Show Notes:

In episode 7, SYNGAP1 Dad Peter Halliburton joins Ashley to discuss volunteering with SRF in the "early days" compared to now, receiving his son Carter's diagnosis, dealing with seizures, changing doorknobs, and appreciating the joys in Carter's daily life.

Carter's Warrior Story

Follow Peter Halliburton:

Instagram

Twitter

LinkedIn

Contact Peter at [email protected].

More about the Halliburton Family:

Halliburton Family Video

Cook Children's Hospital Article

Blog by Peter - 8 Months on the Rollercoaster of - Mostly - Uncontrolled Epilepsy

Blog by Peter - What Do You Mean, "Cure SYNGAP1"

⁠⁠Cannonball For A Cure⁠

Follow ⁠⁠⁠⁠Ashley Frye⁠⁠⁠⁠:

⁠⁠⁠⁠LinkedIn⁠⁠⁠⁠

⁠Facebook⁠

⁠⁠⁠⁠Instagram⁠⁠⁠⁠

Nathan’s Warrior Story

SynGAP Stories ⁠Episode 001⁠ - Ashley Frye

SynGAP Stories ⁠Episode 005⁠ - Panda

Panda’s News Story:  ⁠Nathan’s Dog⁠

SRF & SYNGAP1 Info:⁠

What is SYNGAP1? ⁠

Syngap Research Fund

Donate: ⁠⁠⁠https://Syngap.Fund/Donate⁠⁠⁠

SYNGAP1 & Epilepsy⁠⁠⁠

Why Getting a Genetic Diagnosis Matters⁠⁠⁠

How to Get Free Genetic Testing⁠⁠⁠

⁠⁠⁠ Special Needs Trusts⁠⁠⁠

Connect with SRF (@curesyngap1):

  ⁠⁠⁠Facebook⁠⁠⁠

  ⁠⁠⁠Twitter⁠⁠⁠

  ⁠⁠⁠Instagram⁠⁠⁠

  ⁠⁠⁠LinkedIn⁠⁠⁠

  ⁠⁠⁠TikTok⁠⁠⁠

  ⁠⁠⁠SYNGAP10 Weekly Video Podcast⁠⁠⁠ w/ Mike

SYNGAP1 Conference 2023, hosted by SRF - ⁠⁠Hotel Reservations⁠⁠

Wednesday SRF Family Zoom Meeting:

⁠⁠⁠Syngap.Fund/SRFfam⁠⁠⁠ Meeting ID - 972 0059 2178 Passcode - 848417

Comments: [email protected]

Music: ⁠⁠⁠In the Forest... by Lesfm from Pixabay ⁠⁠

Episode 007 SynGAP Stories, May 2, 2023

#SyngapStoriesCarter #Volunteer #SRFVolunteer #Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology