By Mel
The podcast currently has 26 episodes available.
Welcome back to PsA HQ! I’m Mel Brooke and I am on a mission to break down the barriers that can put people off getting involved in research!
This is the first PsA HQ video podcast and in this episode I talk with Dr William Tillett, a research active Rheumatology Consultant from the RNHRD, Bath about some shared experiences and thoughts around patient involvement. I want to get people intrigued about getting involved in research and taking up the opportunities that get put forward and Will is a great advocate for this too. We want to bust some myths around anyone needing to be 'specially qualified' to take part and how it’s the lived experience of people with rheumatic diseases that matter most. Will also talks candidly about how he got involved in Psoriatic Arthritis research and his passion for trying to help improve the lives of people living with rheumatic diseases.
I hope you enjoy this episode!
If you would like my free ‘Beginner's Guide to Patient
If you are listening and have a comment or view to share
Music by Yevhen
Welcome back to PsA HQ! I’m Mel Brooke and I am on a mission to break down the barriers that can put people off getting involved in research! In this episode I walk you through a kind of ‘Beginners guide to Patient Research Partners’ - hopefully it will help you understand what they are, what they do and how to become one.
As mentioned at the end of the episode, I would really value it if you would take part in my survey to understand what learning resources you have used or would like to see available for PRPs. The link is PsA HQ PRP SURVEY
If you would like my free ‘Beginner's Guide to Patient Research Partners in the UK’ that includes links to some of the organisations I’ve mentioned in this podcast, send an email me at [email protected]
If you are listening and have a comment or view to share please contact me via one of my links here and follow me on your listening platform.
Music by Yevhen Onoychenko from Pixabay
Welcome back to PsA HQ! I am on a mission to explain some simple science and smash the barriers that put people off taking part in research! In this episode I am taking a little recap on the last few episodes, talking about ‘Patient Outcomes’ and hopefully starting to help get you feeling more curious and perhaps a little more confident about taking part in research as a ‘Patient Research Partner’..
If you are listening and have a comment or view to share please contact me via one of my links here
Music by Yevhen Onoychenko from Pixabay
Welcome back to PsA HQ! I am on a mission to explain some simple science and smash the jargon barriers that put people off taking part in research. In the last few episodes, I’ve talked about atoms, molecules and chemical reactions and now we will begin to delve into how new drugs and treatments are explored and discovered. Join me for a new episode in this journey to improve the conversations in the patient /researcher rheumatology community and make it all more accessible.
If you are listening and have a comment or view to share please contact me via one of my links here
Music by Yevhen Onoychenko from Pixabay
Welcome back to PsA HQ for another new episode in our journey to break down some of the barriers to research involvement and engagement in the patient /researcher rheumatology community and make it all more accessible. In the last episode, I talked about atoms and molecules so we could begin to grasp some simple science relevant to research. Today, we’re looking at chemical reactions.. mixed in with a little bit of jargon busting!
If you are listening and have a comment or view to share please contact me via one of my links here
Music by Yevhen Onoychenko from Pixabay
Welcome back to PsA HQ for a new episode! I want to help break down some of the barriers to research involvement and engagement in our rheumatology community and make it more accessible. In the last episode, I talked about the world of rheumatology and how chemistry plays a vital role in understanding and managing our conditions. Today, we’re taking a closer look at the building blocks of matter: the atoms and molecules, and their significance in our bodies and medications.
If you are listening and have a comment or view to share please contact me via one of my links here
Music by Yevhen Onoychenko from Pixabay
What is rheumatology, and why does chemistry play a crucial role in it? In this episode of the PsA HQ podcast we are going to delve into the world of rheumatology and explore the scientific foundations that help us understand and manage rheumatic diseases.
if you are listening and have a comment or view to share please contact me via one of my links here
Music by Yevhen Onoychenko from Pixabay
Hey there - it's been a little while since I podcast and I've been thrashing out some ideas that I wanted to use for the channel for a while. I was going for a full re-brand at one point but hey, life's too short! So here's a short update while I get things ready...
If you already follow me thank you - if you don't please like and subscribe.. it would mean so much and help to get this channel listened to even more :-)
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Hello and welcome to another special podcast episode in this series about the ‘The James Lind Alliance Priority Setting Partnership for Psoriatic Arthritis’ - a project funded the British Psoriatic Arthritis Consortium (BritPACT) and was a collaboration with the British Society of Rheumatology (BSR), Psoriasis Association and the Psoriasis and Psoriatic Arthritis Alliance (PAPAA). In this episode I speak with Andy Kelly who is both a patient and someone working in a health care professional role. This dual perspective enabled Andy to see things from both sides - he tells us about his experience of being part of the steering committee and what he gained from doing so.
Here's those links I mentioned in the series:
Top 10 Priorities https://www.jla.nihr.ac.uk/priority-setting-partnerships/psoriatic-arthritis/psoriatic-arthritis-top-10-priorities.htm
James Lind Alliance - https://www.jla.nihr.ac.uk
BritPACT https://www.britpact.org/Impact#PSP
British Society for Rheumatology (BSR) https://www.rheumatology.org.uk
Psoriasis Association https://www.psoriasis-association.org.uk
Psoriasis and Psoriatic Arthritis Alliance (PAPAA) https://www.papaa.org
PsA HQ Linktree https://linktr.ee/PsA_HQ
Please subscribe, rate and bookmark this channel! There are lots of ways to get in touch - here's my link tree or you can send an email to: [email protected]
Attribution: Music by lemonmusicstudio from Pixabay
Hello and welcome to another special podcast episode in this series about the ‘The James Lind Alliance Priority Setting Partnership for Psoriatic Arthritis’ - a project funded by the British Psoriatic Arthritis Consortium (BritPACT) and was a collaboration with the British Society of Rheumatology (BSR), Psoriasis Association and the Psoriasis and Psoriatic Arthritis Alliance (PAPAA). In this episode I speak with Russ Cowper, a patient partner on the steering committee for the PsP project. Russ talks to me about his own experiences with psoriatic arthritis and how and why he gets involved in research engagement.
Here's those links I mentioned in the series:
Top 10 Priorities https://www.jla.nihr.ac.uk/priority-setting-partnerships/psoriatic-arthritis/psoriatic-arthritis-top-10-priorities.htm
James Lind Alliance - https://www.jla.nihr.ac.uk
BritPACT https://www.britpact.org/Impact#PSP
British Society for Rheumatology (BSR) https://www.rheumatology.org.uk
Psoriasis Association https://www.psoriasis-association.org.uk
Psoriasis and Psoriatic Arthritis Alliance (PAPAA) https://www.papaa.org
PsA HQ Linktree https://linktr.ee/PsA_HQ
Please subscribe, rate and bookmark this channel! There are lots of ways to get in touch - here's my link tree or you can send an email to: [email protected]
Attribution: Music by lemonmusicstudio from Pixabay
The podcast currently has 26 episodes available.