Rare Mind Talks

In today's episode, our guest Ronald Cornet, an expert in health informatics, explains why inconsistent data causes harmful delays in diagnosis and care. Can data standards unlock better solutions?

He shows how shared standards, like the FAIR principles, help researchers work together, speed up clinical trials, and improve treatment. We also discuss how collaboration across the ecosystem is essential. Patient advocates must be part of shaping how data is shared and used. Ronald closes with practical steps for hospitals, policymakers, and professionals.

This episode highlights a simple truth: better data leads to better outcomes. And in rare diseases, every step forward matters.

Rare Mind Talks Podcast explores how AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, this podcast aims to simplify complex topics, inspire research, and connect experts to improve lives.

Learn more at https://www.theraremind.com or

In this episode, our guest Pedro Gouveia explores how AI and data are not just advancing oncology and rare disease care, but also challenging us to ask: "Can AI make healthcare more human?"

We examine both the promise on personalised diagnostics, drug repurposing, connected care, and the roadblocks, including weak data governance and fragmented systems. Pedro shares practical, real-world insights while calling attention to where the sector must catch up. At the heart of it all is a recurring theme: for AI to truly transform healthcare, it must strengthen trust, empathy, and the human connection.

Rare Mind Talks podcast explores how AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, this Podcast aims to simplify complex topics, inspire research, and connect experts to improve lives.

Learn more at https://www.theraremind.com or

In this inaugural episode of the Rare Mind Talks Podcast, we discuss the power of AI and data to transform the landscape of rare diseases. Our guest, José Videira, Chief Digital and Information Officer at Solvias, shares thoughtful insights into how these technologies can accelerate diagnosis and treatment, but also reminds us to pause and ask, “What are we forgetting?”

José highlights that while the promise of AI is immense, much of its potential remains untapped. He stresses the importance of prioritising direction over perfection and explains why clearly defining the problem is often half the solution. We also explore the value of moving quickly with pilots, integrating regulation along the way rather than letting it halt innovation from the outset. José offers a compelling take on why smaller biotech firms often take the lead in rare disease innovation and warns that without a focus on outcomes, even the most exciting developments can become background noise.

Rare Mind Talks podcast explores how AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, this Podcast aims to simplify complex topics, inspire research, and connect experts to improve lives.

Listen to the podcast on Apple Podcasts, Spotify, or any other podcast app.

Learn more at https://www.theraremind.com

"Rare Mind Talks" podcast explores how AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, it aims to simplify complex topics, inspire research, and connect experts to improve lives. 

Learn more at ⁠https://www.theraremind.com⁠ or

Follow us on instagram ⁠@theraremindtalks