Power In Me Foundation is a National Trust with CSR1, 80G and 12A certification. We are dedicated for the welfare of rare disease patients and their families. Power In Me is the official podcast of Power In Me Foundation that is aimed tocreate awareness and to be a resource for professionals and common people in understanding rare diseases and other health related information in an easy way.

The following episode is focused on living a life with a rare disease “NMOSD (Neuromyelitis optica spectrum disorder)” with Rare Warrior Ms. Rashmi.   This episode aims to create awareness about this rare disease in the society and help in the early detection of the condition for timely intervention/treatment.

Manoj Kumar Singh, National President of Power In Me Foundation talks to Ms. Rashmi on her journey with NMOSD from the day it was diagnosed till today with her daily challenges. She even talks about her life’s aspirations.

You Can Follow Power In Me Foundation on Our Social Media Handles too.

1.      Linkedin- https://www.linkedin.com/company/power-in-me-foundation/?viewAsMember=true

2.      Instagram- https://www.instagram.com/powerinmefoundation/

3.      Youtube- https://www.youtube.com/@powerinmefoundation

4.      Facebook- https://www.facebook.com/Powerinmefoundation/

ForVolunteering, Pro Bono Work and Membership with our Organization you can emailus at [email protected] andContact at +91-8851537816.

#powerinmefoundation #rarediseases #podcast #NMOSD #nervedisorder #rarewarrior #rashmi #ngo #socialawareness #resource #rarediseaseawareness

#india #delhi #mumbai #bhopal #pune #hyderabad #kolkata #usa #england #australia

Power In Me Foundation is a National Trust with CSR1, 80G and 12A certification. We are dedicated for the welfare of rare disease patients and their families. Power In Me is the official podcast of Power In Me Foundation that is aimed tocreate awareness and to be a resource for professionals and common people in understanding rare diseases and other health related information in an easy way.

The following episode is focused on the discovery of new rare disease “Perinatal Lethal Serpinopathy” by Dr. Shagun Agarwal, Additional Professor & Incharge, Head Department of Medical Genetics, Nizam’s Institute ofMedical Sciences, Hyderabad and her team.  

Manoj Kumar Singh, National President of Power In Me Foundation talks to Dr. Shagun on their journey of discovery and reporting of this novel disease and many other aspects of early detection of rare diseases.

The questions covered are:

1.      Symptoms of Perinatal Lethal Serpinopathy?

2.    How the disease was discovered?

3.    When couples should talk to geneticist?

4.    Government Initiatives on rare disease?

5.     Centre of Excellence  of Rare Diseases?

6.     Costs of genetic tests?

7.     What caused those mutations?

8.    Can Perinatal Lethal Serpinopathy affect Adultstoo?

9.     And many more.

Here is the list of 13 centres of Excellence of Rare Disease in India:

1.       AIIMS, Delhi

2.      Maulana Azad Medical College, Delhi

3.       SanjayGandhi Post Graduate Institute of Medical Sciences, Lucknow

4.      Postgraduate Institute of Medical Education and Research (PGIMER), Chandigarh.

5.      CDFD with Nizam Institute of Medical Sciences, Hyderabad

6.     King Edward (VII) Memorial Hospital and Seth Gordhandas Sunderdas Medical College, Mumbai.

7.     Institute of Post- Graduate MedicalEducation and Research, Kolkata

8.   Centre for Human Genetics (CHG)  with Indira Gandhi Hospital, Bangaluru

9.    AIIMS, Jodhpur

10.    Institute of Child Health and Hospital for Children, Egmore, Chennai

11.   Government Medical College, Thiruvananthapuram 

12.   AIIMS, Bhopal

 You Can Follow Power In Me Foundation on Our Social Media Handles too.

1.      Linkedin- https://www.linkedin.com/company/power-in-me-foundation/?viewAsMember=true

2.      Instagram- https://www.instagram.com/powerinmefoundation/

3.      Youtube- https://www.youtube.com/@powerinmefoundation

4.      Facebook- https://www.facebook.com/Powerinmefoundation/

For Volunteering, Pro Bono Work and Membership with our Organization you can email us at [email protected] and Contact at +91-8851537816.

A podcast episode of interview where Mr. Manoj Kumar Singh, Trustee & National President of Power In Me Foundation talks to Chocolate Entrepreneur Ms. Shifa Saeed on her just starting journey of a solopreneur. And about her chocolate venture Melts. This is an initiative by Power In Me Foundation to support women entrepreneurs into their journey and be their support in making their business profitable.

