Rare Discussions

Rare Discussions

By CheckRare EditorsMedicineHealth & Fitness
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Rare Discussions episodes

  • How the MMRF Is Advancing Multiple Myeloma Research
    Daniel Auclair, MD, Chief Scientific Officer of the Multiple Myeloma Research Foundation (MMRF), discusses the foundation’s history and what they are currently doing to progress multiple myeloma research.

    Rare Discussions is produced by CheckRare, the leading multimedia platform dedicated to advancing education, awareness, and innovation across the rare disease community.

    Explore additional physician interviews, podcasts, CME activities, and rare disease resources at CheckRare.com.

    Subscribe to the CheckRare Podcast Network for expert conversations, weekly news, accredited education, and the latest advances across the rare disease community.

    Part of the CheckRare Podcast Network: Trusted conversations, news, education, and expert insights across the rare disease community.


    15 min
  • What is Krabbe Disease?
    Tim Miller, PhD, CEO, President, and Co-Founder of Forge Biologics, gives an overview of Krabbe disease.

    Rare Discussions is produced by CheckRare, the leading multimedia platform dedicated to advancing education, awareness, and innovation across the rare disease community.

    Explore additional physician interviews, podcasts, CME activities, and rare disease resources at CheckRare.com.

    Subscribe to the CheckRare Podcast Network for expert conversations, weekly news, accredited education, and the latest advances across the rare disease community.

    Part of the CheckRare Podcast Network: Trusted conversations, news, education, and expert insights across the rare disease community.


    2 min
  • Gene Therapy Clinical Trial for Krabbe Disease is Recruiting Patients
    Tim Miller, PhD, CEO, President, and Co-Founder of Forge Biologics, discusses the phase 1/2 RESKUE study which will evaluate FBX-101 for the treatment of Krabbe disease. This clinical trial is currently recruiting.

    Rare Discussions is produced by CheckRare, the leading multimedia platform dedicated to advancing education, awareness, and innovation across the rare disease community.

    Explore additional physician interviews, podcasts, CME activities, and rare disease resources at CheckRare.com.

    Subscribe to the CheckRare Podcast Network for expert conversations, weekly news, accredited education, and the latest advances across the rare disease community.

    Part of the CheckRare Podcast Network: Trusted conversations, news, education, and expert insights across the rare disease community.


    2 min
  • TCGT: Overview, Symptoms, and the Need for a Multidisciplinary Approach
    William D. Tap, MD, Chief of the Sarcoma Medical Oncology Service at Memorial Sloan Kettering Cancer Center, gives an overview of tenosynovial giant cell tumors (TGCT), their symptoms, and why a multidisciplinary team is needed to treat them.

    Rare Discussions is produced by CheckRare, the leading multimedia platform dedicated to advancing education, awareness, and innovation across the rare disease community.

    Explore additional physician interviews, podcasts, CME activities, and rare disease resources at CheckRare.com.

    Subscribe to the CheckRare Podcast Network for expert conversations, weekly news, accredited education, and the latest advances across the rare disease community.

    Part of the CheckRare Podcast Network: Trusted conversations, news, education, and expert insights across the rare disease community.


    5 min
  • Acromegaly Highlights from ENDO 2021
    Maria Fleseriu, MD, FACE, Professor of Medicine and Neurological Surgery and Director of the Pituitary Center at Oregon Health and Science University provides an overview of acromegaly research highlights presented at ENDO 2021.

    This CME activity is possible through an educational grant from Ipsen BioPharmaceuticals, Inc.

    To obtain credit for this activity, please visit https://checkrare.com/learning-center/courses/

    Rare Discussions is produced by CheckRare, the leading multimedia platform dedicated to advancing education, awareness, and innovation across the rare disease community.

    Explore additional physician interviews, podcasts, CME activities, and rare disease resources at CheckRare.com.

    Subscribe to the CheckRare Podcast Network for expert conversations, weekly news, accredited education, and the latest advances across the rare disease community.

