Unpack and Play

Rare Disease with Heather: Charcot-Marie-Tooth Disease


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Jackie and Jessie are joined by Heather, a super mom to two boys. Her first son Camden started displaying signs of disease the day he was born. After almost two years of tests, P.T, and feeding tubes- Heather finally got the diagnosis of Charcot Marie Tooth Disease. Camden's mutation of this disease is ultra rare, and he is one of only three known cases in the world. 

Grab your coffees, and join us as we talk mom guilt, compassion,  advocating as a Mom, and Charcot Marie Tooth with Heather.

 

If you'd like to learn more about CMT or donate to trials, research, family support services, and Camp footprint- please go to https://www.cmtausa.org/

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Unpack and PlayBy Jackie and Jessie