PV Pod: Stories from the Marrow

We’re back with Gary Linehan, an avid hiker living with polycythemia vera (PV) to talk about his incredible hike around Mont Blanc. Gary shares his journey, the challenges he faced, and the heartwarming connections he made along the way, emphasizing the importance of living life to the fullest despite a PV diagnosis. Tune in to hear Gary's wisdom, inspiring stories, and how he continues to thrive and advocate for the PV community.

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The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On this episode, Gary Linehan, an experienced educator and avid hiker, shares his profound journey from being diagnosed with polycythemia vera (PV) in 2021 to embarking on ambitious hiking adventures, including the Tour Mont Blanc. Linehan discusses his initial symptoms, the challenges of misdiagnosis, and the crucial support system that includes his wife, children, and friends. He also shares insights on how he physically and mentally prepares for his hikes, and offers valuable advice for others newly diagnosed with rare diseases.

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Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On this episode, Dr. Douglas Tremblay from Mount Sinai School of Medicine in New York City discusses progression in polycythemia vera (PV). He elaborates on the transformation of PV into other diseases such as myelofibrosis and acute myeloid leukemia (AML), different ways progression can be defined, and the factors that contribute to the risk of progression. Dr. Tremblay also addresses the significant concern patients have regarding disease progression and the challenges in predicting and preventing it. Furthermore, he explores the role of the JAK2 mutation, inflammation in the bone marrow, and various treatment strategies aimed at controlling the disease and preventing its progression.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On this episode, we travel back to our previous episodes to deliver some highlights of what we’ve learned so far. Dr. Prithviraj Bose gives us an overview of polycythemia vera, patient Nick Napolitano discusses his diagnosis, husband and wife team Joe and Patty Monteleone discuss the caregiver/patient relationship, David Wallace talks about his inspiration to create the PV Reporter and Dr. Aaron Gerds talks treatment.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On this episode, we hear from Aaron Gerds, MD of the Cleveland Clinic about what to expect when starting treatment for polycythemia vera. He talks about setting treatment goals, monitoring treatment progress, how to have an open conversation with your doctor, and more on this episode of the PV Pod.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

Our guest on this episode is David Wallace, founder of The PV Reporter. Diagnosed with polycythemia vera in 2009, David created this website as an MPN (myeloproliferative neoplasm) resource hub and a way to give back to the community. 

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On this episode, we’re in conversation with a husband and wife team of Joe and Patty Monteleone. Patty has PV and Joe is her supportive caregiver. We’ll hear about diagnosis both from a patient and supportive caregiver perspective as well as the unique challenges they have experienced.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On this episode, we talk with Nick Napolitano who has polycythemia vera. He talks about his diagnosis, the emotional impact of being diagnosed with PV and some tips on how to deal with this disease.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

What exactly is polycythemia vera? What are the symptoms? How is it diagnosed? How is it treated? What happens if you don’t treat it? On this episode we speak with Prithviraj Bose, MD. He talks about working in polycythemia vera, the foundational science, best practices and other “need to knows” of PV. 

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions. 

The PV Pod: Stories from the Marrow is a podcast about Polycythemia Vera (PV) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PV. Each episode, The PV Pod: Stories from the Marrowstrives to provide listeners with critical education, the latest scientific updates, and voices from the community.

Join us soon for the season premiere of The PV Pod: Stories from the Marrow. Available wherever you get your podcasts.

Transparency Statement:

The PV Pod: Stories from the Marrow is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.