cell Therapy
                • Bispecific Antibodies
                • Clinical Trial Support Center
                • Additional LLS Support Resources: 

                  • Information Specialists 
                  • Free Nutrition Consultations
                  • Financial support
                  • Free telephone/web patient programs 
                  • Free booklets 
                  • Young Adult Resources
                  • Online chats 
                  • Support groups 
                  • Caregiver support 
                  • Caregiver Workbook
                  • Advocacy and Public Policy
                  • Survivorship Workbook
                  • LLS Community 
                  • Mental Health Resources
                  • Support for this episode provided by Geron Corporation and Taiho Oncology, Inc.

                    The post There’s Always Hope: Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with Blood Cancer United Podcast.

                    30 min
                  • Improving Quality of Care for Myelodysplastic Syndromes (MDS)
                    Colin Vale, MD

                    Myelodysplastic Syndromes (MDS) is a group of diseases that have a variety of different treatments and outcomes. In this episode, we speak to Dr. Colin Vale of Emory University in Atlanta, GA, about the treatments for MDS, the potential for transforming into acute myeloid leukemia (AML), and new strategies to give patients the quality of care that they deserve.

                    DOWNLOAD TRANSCRIPT
                    CLICK HERE to participate in our episode survey.

                    Mentioned on this episode: 

                    • Myelodysplastic Syndromes (MDS)
                    • IMerge Phase 3 Study (Imetelstat)
                    • Classification Systems
                    • Germline Predisposition Article
                    • Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS) | The Bloodline with LLS
                    • International Prognostic Scoring System
                    • Allogeneic Stem Cell Transplantation
                    • Additional LLS Support Resources: 

                      • Information Specialists 
                      • Financial support
                      • Free telephone/web patient programs 
                      • Free booklets 
                      • Clinical Trial Support Center
                      • Young Adult Resources
                      • Caregiver support 
                      • Caregiver Workbook
                      • Survivorship Workbook
                      • Online chats 
                      • LLS Community 
                      • Support groups 
                      • Patti Robinson Kaufmann First Connection Program 
                      • Free Nutrition Consultations
                      • Support for this episode provided by: Taiho Oncology, Inc.

                        The post Improving Quality of Care for Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with Blood Cancer United Podcast.

                        24 min
                      • Instilling Hope Through Progress: Myelodysplastic Syndromes (MDS)

                        Join us as we speak to Dr. Anand Patel and Dr. Satyajit Kosuri from The University of Chicago Medicine about the latest treatment advances for myelodysplastic syndromes (MDS). In honor of MDS Awareness Day on October 25th, the doctors discuss how MDS develops, why genetic mutations matter when choosing a treatment course, and how stem cell transplantation, targeted treatments and cellular therapies bring hope to MDS patients and their families.

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • Myelodysplastic syndromes
                        • Acute Myeloid Leukemia
                        • Transplant Support and Graft-Versus-Host-Disease (GVHD) episode
                        • Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS)
                        • Transplant Optimization Program (TOP)
                        • MyeloMATCH initiative
                        • CAR T-cell Therapy
                        • Stem Cell Transplant
                        • Cellular Therapies
                        • Graft-Vs-Host Disease
                        • Be The Match – Bone Marrow Donor Registry

                        Additional LLS Support Resources: 

                        • Information Specialists 
                        • Free telephone/web patient programs 
                        • Free booklets 
                        • Financial support
                        • Young Adult Resources
                        • Survivorship Workbook
                        • Clinical Trial Support Center
                        • Online chats 
                        • Caregiver support 
                        • LLS Community 
                        • Support groups 
                        • Patti Robinson Kaufmann First Connection Program 
                        • Free Nutrition Consultations

                        Support for this episode is provided by University of Chicago Medicine.

                        The post Instilling Hope Through Progress: Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with Blood Cancer United Podcast.

