Join Little Ed as he interviews two very special guests, Robbie Twible and JJ Lawlor.  Robbie joins us to tell us his story with EB and the every day struggles that come along with it.  JJ, Robbie's cousin-in-law, will be running in the NYC Marathon on 11/3/24 on the EB Research Team to raise money on Robbie's behalf. 

Please join us in donating any amount you can or share it on your socials:

https://give.ebresearch.org/fundraiser/5761641
Or you can find the link on our Socials

#EBResearch ‪@EBResearch on Instagram

Watch Live every Wednesday night at 8pm EST on YouTube, X, and Instagram.

Jump in the YouTube chat to have your questions/comments shown on screen!

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