Patients on the Move

Patients on the Move

By admedicum GmbH & Co KGMedicineHealth & Fitness
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Patients on the Move episodes

  • Patient Advocacy in Complex Fatigue-related Illness with Kirsty Cullen
    In this inspiring episode, host Roger Legtenberg welcomes Kirsty Cullen, Chief Executive of the Optimum Health Clinic in London, UK, who is passionate about raising awareness about complex fatigue-related illness and the integrative approach developed to optimize care.
    What to Expect in This Episode:
    - The daily struggles of living with complex fatigue-related illnesses, the biggest hurdles in care and how patient involvement can help overcome them
    - How the Optimum Health Clinic is shaping better patient-centered care
    - Current gaps in patient-relevant care and how they can be addressed looking ahead in the future
    Join us for this insightful conversation as we explore the impact of patient involvement in healthcare and discuss what the future holds for those affected by complex fatigue-related illnesses.
    Don’t forget to subscribe and stay tuned for more discussions on meaningful and sustainable patient engagement in the Life Sciences sector!
    34 min
  • Mindfulness for Cancer Patients with Trish Bartley
    In this inspiring episode, host Roger Legtenberg welcomes Trish Bartley, a true pioneer in bringing mindfulness to people with cancer. Since 2001, Trish has taught mindfulness, authored several influential books, and is recognized as a leading authority on mindfulness for people with cancer across Europe and beyond.
    What to Expect in This Episode:
    - Discover what inspired Trish to dedicate her work to mindfulness for people with cancer.
    - Gain insights through real-life examples of how mindfulness can make a tangible difference in the lives of people living with cancer.
    - Learn about her recent global initiative to make mindfulness more accessible, including efforts to reach communities in regions like Africa through her platform, Mindfulness and Cancer (https://www.mindfulnessandcancer.com).
    - Explore one of her essential books, “Mindfulness – A Kindly Approach to Being with Cancer,” (https://www.amazon.com/Mindfulness-Kindly-Approach-Being-Cancer/dp/1118926285/) and hear about her aspirations for the future of this important work .
    Bonus: If you’d like to experience a short mindfulness practice yourself, Trish generously guides a session around the 24-minute mark.
    Don’t miss this impactful conversation—tune in and be inspired by Trish’s wisdom and dedication to making mindfulness a compassionate companion for those living with cancer.
    32 min
  • Patient Advocacy in Mexico, Carribean and Latin America with Jennifer MacDonald
    In this 8th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Jennifer MacDonald, an Alpha-1 Antitrypsin Deficiency (AATD) patient ambassador from Mexico for Fundacion LovexAir, who is passionate about raising awareness of rare diseases in general and in particular for Alpha-1 AATD in Mexico, the Caribbean, and Latin America.
    Join this impactful conversation as they delve into Jennifer's personal journey, including all the struggles to be adequately treated in Mexico. Also, the needs and future outlook for improving healthcare & raising awareness in the region of, in particular, rare diseases, and the important role patients can play will be discussed.
    31 min
  • Patient Advocacy in Pulmonary Hypertension - with Pisana Ferrari
    Episode 7
    In this 7th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Pisana Ferrari, a well recognised pulmonary hypertension patient advocate from Italy, who started her advocacy work back in 2001 founding the Italian PH patient association AIPI and founding the European Federation for PH PHA Europe. Join this impactful conversation as they delve into what has been achieved in PH, what is still needed, the reasons for recently launched Alliance for Pulmonary Hypertension and the future role of patient engagement should play in the field.
    25 min
  • Patient Advocacy in Oncology - with Steve Clark
    Episode 6
    In this 6th episode of the Patients on the Move Podcast, host Roger Legtenberg sits down with Steve Clark, a well recognised stage 4 cancer patient & advocate from the UK who has been living life with the disease for over 10 years so far. Join this impactful conversation as they delve into the importance of positive focus in treatment discussions & the role that patient engagement can play.
    Hear from Steve about his personal journey with stage 4 cancer and all his initiatives to contribute towards improved patient advocacy and patient-relevant care.
    46 min
  • Patient Advocacy in Gene & Cell Therapy
    Episode 4

    Without access, patients cannot benefit from novel and innovative therapies such as cell and gene therapies.

    The value of these therapies to patients is therefore limited to the extent to which they can be accessed.

    A necessity for effective patient access is early patient involvement by directly involving patients and learning about their expectations and needs.

    Bojana and Philipp will discuss how patient advocacy and patient engagement can help prepare patient access.

    35 min
  • Patient Involvement in HTA processes
    Episode 3

    Our host, Roger Legtenberg, shares with you several extracts from a recent LinkedIn Live event which starred Tom Smith, an independent patient consultant at Above Disease Level, together with Andreas Reimann, co-founder and managing partner of admedicum, who shared their thoughts on the roles & best practices for patient involvement in HTA processes.

    34 min
  • Patient Community Driven Alliances
    Episode 2

    We welcomed Ana Mingorance, Scientific Advisor of the Loulou foundation and Phillipp von Gallwitz, a patient activist for CDKL5 and co-founder of admedicum who shared their views in a lively discussion about this exciting topic with our host Roger Legtenberg.

    26 min

About Patients on the Move

From the publisher's feed

A podcast about Patient Engagement in Life Sciences by admedicum – PATIENT DRIVEN SOLUTIONS.