On this episode of the PV Pod: Stories from the Marrow, hosts Kay and Josh are joined by Dr. Al Freedman, a psychologist and rare disease advocate, to discuss the mental health challenges faced by people living with polycythemia vera (PV) and other rare diseases. Dr. Freedman shares his personal story as a parent and professional, offering insights on coping with uncertainty, isolation, and the importance of community support. The conversation highlights practical strategies for managing mental health, both for patients and caregivers, and emphasizes the value of hope, resilience, and connection. Tune in for an honest and compassionate look at navigating life with a rare disease.

Episode description will accompany podcast on podcast players.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On this episode of the PV Pod, hosts Kay and Josh discuss the importance of self-advocacy for those living with polycythemia vera (PV). They speak with Susan Brooks about her diagnosis journey, her experiences with advocating for her own health, and the value of staying informed and connected within the PV community.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On this episode of the PV Pod, Josh and Kay discuss the critical importance of shared decision making in the treatment of polycythemia vera (PV). They are joined by Dr. Lucia Masarova from MD Anderson Cancer Center and PV patient Cheri Clark, who provide insights from both the physician and patient perspectives. The discussion highlights the essential role of patient advocacy, continual education, and collaboration between patients and healthcare providers in managing this rare disease.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On this episode of the PV Pod, we dive into the experiences of Steven Ames, who shares his journey with polycythemia vera (PV). Diagnosed during the height of COVID-19, Steven discusses the challenges he faced, including difficult interactions with healthcare providers, the importance of seeking second opinions, and the critical role of having a knowledgeable healthcare team. The conversation also highlights the significance of utilizing a broad support network, which includes family, friends, colleagues, and online communities, to manage the emotional and practical aspects of living with PV.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On this episode of the PV Pod, hosts Josh and Kay engage in a detailed discussion with Dr. Solly Chedid about managing polycythemia vera (PV) over the long term. They explore symptoms, diagnosis, and treatment options for PV, highlighting the importance of patient-doctor collaboration in crafting effective management plans. Don't miss this insightful conversation filled with practical advice and professional insights on living with PV.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On the Season 2 premiere of the PV Pod: Stories from the Marrow, hosts Kay Vermeil and Josh Bragg introduce Dana, a therapist diagnosed with polycythemia vera (PV) at 35. Dana shares her unique diagnosis story, her experience managing PV symptoms from a young age, and the importance of self-advocacy, mental health, and community support in her journey. Dana offers insightful advice on navigating life with PV, emphasizing the need for education and a strong support system.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On the final episode of Season 1 of The PV Pod, we're in conversation with Ken Stein, a 77-year-old former pilot diagnosed with polycythemia vera (PV). Ken shares his diagnosis story, the impact of PV on his life, and the importance of community and self-advocacy. He also highlights challenges in communicating the severity of his condition to others and managing his healthcare team.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On this episode, Josh and Kay recap the first year of 'The PV Pod: Stories from the Marrow', reflecting on key moments from their ten episodes. They discuss polycythemia vera (PV), including insights from medical experts like Dr. Bose, Dr. Tremblay, and Dr. Gerds, and heartwarming stories from people living with PV, such as Nick Napolitano and Gary Linehan. The episode covers PV symptoms, treatments, and the importance of community support. Special highlights include Gary's inspirational outlook and Nick's metaphor of a baseball season to describe living with PV.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On this episode of PV Pod: Stories from the Marrow, we welcome special guest Dr. Brandi Reeves. She helps us dive into an encyclopedic exploration of polycythemia vera (PV). They break down complex medical terms and concepts related to PV, including JAK2 mutations, allele burdens, molecular response, and more. Dr. Reeves provides clear and concise definitions, making it easier for listeners to understand this rare blood cancer and its implications.

Episode description will accompany podcast on podcast players.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

We're back with Gary Linehan, an avid hiker living with polycythemia vera (PV) to talk about his incredible hike around Mont Blanc. Gary shares his journey, the challenges he faced, and the heartwarming connections he made along the way, emphasizing the importance of living life to the fullest despite a PV diagnosis. Tune in to hear Gary's wisdom, inspiring stories, and how he continues to thrive and advocate for the PV community.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.