Patient POV

By Jess Hay

A podcast to provide a platform for people experiencing chronic health conditions to share their stories, resources, and tricks for managing their life while being a patient. By sharing these stories,... more

· Health & Fitness

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FAQs about Patient POV:

How many episodes does Patient POV have?

The podcast currently has 38 episodes available.

Patient POV episodes:

November 13, 2023 Ep. 7 - Chelsea
Say, “Hello” to Chelsea (@gettingthebetterofendo) who is sharing her story of endometriosis and mental health!!
...more
30min
October 29, 2023Ep.6 - Kisha
Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
Today we chatted with Kisha, a public health nurse with POTS. She created her instagram page as a way of explaining what life is like with a chronic illness for her family and now it extends to those who have chronic health conditions or their loved ones!
Notes from our talk:
Everyday is different and everyday is hard, but we need to find time to rest our bodies

Coping strategies she has found to help her:
Being in peace and quiet

Reading the bible

Calm app - brown noise or green noise

Journaling - feelings from the day or anything that comes to mind

You are your own biggest advocate! Don’t stop if you don’t feel the answers are the solutions to your problems!

There is an answer out there for you, just keep pushing

The diagnosis is just validation for how you’ve already been feeling

What you are going through is real - don’t let the doctors make you think you are making it up or that it's all in your head because it's not!!
Resource links:
Liquid IV

Pink himalayan salt

Dysautonomia International: http://www.dysautonomiainternational.org/

Dr. Diana Driscoll https://potscare.com/

Calm app students get a discount too: https://www.calm.com/?pid=googleadwords_int&af_channel=googlesem&af_c_id=15251743825&af_adset_id=131213006073&af_ad_id=561263049540&af_siteid=g&af_sub_siteid=&af_keyword=kwd-100623440&af_sub3=c&af_sub4=Cj0KCQjwhfipBhCqARIsAH9msbni6R3GsscXIQN3M8wfGpOfRoT9q2coKSlCSX0NQjHjSeM6K6OzohsaAvi0EALw_wcB&utm_medium=paid&utm_source=googlesem&utm_campaign=15251743825&utm_content=homepage&utm_term=kwd-100623440&gad=1&gclid=Cj0KCQjwhfipBhCqARIsAH9msbni6R3GsscXIQN3M8wfGpOfRoT9q2coKSlCSX0NQjHjSeM6K6OzohsaAvi0EALw_wcB
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35min
October 22, 2023Ep. 5 - Lexi
Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
Today we chatted with Lexi, a fellow spoonie and disability advocate, who shares her journey with Neuromyelitis Optica (NMO), long covid, dysautonomia, and anxiety.
Things that have helped her:
Support system - in person (Mom and fiancée), social media (connecting with people who can relate)

You need to advocate for yourself or have people around you who can advocate for you (even if you are experiencing medical gaslighting)

Find hobbies that you enjoy, explore your creativity, find something that feeds your mind and soul that interests you

Leaning on the online community has helped her feel less alone on her health journey

Look at everything for the beautiful thing that it is, let's focus on the good and keep moving forward

Productivity is not measured to your worth
Resource links:
Pedialyte: https://amzn.to/46UJ1F2
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31min
October 15, 2023 Ep. 4 - Caitlin
Say, “Hello” to Caitlin (@chronicles.ofcait) who has hypermobile ehlers danlos, functional neurological disorder, and hip dysplasia.

She is learning how to adapt to her new “normal”
After diagnosis. Caitlin talks about the UK healthcare system and services available, her support system, and coping mechanisms in her daily life such as:
1. Write and release it through journaling.
2. Therapy for chronic pain and finding purpose/goals.
3. Mobility aids such as a walking stick, and wheelchair.
4. Ice packs such as a migraine pack (https://amzn.to/3PPpA9W)
5. Knee, ankle straps and pillows for keeping joints aligned while sleeping.
6. FND app to log health symptoms.
...more
36min
October 09, 2023 Ep. 3 - Bev
Say, “Hello” to Bev @unwellunlimitedly. She is diagnosed with endometriosis, adenomyosis, IIH, and a form of myopathy. After long wait times and frequently being dismissed Bev has become more confident in what she is feeling, feels more empowered to advocate for herself, and to champion improvements for the healthcare system, specifically for people with physical and mental health illnesses.
Coping mechanisms that have come in handy for Bev have been:
-Therapy
-Journaling
-Meditation: deep breathing to release tension and improve body literacy.
...more
37min
October 01, 2023Ep. 2 - Sarah
Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!
Today, I had the chance to chat with Sarah who shared her experience of living with POTS, Fibromyalgia and ME/CFS.
She has her own podcast: Be "POTS"itive! - with Sarah Reid where she gets real about having a chronic illness in her 20s and can be found on instagram @be_potsitive

You can also purchase chronic illness merch she has designed https://www.redbubble.com/people/Be-Potsitive/explore?page=1&sortOrder=recent
Notes from this show:
There are some doctors that suck so we need to build our care team with professionals that care for and support you!

Seeing the beauty in the right now while having hope for the future.

Grief of having a chronic illness is real! You can grieve a healthy body, or a body you never got to have, learn to accept and thrive in the now. Our emotions will ebb and flow, but it is okay to process the emotions as they come.
Resources:
Devotional book: Searching for Sea Glass: Journeying with God Through Chronic Illness 30 Devotions: https://www.amazon.ca/Searching-Sea-Glass-Journeying-Devotions/dp/1777721407?&_encoding=UTF8&tag=patientpov-20&linkCode=ur2&linkId=93284a8329b5900d3c3069f812ad9a1f&camp=15121&creative=330641

Compression socks

Electrolyte drinks:
Liquid IV: https://www.amazon.ca/Liquid-Hydration-Multiplier-Stick-Ounces/dp/B07MQ9CDDD/ref=pd_bxgy_sccl_1/140-1655286-8615960?pd_rd_w=VWGz3&content-id=amzn1.sym.93ae3f3f-3555-4971-a952-df8053b1d375&pf_rd_p=93ae3f3f-3555-4971-a952-df8053b1d375&pf_rd_r=VS3HC52FB7JRCTM6S3NP&pd_rd_wg=mSZkk&pd_rd_r=17279d4a-9eb9-4fac-ba7c-b46fe81d3e25&pd_rd_i=B07MQ9CDDD&psc=1&_encoding=UTF8&tag=patientpov-20&linkCode=ur2&linkId=ba19157dc38af7041a0e2164ef3fd5f2&camp=15121&creative=330641

BIOLYTE

LMNT

Salt chews from Vitassium: https://www.amazon.ca/SaltStick-Vitassium-Buffered-Electrolyte-Supplement/dp/B076MXR1LV/ref=sr_1_1?crid=MFDD3F3WL2R5&keywords=vitassium&qid=1696195690&s=grocery&sprefix=vitassium%252Cgrocery%252C74&sr=1-1-catcorr&_encoding=UTF8&tag=patientpov-20&linkCode=ur2&linkId=617aea25eb16e5a43d5c64f1879e178a&camp=15121&creative=330641

Ice packs on the go
You are not alone and everyday will look different. Remember to rest, even on the good days.
...more
34min
September 24, 2023 Ep. 1 - Jess Hay
Introducing me!! Just a little in sight on my story and why I am starting this podcast!!
You can also listen on Spotify!
...more
14min
September 24, 2023 Patient POV: trailer
Patient POV: Podcast by Jess Hay to empower and support those of us with chronic health conditions!
...more
1min

FAQs about Patient POV:

How many episodes does Patient POV have?

The podcast currently has 38 episodes available.