                        50 min
                      • Myelodysplastic Syndromes (MDS): A Group of Diseases
                        Daniel Pollyea, MD, MS

                        Please join us as we speak to Dr. Daniel Pollyea from the University of Colorado School of Medicine.  In this episode, Dr. Pollyea discusses the group of diseases that make up Myelodysplastic Syndromes (MDS) and how their variability leads to different treatments and prognoses, from active monitoring to chemotherapy and/or stem cell transplantation.  He shares his excitement about new treatment advances and is looking forward to an era of innovative targeted treatments for MDS.

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • Myelodysplastic Syndromes (MDS)
                        • Myelodysplastic Syndromes (MDS) Booklets
                        • Acute Myeloid Leukemia (AML)
                        • Stem Cell Transplant
                        • IPSS-R Scoring System
                        • IPSS-M Scoring System
                        • Clinical Trial Support Center

                        Additional LLS Support Resources: 

                        • Information Specialists
                        • Financial support
                        • Free telephone/web patient programs 
                        • Patti Robinson Kaufmann First Connection Program
                        • Free booklets 
                        • LLS Public Policy & Advocacy
                        • Online chats 
                        • Caregiver support 
                        • Support groups 
                        • Free Nutrition Consultations 
                        • LLS Advocacy
                        • Survivorship Workbook

                        Support for this episode provided by Taiho Oncology.

                        The post Myelodysplastic Syndromes (MDS): A Group of Diseases first appeared on The Bloodline with Blood Cancer United Podcast.

                        30 min
                      • Transplant Support and Graft-Versus-Host-Disease (GVHD)

                        Join us as we speak to Dr. Mariam Nawas and Dr. Satyajit Kosuri from University of Chicago Medicine, about graft-vs-host disease (GVHD) and the Transplant Optimization Program (TOP). In this episode, we discuss stem cell transplants, how GVHD occurs and what can be done to manage and treat symptoms. The doctors also share how the TOP program at the University of Chicago Medicine utilizes multiple specialties to improve post-transplant success for patients over 50.   

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • Stem Cell Transplant
                        • Graft-Vs-Host Disease
                        • Barnes and Loutit Mouse Leukemia Study  
                        • University of Chicago Medicine Cancer Center
                        • Transplant Optimization Program (TOP)
                        • Be The Match

                        Additional LLS Support Resources: 

                        • Information Specialists 
                        • Free telephone/web patient programs 
                        • Free booklets 
                        • Financial support
                        • Clinical Trial Support Center
                        • Online chats 
                        • Young Adult Resources
                        • Caregiver support 
                        • LLS Community 
                        • Support groups 
                        • Patti Robinson Kaufmann First Connection Program 
                        • Free Nutrition Consultations

                        Support for this episode is provided by University of Chicago Medicine.

                        The post Transplant Support and Graft-Versus-Host-Disease (GVHD) first appeared on The Bloodline with Blood Cancer United Podcast.

                        56 min
                      • Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS)

                        Join us as we start a brand new series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. In this episode, we speak to Ashley Cámara, a Myelodysplastic Syndromes (MDS) survivor and advocate and Dr. Lucy Godley from The University of Chicago Medicine. Ashley shares her story of having two MDS diagnoses in her family – first her brother and then herself. Dr. Godley then delves deeper into inherited myeloid malignancies and how genetic links may lead to preventative treatment options. 

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned

                        on this episode:

                        • Myelodysplastic Sydromes (MDS)
                        • Stem Cell Transplantation
                        • Hereditary Myeloid Malignancies – University of Chicago Medicine
                        • Dr. Lucy Godly Contact
                        • Young Adult Resources

                        Additional LLS Support Resources:

                        • Information Specialists
                        • Free telephone/web patient programs
                        • Free booklets
                        • Financial support
                        • Online chats
                        • Caregiver support
                        • LLS Community
                        • Support groups
                        • Patti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations

                        Support for this episode provided by Taiho Oncology.

                        The post Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with Blood Cancer United Podcast.

                        37 min

                      About Myelodysplastic Syndromes (MDS) - The Bloodline with Blood Cancer United Podcast

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