    Part of the CheckRare Podcast Network: Trusted conversations, news, education, and expert insights across the rare disease community.


    19 min
  • Current and Emerging Treatments for Lysosomal Storage Diseases
    Please join Drs. Ozlem Goker-Alpan and Ari Zimran as they discuss the latest developments in the treatments for lysosomal storage diseases.

    Rare Discussions is produced by CheckRare, the leading multimedia platform dedicated to advancing education, awareness, and innovation across the rare disease community.

    Explore additional physician interviews, podcasts, CME activities, and rare disease resources at CheckRare.com.

    Subscribe to the CheckRare Podcast Network for expert conversations, weekly news, accredited education, and the latest advances across the rare disease community.

    Part of the CheckRare Podcast Network: Trusted conversations, news, education, and expert insights across the rare disease community.


    1 hr 8 min
  • Fabry Disease Research Highlights 2021
    Derralynn Hughes, MD, from the Royal Free London NHS Foundation Trust discusses the latest research about Fabry disease that was presented at WORLDSymposium 2021.

    To obtain CME credit, go to https://checkrare.com/learning-center/courses/

    Rare Discussions is produced by CheckRare, the leading multimedia platform dedicated to advancing education, awareness, and innovation across the rare disease community.

    Explore additional physician interviews, podcasts, CME activities, and rare disease resources at CheckRare.com.

    Subscribe to the CheckRare Podcast Network for expert conversations, weekly news, accredited education, and the latest advances across the rare disease community.

    Part of the CheckRare Podcast Network: Trusted conversations, news, education, and expert insights across the rare disease community.


    14 min
  • Prader-Willi Syndrome Overview
    Rudolf Baumgartner, MD, Chief Medical Officer and Head of Clinical Development at Saniona, gives an overview of Prader-Willi syndrome (PWS)

    Rare Discussions is produced by CheckRare, the leading multimedia platform dedicated to advancing education, awareness, and innovation across the rare disease community.

    Explore additional physician interviews, podcasts, CME activities, and rare disease resources at CheckRare.com.

    Subscribe to the CheckRare Podcast Network for expert conversations, weekly news, accredited education, and the latest advances across the rare disease community.

    Part of the CheckRare Podcast Network: Trusted conversations, news, education, and expert insights across the rare disease community.


    5 min
  • Investigational Drug Provides Improved Quality of Life for PNH Patients
    Cedric Francois, MD, PhD, Co-Founder & CEO of Apellis Pharmaceuticals, discusses the results of the PEGASUS study evaluating the efficacy and safety of pegcetacoplan in patients with paroxysmal nocturnal hemoglobinuria (PNH).

    Rare Discussions is produced by CheckRare, the leading multimedia platform dedicated to advancing education, awareness, and innovation across the rare disease community.

    Explore additional physician interviews, podcasts, CME activities, and rare disease resources at CheckRare.com.

    Subscribe to the CheckRare Podcast Network for expert conversations, weekly news, accredited education, and the latest advances across the rare disease community.

    Part of the CheckRare Podcast Network: Trusted conversations, news, education, and expert insights across the rare disease community.


    8 min
  • What is Paroxysmal Nocturnal Hemoglobinuria?
    Cedric Francois, MD, PhD, Co-Founder & CEO of Apellis Pharmaceuticals, gives an overview of paroxysmal nocturnal hemoglobinuria (PNH).

    Rare Discussions is produced by CheckRare, the leading multimedia platform dedicated to advancing education, awareness, and innovation across the rare disease community.

    Explore additional physician interviews, podcasts, CME activities, and rare disease resources at CheckRare.com.

    Subscribe to the CheckRare Podcast Network for expert conversations, weekly news, accredited education, and the latest advances across the rare disease community.

    Part of the CheckRare Podcast Network: Trusted conversations, news, education, and expert insights across the rare disease community.


    6 min

About Rare Discussions

From the publisher's feed

Conversations with the leaders advancing rare disease care.  

Rare Discussions is CheckRare's flagship interview podcast featuring conversations with leading physicians, researchers,…