Rare Living with Giusiana

By Giusiana

Rare Living with Giusiana explores the challenges, triumphs, and realities of life with rare diseases and chronic illnesses. Join host Giusiana as she sits down with inspiring guest speakers—patients,... more

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FAQs about Rare Living with Giusiana:

How many episodes does Rare Living with Giusiana have?

The podcast currently has 4 episodes available.

Rare Living with Giusiana episodes:

February 22, 2025 Pediatric Pain Programs with Exposing Pain Programs
Todays episode is a little different, joining us anonymously is the person behind Exposing Pain Programs. Exposing Pain Programs is dedicated to speaking our truth about harm done by pain rehab programs. #youdidntcureus
To find support for survivors, resources to make an informed decision, or to share your story, follow Exposing Pain Programs here

You can also follow Giusiana here
...more
49min
January 25, 2025 Fluoroquinolone Toxicity with Talia Smith
Some mic difficulties, but the show must go on.

Today I met with Talia to discuss her experience with floxxing, or fluoroquinolone toxicity.
Talia Smith is a wife and step-mother; she had a career that she loved, had an active/healthy lifestyle and was the primary caretaker of her husband, who is a disabled Veteran. In April 2021, she was disabled by 3 pills of a fluoroquinolone antibiotic, called Ciprofloxacin, and ended up on Hospice, weighing only 60 pounds. She fought her way off Hospice and onto Palliative care. Talia still requires 24/7 care for her survival, but has become an advocate for fluoroquinolone toxicity syndrome via her social media platforms, awareness campaigns, videos and interviews.
You can find Talia, sign the petition, and learn more about fluoroquinolone toxicity here
Rare Living with Giusiana explores the challenges, triumphs, and realities of life with rare diseases and chronic illness. Join host Giusiana as she sits down with inspiring guest speakers - patients, caregivers, advocates, and experts - to share heartfelt stories, insights, and resources. Together, they navigate the complexities of living rare, building understanding, and fostering community.On todays solo episode, we dive into a not-so-fun side of life with chronic illness, and how the lack of autonomy over your own body and the feeling of being less than human can impact our mental wellbeing.
Episodes will be released monthly, with some bonus episodes along the way. We can't wait to have you walk alongside us and learn to Live Rare. You can find Giusiana on Instagram and TikTok ⁠here
...more
32min
January 06, 2025 Lack of Autonomy in Chronic Illness
Rare Living with Giusiana explores the challenges, triumphs, and realities of life with rare diseases and chronic illness. Join host Giusiana as she sits down with inspiring guest speakers - patients, caregivers, advocates, and experts - to share heartfelt stories, insights, and resources. Together, they navigate the complexities of living rare, building understanding, and fostering community.
On todays solo episode, we dive into a not-so-fun side of life with chronic illness, and how the lack of autonomy over your own body and the feeling of being less than human can impact our mental wellbeing.
Episodes will be released monthly, with some bonus episodes along the way. We can't wait to have you walk alongside us and learn to Live Rare.
You can find Giusiana on Instagram and TikTok here

...more
19min
December 17, 2024 Rare Living: Introduction
Rare Living with Giusiana explores the challenges, triumphs, and realities of life with rare diseases and chronic illnesses. Join host Giusiana as she sits down with inspiring guest speakers—patients, caregivers, advocates, and experts—to share heartfelt stories, insights, and resources. Together, they navigate the complexities of living rare, building understanding, and fostering community.

Episodes will be released monthly, with some bonus episodes along the way. We can’t wait to have you walk alongside us and learn to Live Rare.

You can find Giusiana on Instagram and TikTok here:
https://linktr.ee/giusianahttps://linktr.ee/giusiana

...more
1min

FAQs about Rare Living with Giusiana:

How many episodes does Rare Living with Giusiana have?

The podcast currently has 4 episodes available.