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Rare Perspectives
Rare Perspectives episodes
- Rare Perspectives Ep 15: Broadway Actor Matthew Farcher Shares His Rare Disease StorySince 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!On this episode, meet Broadway actor Matthew Farcher (Pretty Woman Broadway Production, Beauty and the Beast National Tour) as he shares his rare perspective on living life with rare disease and how his diagnosis story has informed his life and career. During our conversation, Matthew shares with us about how he learned of his rare disease, his acting career, baseball, and the power of family. This is part one of a two part series with Matt.We hope you enjoy our conversation.Please share this with your family, friends, and network. We invite you to write a comment and give us a rating. In doing so, you’ll help us reach more people and together raise our voice.Stay Connected with PSI!Facebook: www.facebook.com/PSI4Patients/Twitter: twitter.com/PSI4PatientsLinkedIn: linkedin.com/company/patient-services-incInstagram: instagram.com/psi4patiuentsAre you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org29 min
- Rare Perspectives EP 14: Part Two in Our Conversation with Hemophilia B Patient Jordan MartinSince 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!On this episode, we continue our conversation with 32 year old fitness coach Jordan Martin. At the age of 9, Jordan was diagnosed with Hemophilia B.Please share this with your family, friends, and network. We invite you to write a comment and give us a rating. In doing so, you’ll help us reach more people and together raise our voice.Stay Connected with PSI!Facebook: www.facebook.com/PSI4Patients/Twitter: twitter.com/PSI4PatientsLinkedIn: linkedin.com/company/patient-services-incInstagram: instagram.com/psi4patiuentsAre you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org26 min
- Rare Perspectives EP 13: Jordan Martin Talks About Conquering Life With Hemophilia B (Part 1 of 2)Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!On this episode, meet 32 year old fitness coach Jordan Martin. At the age of 9, Jordan was diagnosed with Hemophilia B. This is part one of a two part conversation we recently had with Jordan.Please share this with your family, friends, and network. We invite you to write a comment and give us a rating. In doing so, you’ll help us reach more people and together raise our voice.Stay Connected with PSI!Facebook: www.facebook.com/PSI4Patients/Twitter: twitter.com/PSI4PatientsLinkedIn: linkedin.com/company/patient-services-incInstagram: instagram.com/psi4patiuentsAre you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org42 min
- Rare Perspectives EP:12 - Jamie Koll Shares Her Rare Disease StorySince 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!On this episode, meet Jamie Koll. In this episode you will be inspired by Jamie as she shares her rare perspective on living life with rare disease as well as that knowledge is power, the importance of connecting with others, finding your support system, and that you’re not in this alone.We hope you enjoy our conversation.Please share this with your family, friends, and network. We invite you to write a comment and give us a rating. In doing so, you’ll help us reach more people and together raise our voice.Stay Connected with PSI!Facebook: www.facebook.com/PSI4Patients/Twitter: twitter.com/PSI4PatientsLinkedIn: linkedin.com/company/patient-services-incInstagram: instagram.com/psi4patiuentsAre you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org28 min
- Rare Perspectives Ep 11: PSI Patient Caregiver, Daughter, and AdvocateSince 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!On this episode, meet our dear friend, Stephanie Fierman, PSI patient caregiver, daughter, and advocate.Stay Connected with PSI!Facebook: www.facebook.com/PSI4Patients/Twitter: twitter.com/PSI4PatientsLinkedIn: linkedin.com/company/patient-services-incAre you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org20 min
- Rare Perspectives EP 10: Mike Herbert, PSI General ManagerSince 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.This inspired our new podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!On this episode of Rare Perspectives, we continue with our series of podcasts to discuss the false perceptions of non-profit patient assistance charities.Today, we catch up with PSI General Manager, Mike Herbert. Mike brings to us a unique perspective as to how non-profit patient assistance charities operate. Having been with PSI for 15 years, Mike shares how his first role in answering phones and talking with rare disease patients every single day has informed his various roles over the years.We also discuss some of these myths that are out there in regards to non-profit patient assistance charities. We hope you enjoy this episode of Rare Perspectives.We invite you to share our podcast with your friends, family, and network. We invite you to also write a review and tell us what you think. We would love to hear from you.Stay Connected with PSI!Facebook: www.facebook.com/PSI4Patients/Twitter: twitter.com/PSI4PatientsLinkedIn: linkedin.com/company/patient-services-incAre you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org28 min
