Patient Empowerment Program: A Rare Disease Podcast

Physicians and Institutions Transform the Lives of Nano-rare Patients with Olivia Kim-McManus, M.D.


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Research physicians and their associated institutions are monumental to the mission of the n-Lorem Foundation and are truly transformational to the lives of the nano-rare patients they treat. Olivia Kim-McManus, M.D., was one of four physician panelists at our first Colloquium who participated in "A Physician's Perspective on n-Lorem and Nano-rare". Hear Olivia's outlook on nano-rare patients and how the support of an institution like UCSD Rady Children’s Hospital makes all the difference.

On This Episode We Discuss:

1:55 When Dr. McManus became interested in pediatric neurology and epilepsy

4:00 What ion channels do and why they play a role in epilepsy

5:17 How often is epilepsy genetically caused?

6:52 Why Dr. McManus and Rady Children’s Hospital choose to invest time and resources in helping nano-rare patients.

11:50 Bringing people together for a single forum at the Nano-rare Patient Colloquium inspires collaboration between groups

14:43 The importance of a network of treating physicians and institutions and sharing experiences and lessons learned

17:58 Interest within Rady Children’s Hospital regarding nano-rare patient treatment and ASOs

21:45 A Physician’s Perspective of Nano-rare and n-Lorem

...more
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Patient Empowerment Program: A Rare Disease PodcastBy n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)

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