PeDRA Pearls

PeDRA Pearls

By Pediatric Dermatology Research AllianceScience
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PeDRA Pearls episodes

  • Emerging Mechanisms of Action in the Treatment of Moderate-to-Severe Alopecia Areata in Children - Patient Perspective

    In this final installment of the Emerging Methods of Action in the Treatment of Moderate-to-Severe Alopecia Areata series, Dr. Britt Craiglow interviews a patient family living with alopecia areata. Gracie, a 13-year-old, 8th grader shares her own alopecia areata experience with her rapid hair loss right before beginning middle school, and the importance of being involved in a clinical trial. Her inspiring story offers comfort to other children with alopecia areata and reminds us all why research is so important. Download this episode to learn more.

    59 min
  • Series: Alopecia Areata in Children - Webinar Three

    In the third part of the Emerging Mechanisms of Action in the Treatment of Moderate-to-Severe Alopecia Areata in Children series, Dr. Rodney Sinclair presented cutting edge clinical trial data and discussed emerging mechanisms of action in the treatment of Alopecia Areata in children.

    This webinar is being provided in audio format for on-the-go convenience. To watch the video version of this presentation, please click here.

    53 min
  • Series: Alopecia Areata in Children Webinar Two

    In the second installment of the Emerging Mechanisms of Action in the Treatment of Moderate-to-Severe Alopecia Areata in Children series, featured guests Dr. Ali Jabbari and Dr. John O’Shea dive into the science of AA. Dr. Jabbari will discusses his translational approach to elucidate new targets for AA and Dr. O’Shea will discusses his groundbreaking work to identify JAK inhibitors as a novel therapy for numerous immune-mediated diseases.

    This webinar is being presented in audio format for on-the-go convenience. To view the video version of this presentation, please click here.

    58 min
  • Series: Alopecia Areata in Children Webinar One

    In part one of The Emerging Mechanisms of Action in the Treatment of Moderate-to-Severe Alopecia Areata in Children series, Dr. Leslie Castelo-Soccio and Dr. Britt Craiglow discuss current clinical practices in treating pediatric patients with alopecia areata (AA), diving into the challenges both providers and patients face, and offering guidance on how to approach patients and their families in the clinical setting.

    This webinar is being presented in audio format for on-the-go convenience. To view the video version of this presentation, please click here.

    58 min
  • Publication Presentation: Body Site Distribution of Pediatric-Onset Morphea

    Dr. Yvonne Chiu discusses the findings of her most recent collaborative study - Body site distribution of pediatric-onset morphea and association with extracutaneous manifestations. Learn about the different morphea categories, and whether or not certain locations of linear morphea are risk factors for extracutaneous involvement.

    Watch the complete presentation here.

    10 min
  • Publication Presentation: Association of Demographic Factors and Infantile Hemangiomas

    Dr. Colleen Cotton discusses the findings of her most recent collaborative study - Association of Demographic Factors and Infantile Hemangioma Characteristics with Risk of PHACE Syndrome. Learn more about hemangioma patterns that might suggest greater or lower risk for PHACE Syndrome and how to identify a high-risk patient for a full PHACE Syndrome work up.

    Watch the full presentation here.

    20 min
  • Series: Alopecia Areata in Children Ask Me Anything

    In the “Ask Me Anything” episode of Emerging Mechanisms of Action in the Treatment of Moderate-to-Severe Alopecia Areata in Children, Dr. Leslie Castelo-Soccio and Dr. Britt Craiglow answer questions submitted by the PeDRA community. They discuss their approaches to steroids, how to talk oral systemics with patients and caregivers, and identify several research priorities for the future.

    If you’d like to get involved or learn more about the research ideas discussed in this episode, please send an email to [email protected] to be connected with PeDRA’s Hair Disorders Focused Study Group.

    Note to listeners - to answer all the questions that were submitted, this episode is longer than normal and runs about 60 minutes.

    Coming soon! The final episode in the series will explore the impact of alopecia areata on patients and caregivers through a heartfelt conversation with a family impacted by the disease.

    1 hr 3 min
  • Publication Presentation: Association of Demographic Factors and Infantile Hemangioma Characteristics with Risk of PHACE Syndrome

    Dr. Colleen Cotton discusses the findings of her most recent collaborative study - Association of Demographic Factors and Infantile Hemangioma Characteristics with Risk of PHACE Syndrome. Learn more about hemangioma patterns that might suggest greater or lower risk for PHACE Syndrome and how to identify a high-risk patient for a full PHACE Syndrome work up.

    Watch in the PeDRA Mobile App

    Watch on YouTube

    20 min
  • Getting to Know You: Lawrence Eichenfield, MD

    Dr. Lawrence Eichenfield is a Professor of Dermatology and Pediatrics and Vice-Chair of Dermatology at the University of California, San Diego. He’s a founding member of PeDRA and one of PeDRA’s original Co-Presidents. Dr. Eichenfield is a leader in the field of inflammatory skin disease research and has led many PeDRA studies while mentoring colleagues and trainees on many more. Learn more about Dr. Eichenfield’s career and his passion for musical theater.

    20 min
  • Series: Alopecia Areata in Children with Carolyn Goh, MD

    In the first podcast episode of Emerging Mechanisms of Action in the Treatment of Moderate-to-Severe Alopecia Areata in Children, Dr. Carolyn Goh shares her views on patient care, how to find the right treatment for each patient, and her own experience growing up with alopecia. Providing personal insights on everything from the stigma of the disease to potential future treatments, Dr. Goh offers a refreshing perspective on difficult conversations with patients and the options available to them for treating, or not treating their hair disorders.

    Dr. Goh is a dermatologist, and Associate Clinical Professor of Dermatology at David Geffen School of Medicine at UCLA.

    37 min

About PeDRA Pearls

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The Pediatric Dermatology Research Alliance (PeDRA) is vibrant research network pursuing the mission to create, inspire, and sustain research to prevent, treat, and cure childhood skin disease.