PeDRA Pearls

In this episode, we explore the intersection of storytelling and science. Join us as we dive into Eva’s Itchy Adventure, a children’s book created to help kids living with eczema better understand and manage their condition. We’ll discuss the concept of bibliotherapy—using books as a therapeutic tool—and how it can improve outcomes by reducing anxiety, empowering patients, and strengthening connections between families and healthcare providers.

Books referenced in this episode:

• Ezra’sItchy Red Skin
• Ali’sHair Loss
• SoaringHigh: A Children’s Book about Psoriasis
• Your Skin is Showing

Updates:

• PeDRA Annual Conference
• Dash for Discovery
• Emerging Investigator Research Grants Program 
• Career Bridge Research Grant 
• Consensus Grant Program
• Pediatric Ichthyosis Challenge Grant 
• SOCS Scientific Symposium
• PC Research Grants
• SHSA 2025  
• MRF Brain Metastases Summit 4.0  
• 2025 HS Academy 

In episode 21, PeDRA Pub Club host Hannah Chang and guest panelists, Dawn Eichenfield, MD, PhD, and Jinia El-Feghaly, MD, discuss the article "An international multicenter, retrospective cohort study of 203 patients with pediatric androgenetic alopecia“ published in Journal of the American Academy of Dermatology in 2025.

Updates:

• PeDRA Annual Conference
• Dash for Discovery
• PeDRA Grant Deadlines

In episode twenty, PeDRA Pub Club host Hannah Chang and guest panelists, Dawn Eichenfield, MD, PhD, and Jinia El-Feghaly, MD discuss the article The Association of Psoriasis and Bacterial Infections in Pediatric Patients: A Retrospective Review, published in Pediatric Dermatology in 2025.

PeDRA Annual Conference

• PeDRA Grants
• PeDRA Conference
• Dash for Discovery
• OX 40 Innovative Insights
• Getting to Know Your Patients
• PeDRA Pub Club Episode 19
• NIAMS RFI

In episode nineteen, PeDRA Pub Club host Hannah Chang and guest panelists, Dawn Eichenfield, MD, PhD, and Jinia El-Feghaly, MD discuss the article Survey Access to and Use of Narrowband UVB Phototherapy in Pediatric Vitiligo, published in Pediatric Dermatology in 2025.

PeDRA Annual Conference

Dash for Discovery

In this heartfelt episode of PeDRA Pearls, we shine a spotlight on congenital melanocytic nevi (CMN)—a rare and often misunderstood skin condition present at birth. Tune in to hear Maggie, a physician and mother whose son Reid was born with a giant CMN, and Dr. Harper Price, Division Chief of Pediatric Dermatology at Phoenix Children’s Hospital, as they explore the emotional journey from diagnosis to advocacy, the medical complexities of CMN, and the urgent need for accurate information and coordinated care. You'll also learn about the groundbreaking Nevus Owners Outcomes Registry (NOOR), a collaborative effort between Nevus Outreach and PeDRA that’s paving the way for patient-centered research and improved outcomes for families everywhere.

In this heartwarming episode of PeDRA Pearls, we take a break from our usual research-focused content to spotlight the power of community, creativity, and confidence-building for children with skin conditions. Host Jenn Dawson is joined by Dr. Alanna Bree, founder of Made a Masterpiece, and medical student Alisha Kashyap to discuss their co-authored children’s book Loving the Skin You’re In at Camp Dermadillo. Tune in to learn about the inspiration behind the book, the transformative experience of dermatology camps like Camp Dermadillo and Camp Discovery, and the growing impact of Made a Masterpiece on families across the country.

In our final episode focused on the OX40 pathway and its emerging therapies, Dr. Joy Wan moderates a thoughtful discussion with two leaders from the patient advocacy community. Wendy Smith Begolka, MBS, Chief Program and Mission Officer at the National Eczema Association, and Korey Capozza, MPH, Founder and Executive Director of Global Parents for Eczema Research, share their perspectives on incorporating patient priorities into clinical trials and effectively communicating with patients about new and emerging treatments.

Disclosures:

Joy Wan, MD - Sun Pharmaceuticals – consulting (DMC), Astria Therapeutics – consulting (ad board), Galderma – fellowship funding (paid to Johns Hopkins)

Wendy Smith-Begolka, MBS - Amgen/Kyowa, Kirin, Pfizer, Sanofi  – advisory board honoraria; Arcutis, Incyte, Galderma – speaker fees; Pfizer, Sanofi – research grants

Korey Capozza, MPH - Advisory board honoraria from Amgen, Kyowa Kirin, Incyte, and Pfizer

• 13th PeDRA Annual Conference
• 5th Annual Dash for Discovery
• PeDRA Awards Program
• PeDRA Mentorship Program
• PeDRA Grants
• OX40 Educational Series
• SPD/PeDRA Journal Club

In episode eighteen, PeDRA Pub Club host Hannah Chang and guest panelists, Bella Plumptre, MBBS, and Cheryl Bayart, MD, discuss the article How issues of autonomy and consent differ between children and adults: Kids are not just little people, published in Clinical Dermatology in 2017.

PeDRA and the greater pediatric dermatology community are deeply saddened by the sudden passing of Dr. Robert Sidbury. To donate in his honor, please visit the SPD Foundation.