Rare Conditions CancerCare Connect Education Workshops

- Definition of a Caregiver

- What Research Tells Us About Caregivers’ Well Being

- Caregiving for an Older Adult

- Caregiving for a Younger Adult

- Caregiving for a Friend

- Caregivers for Cancer Survivors

- Couples, Partners, Siblings & Friends

- Family, Partner & Friend Communication

- Care Coordination: Challenges & Tips

- Stresses on Family, Partners & Loved Ones

- Coping with Holidays, Birthdays & Special Occasions

- Managing Family, Friends, Partners & Traditions

- The Important Role of Long-Distance Caregivers

- Practical Tips for Managing Caregivers’ Stress

- Strategies for Self-Care

- Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of Open Notes

- Questions for Our Panel of Experts

- Overview of Cancer Survivorship

- Managing Post Treatment Side Effects/Late Effects

- Quality-of-Life Concerns

- Fear of Recurrence

- Finding Your New Normal

- The Importance of Treatment Summaries and Encounter Notes

- Follow-Up with Your Oncologist and Primary Care Doctor, Including Discussion of Health Screening and Concerns

- Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, and Discussion of OpenNotes

- Questions for Our Panel of Experts

- Understanding the Future of Cancer Research & Clinical Trials

- Increased Focus on Earlier Detection & Treatment of Cancer

- Health Care Disparities Research

- Enhanced Knowledge of the Molecular Portrait of Cancer

- Artificial Intelligence (AI) Driven Approaches for Diagnosis & Treatment of Cancer

- Microsatellite Instability (MSI): Mutations in DNA Mismatch Repair Genes – Implications for Treatment

- Immunotherapy

- CAR T Cell Therapy

- Immune Checkpoint Inhibitors & Blockade

- Monoclonal Antibodies

- Cancer Treatment Vaccines

- Immune System Modulators

- Targeted Immunotherapies

- Radiopharmaceutical Therapy (RPT)

- Antibody-Drug Conjugates (ADCs)

- Robotic Surgery

- Additional Focus on Lifestyle, Exercise, Nutrition & Hydration

- Increasing Role of Telehealth/Telemedicine Appointments

- Questions for Our Panel of Experts

- Disproportionate Burden of COVID & Cancer on People of Color

- Social Determinants of Health, Including Languages Spoken & Health Literacy

- Influence of the Local & Regional Environment in Which You Live on Your Access to Oncology Care

- Effect of COVID on Health Care Systems

- How Race May Impact Your Access to Cancer Treatment, Management of Treatment Side Effects & Pain Management

- How to Find the Right Cancer Care Team for You

- Access to Cancer Treatment in the LGBTQI+ Community

- Costs of Housing & Cancer Treatment

- Food & Pharmacy Deserts

- Food Insecurity: Tips to Increase Your Access to Health Promoting Nutrition

- Work Commitments & Transportation to Treatment

- Your Rights Under the Americans with Disability Act (ADA) & Family and Medical Leave Act (FMLA)

- How Telehealth May Help You with Greater Health Equity

- Practical Tips to Cope with Health Care Disparities: Valuing Your Identity

- Guidelines for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions, Trusted Family/Friend to Join the Appointment, Quality-of-Life Concerns & Discussion of OpenNotes

- Key Questions to Ask Your Health Care Team

- Questions for Our Panel of Experts

- Understanding Precision Medicine: Overview & Value of Precision Medicine

- How Precision Medicine is Different from Targeted Treatments?

