Rare Kidney Source

On the latest episode of The Rare Kidney Source Podcast, patient Sloane and her mom, Lindsey, share how life changed after diagnosis and the everyday routines that helped them find a new normal. From medications and meals to school, appointments, and navigating the emotional ups and downs, they offer an honest look at what living with a rare kidney condition can feel like.

Psychologist Dr. Al Freedman joins the conversation to discuss the emotional side of chronic illness, sharing practical ways to cope with uncertainty, anxiety, and the challenges that don't always show up on a lab report.

Whether you're living with a rare kidney condition, caring for someone who is, or simply looking for reassurance that you're not alone, this episode is a reminder that life after diagnosis is built one day at a time.

For more information, visit rarekidneyandyou.com

The Rare Kidney Source Podcast is produced by Believe Limited and made possible by Biogen.

The following Biogen-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

A rare kidney disease diagnosis can leave you with more questions than answers.

In this episode of The Rare Kidney Source Podcast, nephrologist Dr. Sayna Norouzi joins patients Lindsey and Sloane to share practical advice for navigating the first weeks after a C3G or primary IC-MPGN diagnosis. From organizing biopsy reports and medical records to understanding test results, preparing for appointments, and weighing treatment options, they break down the steps that can help you feel more informed and confident.

Whether you're newly diagnosed or supporting someone who is, this conversation offers honest guidance, helpful takeaways, and reassurance that every question is worth asking.

For more information, visit rarekidneyandyou.com

The Rare Kidney Source Podcast is produced by Believe Limited and made possible by Biogen.

The following Biogen-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On this episode of the Rare Kidney Source podcast, Lilly, a person living with C3G, and Dr. Joshua Thurman highlight why early diagnosis, ongoing lab monitoring, and open communication between a patient and their care team are so important.

For more information, visit https://rarekidneyandyou.com/

The Rare Kidney Source Podcast is produced by Believe Limited and made possible by Biogen.

The following Biogen-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

Your labs aren't just numbers, they're trying to tell you something.

On this episode of the Rare Kidney Source podcast, Dr. Anthony Chang and Anne, a C3G patient, break down what matters, why trends matter more than a single result, and how to speak up when something doesn't add up.

For more information, visit rarekidneyandyou.com

The Rare Kidney Source Podcast is produced by Believe Limited and made possible by Biogen.

The following Biogen-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

From unexplained childhood symptoms to a life-changing diagnosis, this episode traces one patient's long road to understanding C3G, a rare complement-mediated kidney disease. Michelle Farley shares how years of dismissal, misdiagnosis, and crisis ultimately led to answers, a transplant, and a new era of targeted treatment. Dr. Carla Nester breaks down the science behind the "overactive alarm system" driving these conditions and explains how recent advances are transforming what was once considered untreatable. It's a story about persistence, partnership, and the power of finally being heard.

For more information, visit rarekidneyandyou.com

Transparency Statement: The Rare Kidney Source Podcast is produced by Believe Limited and made possible by Apellis Pharmaceuticals.

The following Apellis Pharmaceuticals-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.