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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.... more
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 233 episodes available.
June 03, 2024125: An Interview With Patricia Weltin, Founder and CEO of Beyond The Diagnosis Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Patricia Weltin,founder and CEO of Beyond the Diagnosis—a nonprofit that uses art to raise public awareness of children with ultra-rare diseases....more18minPlay
May 30, 2024125: An Interview With Sarah Glass, PhD, of the n-Lorem FoundationLarry Luxner, senior correspondent for Rare Disease Advisor, interviews Sarah Glass, PhD, chief operating officer of the n-Lorem Foundation—and the mother of a boy with an ultra-rare disease....more17minPlay
May 28, 2024124: An Interview with Dimitrios Karussis, MD, PhD, on Stem Cell Therapy for Multiple Sclerosis...more15minPlay
May 16, 2024123: An Interview With Mary Morlino, Patient Navigator at the Undiagnosed Diseases Network Foundation Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mary Morlino, who has sarcoidosis and is the patient navigator for the Undiagnosed Diseases Network Foundation....more12minPlay
May 07, 2024122: An Interview WIth Tracy Sharp, a Patient With Lambert-Eaton Myasthenic Syndrome...more14minPlay
May 03, 2024121: An Interview With University of Pennsylvania Neurologist and CIDP Expert Chafic Karam, MD...more5minPlay
April 25, 2024120: An Interview with Avner Reshef, MD, Top Israeli Expert in Hereditary Angioedema Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Israeli expert Avner Reshef, MD, director of the Allergy, Immunology, and Angioedema Center at Barzilai University Medical Center in Ashkelon, only a few miles from the border with war-torn Gaza....more18minPlay
April 25, 2024119: An Interview With Pediatric Neurologist Edward Smith, MD, on the FDA Approval of Vamorolone for Boys With Duchenne Muscular Dystrophy Larry Luxner, senior correspondent for Rare Disease Advisor, interviews pediatric neurologist Edward Smith, MD, about the recent approval of vamorolone, a synthetic corticosteroid, in boys with Duchenne muscular dystrophy....more16minPlay
April 15, 2024118: An Interview With Sharon Hesterlee, PhD, Chief Research Officer at the Muscular Dystrophy Association Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sharon Hesterlee, PhD, chief research officer at the Muscular Dystrophy Association, about the recent proliferation of gene therapies and other treatments for neuromuscular diseases....more8minPlay
April 05, 2024117: An Interview With Ira Walker, the Muscular Dystrophy Association's 2024 National Ambassador, About Living With Spinal Muscular Atrophy Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ira Walker, the Muscular Dystrophy Association's 2024 National Ambassador, at the MDA's 2024 Clinical & Scientific Conference in Orlando, Florida. Walker, 39, has spinal muscular atrophy (SMA) type 2....more13minPlay
FAQs about Rare Care Podcast:How many episodes does Rare Care Podcast have?The podcast currently has 233 episodes available.