Pull Up a Chair Let's Talk LEMS

In this episode we visit with Devon, a husband, father, and teacher, who lives and works while dealing with Lambert-Eaton Myasthenic Syndrome (LEMS). We explore his life before diagnosis, how getting LEMS changed everything, and how he lives a full life now.

We discuss the supplement, Creatine, with Dr. Stephen Meriney, Ph.D. Professor of Neuroscience at The University of Pittsburgh.

Why is everyone talking about it? Who is using it? What is it, and how does it work? Dr. Meriney speaks about the clinical evidence for creatine, why it's interesting scientifically, and how it might be beneficial to LEMS patients.

We talk with Tracy Sharp from Kentucky about his early experiences and struggles from his LEMS diagnosis. He also discusses adapting his life to this new reality, living with a neuromuscular disorder, and his work advocating for LEMS patients with doctors for the LEMS Family Association. He also talks about advice he gives when mentoring other patients, and his single most important tip to the newly diagnosed.

This episode we meet The LEMS Family Association's Executive Director, Madeline Miller. Get to know Madeline, her background in rare diseases, and her perspective on the ultra-rare disorder, LEMS, and her the challenges LEMS patients face.

Episode 1

Host introduction and the defining mission of the podcast and it's goals for the Lambert-Eaton myastenic disorder (LEMS) community of patients, caregivers and family.