Order for chocolate is taken from Instagram (@meltschocholate__) .

https://www.instagram.com/meltschocholate__?igsh=NTBtNGsxeWF4eDV6

And WhatsApp- 9545045442

You can connect and support Power In Me Foundation too in our efforts. Follow us on our website- www.powerinme.org

Instagram-

Youtube- https://www.youtube.com/@powerinmefoundation

Facebook- https://www.facebook.com/Powerinmefoundation

Power In Me Foundation is working for the welfare and rights of People with rare diseases. With focus objectives of Health, Education, and Livelihood generation. Along with environmental issues and rural development.  We arecontinuously working towards fulfilling our objectives and bring positive social transformation.  As a part of our GOOD HEALTH Project, in this special series, we are interviewing experts from different field with focus onHealth and Lifestyle. It is 9th Episode in the series.

This episode is focused around Disability Evaluation in Bleeding Disorder Hemophilia, Sickle Cell and Thalassemia as per Rights Of Person With Disability Act 2016.

A talk with Dr. Rajesh Singh Vaish, District Nodal of Hemoglobinopathies & Hemophilia program by NHM & Head of Pathology at District Hospital & Trauma Centre, Singrauli, M. P. Here Trustee & National President of Power In Me Foundation Mr. Manoj Kumar Singh discusses with him about the Disability Evaluation of three bleeding disorders included into Rights of Persons with Disability Act, 2016. The act got enforced in 2017-18 granting much needed Rights to patients of these bleeding disorders who face various limitations aka disabilities due to their rare conditions. Dr. Rajesh Sir gives a brief into the guidelines helping other doctors into understanding the evaluation process for these bleeding disorders. #powerinmefoundation #disabilityact2016 #disabilityevaluation #bleedingdisorders #hemophilia #sicklecellanemia #thalassemia #hemoglobinopathies #socialawareness #ngo #equalrights #equalopportunity #healthcare #india #delhi #bangalore #jaipur #bhopal #mumbai #indore #lucknow #varanasi

Power In Me Foundation is working for the welfare and rights of People with rare diseases. With focus objectives of Health, Education, and Livelihood generation. Along with environmental issues and rural development.  We are

This episode is focused around Thalassemia.

Power In Me Foundation is working for the welfare and rights of People with rare diseases. With focus objectives of Health, Education, and Livelihood generation. Along with environmental issues and rural development.  We are

As a part of our Women Empowerment Project, in this special series, we are interviewing experts from different field with focus on imparting the initial information about that sector and career opportunities in it as per the current scenario and future prospects. Our fourth episode is focused on Career In Writing for Women.

Power In Me Foundation is working for the welfare and rights of People with rare diseases. With focus objectives of Health, Education, and Livelihood generation. Along with environmental issues and rural development.  We are

As a part of our Women Empowerment Project, in this special series, we are interviewing experts from different field with focus on imparting the initial information about that sector and career opportunities in it as per the current scenario and future prospects. Our third episode is focused on Career In Food Industry/Entrepreneurship for Women.

Power In Me Foundation is working for the welfare and rights of People with rare diseases. With focus objectives of Health, Education, and Livelihood generation. Along with environmental issues and rural development.  We are

As a part of our Women Empowerment Project, in this special series, we are interviewing experts from different field with focus on imparting the initial information about that sector and career opportunities in it as per the current scenario and future prospects. Our Second episode is focused on Career In Plant Sciences for Women.

Power In Me Foundation is working for the welfare and rights of People with rare diseases. With focus objectives of Health, Education, and Livelihood generation. Along with environmental issues and rural development.  We are

As a part of our Women Empowerment Project, in this special series, we are interviewing experts from different field with focus on imparting the initial information about that sector and career opportunities in it as per the current scenario and future prospects. Our first episode is focused on Career In Clinical Research for Women.

Power In Me Foundation is working for the welfare and rights of People with rare diseases. With focus objectives of Health, Education, and Livelihood generation. Along with environmental issues and rural development.  We are

This episode is focused around Sickle Cell Disease.

A talk with Dr. Rajesh Singh Vaish, District Nodal of Hemoglobinopathies & Hemophilia program by NHM & Head of Pathology at District Hospital & Trauma Centre, Singrauli, M. P. Here Trustee & National President of Power In Me Foundation Mr. Manoj Kumar Singh discusses with him about the Sickle Cell Disease. He shares details on symptoms, diagnosis and treatment of SCD. Even the district hospital and trauma centre has facility for free diagnosis and treatment of the disease.

#powerinmefoundation #sicklecelldisease #sicklecellanaemia #bleedingdisorder #rarediseases #hemoglobinopathies #SCD #healthpodcast #health #ngo #socialawareness #india #patna #indore #madhyapradesh #raipur #bhopal #karnataka #orissa #delhi