- Precision Medicine Role’s in Informing Treatment Decisions: Predicting Response to Treatment

- The Role of Precision Medicine in Deciding the Treatment for Lung Cancer, Leukemia & Colon Cancer

- Talking with Your Health Care Team About Precision Medicine & its Benefits

- The Role of the Pathologist

- OpenNotes – Asking Your Health Care Team & Pathologist to Help You Understand OpenNotes

- How Precision Medicine Contributes to Treatment Options & Quality of Life

- Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology & Prepared List of Questions

- Questions for Our Panel of Experts

- Definition of a Caregiver

- What Research Tells Us About Caregivers’ Well Being

- Caregiving for an Older Adult

- Caregiving for a Younger Adult

- Couples, Partners, Siblings, & Friends

- Challenges for Caregivers of Cancer Survivors

- Family, Partner, & Friend Communication

- Care Coordination Challenges & Tips

- Stresses on Family, Partners, Friends, & Loved Ones

- Coping with Holidays, Birthdays, & Special Occasions

- Managing Family, Friends, Partners, & Traditions

- Long-Distance Caregiving

- Practical Tips for Managing Caregivers’ Stress

- Strategies for Self-Care

- The Increasing Role of Telemedicine Appointments

- Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology & Prepared List of Questions

- Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects & Pain Management

- What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care

- What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team

- What Is Cultural Humility & How Your Care Team Practices Cultural Humility

- When to Seek a Second Opinion: Finding the Best Care

- How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes

- Key Questions to Ask Your Health Care Team About Your Treatment Plan

- How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity

- Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care

- Your Important Role in Shared Decision-Making

- Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You

- Guidelines to Improve Appointments with Your Health Care Team, Including Prepared List of Questions & Discussion of OpenNotes

- Questions for Our Panel of Experts

- Overview of Common Eye & Vision Changes Related to Cancer Treatments

- Discussion of Common Eye & Vision Changes, Including Causes & Risk Factors

- Tips to Manage Dry Eyes, Watery Eyes, Itching Eyes, Blepharitis, Loss of Eyelashes, Changes in Vision, Cataracts, Floaters, & Flashing Lights

- The Role of the Multidisciplinary Team

- Tips to Manage Low Vision & How Eye Products Can Help You Manage Eye/Vision Changes

- Clinical Trials & Communicating with Your Health Care Team

- Guidelines for Eye Examinations & Check-Ups

- Quality-of-Life Concerns

- Questions for Our Panel of Experts

- Overview of the Different Names for Biomarker Testing & Why They Can Be Helpful for Treatment

- Tumor Marker Testing, Genomic Profiling, Genomic Sequencing, Molecular Profiling, Next Generation Sequencing

- The Relationship Between Biomarker Testing & Precision Medicine

- Types of Biomarker Tests for Cancer Treatment

- Do I Need Biomarker Testing for My Cancer?

- How is Biomarker Testing Done? Using Samples of Your Cancer & Your Healthy Cells

- Samples are Sent to the Lab Where Pathologists Test for Certain Biomarkers

- Some Results Might Lead to Genetic Testing – Inherited or Germline Mutations

- Some Biomarker Testing is Done as Part of Clinical Trials for New Cancer Treatments

- Other Uses of Biomarkers – Determining a Person’s Cancer Risk or Finding Cancer

- Biomarkers Used to Show if a Treatment is Effective or May Show if Cancer is Returning – Examples Will Be Provided

- Biomarkers Play Such an Important Role in Choosing the Best Treatment for You & in Determining Your Progress

- Questions for Our Panel of Experts

- Why Chemotherapy Causes Treatment Side Effects & Discomfort

- Working with Your Healthcare Team to Better Understand & Cope with Potential Treatment Side Effects with a Plan to Manage or Prevent Them

- Common Treatment Gastrointestinal (GI) Side Effects - You May Not Experience All of These - Loss of Appetite, Nausea, Vomiting, Mouth Sores, Stomatitis, Diarrhea, Constipation, Weight Gain or Weight Loss

- How Health Care Teams Approach Management & Prevention of These Common GI Side Effects

- Prevention Strategies

- The Role of the Oncology Nurse in Preventing Side Effects

- Current Research Directions to Improve Control of GI Treatment Side Effects

- Developing a Detailed Plan with Your Oncology Team to Manage & Prevent GI Chemotherapy Treatment Side Effects

- The Importance of Being Prepared Before Treatment Starts

- New Agents

- The Importance of Clinical Trials

- Communicating with Your Health Care Team about Quality-of-Life Concerns

- Guidelines to Prepare for Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes

- Questions to Ask Our Panel of Experts