(Please note, this episode was recorded under the name PWS Connect, and we have since changed the name to PWS United.)

We spoke with PWS parents and advocates, Dini Rao and Gennelle Conway, about the growing PWS BIPOC Affinity Group. We discussed the experiences and challenges of people of color in the medical and PWS world, implicit bias, personal prejudice, and systemic racism, and how people can be allies in their own lives and public spaces. We also mention a variety of valuable and informative resources so please be sure to check out the links below! If you are a person of color or raising a person of color in the PWS community and are interested in joining Dini and Gennelle and the growing BIPOC Affinity community, email [email protected].

Links to Podcasts:

Seeing White from Scene On Radio

Intelligence Squared episodes on Apple

Links to Articles:

Understanding and Addressing Racial Disparities in Healthcare

Reducing Racial Disparities in Healthcare

Implicit Bias and Racial Disparities in Healthcare

Oximeters and skin tone article

The Indispensability of Race in Medicine

Links to Books:

Systemic: How Racism is Making Us Ill by Layal Liverpool

So You Want to Talk About Race by Ijeoma Oluo

Intro Music: https://www.bensound.com/; License certificate #2242442