- Rare Perspectives Ep 9: Amee Ireland, PSI Patient and AdvocateSince 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.This inspired podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!On this episode, meet our dear friend, Amee Ireland, PSI patient and advocate.Stay Connected with PSI!Facebook: www.facebook.com/PSI4Patients/Twitter: twitter.com/PSI4PatientsLinkedIn: linkedin.com/company/patient-services-incAre you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org32 min
- Rare Perspectives Ep 8: Tiara Green, Director of Operations for PSISince 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.This inspired our new podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!On this episode of Rare Perspectives, we continue with our series of podcasts to discuss the false perceptions of non-profit patient assistance charities. We recently caught up by phone with PSI’s Director of Operations, Tiara Green. Tiara offers a unique perspective to our conversation as she and her team speak with patients every single day. They understand first-hand just how crucial patient assistance charities are. We hope you enjoy this episode of Rare Perspectives.We invite you to share our podcast with your friends, family, and network. We invite you to also write a review and tell us what you think. We would love to hear from you.Stay Connected with PSI!Facebook: www.facebook.com/PSI4Patients/Twitter: twitter.com/PSI4PatientsLinkedIn: linkedin.com/company/patient-services-incAre you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org18 min
- Rare Perspectives Ep 7: Jim Romano, Director of Government Relations for PSISince 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.This inspired our new podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!On this episode of Rare Perspectives, we continue with our series of podcasts to discuss the false perceptions of non-profit patient assistance charities. We recently caught up by phone with PSI’s Director of Government Relations, Jim Romano. Jim has been with Patient Services Incorporated for 15 years and offers us some unique insight into this discussion as it relates to our continued efforts on capitol hill. We hope you enjoy this episode of Rare Perspectives.We invite you to share our podcast with your friends, family, and network. We invite you to also write a review and tell us what you think. We would love to hear from you.Stay Connected with PSI!Facebook: www.facebook.com/PSI4Patients/Twitter: twitter.com/PSI4PatientsLinkedIn: linkedin.com/company/patient-services-incAre you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org41 min
- Rare Perspectives Ep 6: CEO of PSI, Art WoodSince 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.This inspired our new podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!On this episode of Rare Perspectives, we are launching a series of podcasts to discuss the false perceptions of non-profit patient assistance charities. And, to best set up this series, I want to read to you from a recent op-ed that was penned by Patient Services Incorporated’s CEO, Art Wood. In this Op-Ed, Art begins with,“As American families continue to struggle to afford their health care, Congress has rightly begun to consider a broad range of policy proposals to help ease the financial burden on patients. From attempts to regulate drug prices to payer business practices to hospital billing, members of Congress from both sides of the aisle have offered a myriad of potential solutions to the rising cost of care. However, as Congress grapples with rising health costs, policymakers should ensure that they do not do anything to jeopardize non-profit patient assistance, a critical lifeline that helps thousands of patients afford their care.Non-profit charitable assistance programs provide temporary support for patients and their families by helping them afford their health insurance premiums, out-of-pocket costs, or other costs associated with care, such as travel, nursing or infusion costs. As health insurance premiums and patient cost-sharing burdens have increased, the cost of simply maintaining health insurance coverage has become prohibitive for many Americans. This is particularly true for those living with a rare disease or managing a chronic condition, including HIV/AIDS, cancer, diabetes, hemophilia, pulmonary hypertension, arthritis, and others. While most uninsured patients qualify for manufacturer free-product programs, non-profit patient assistance programs were designed to help the underinsured afford their premiums or copays and prevent them from becoming uninsured.”So, why are non-profit patient assistance charities being scrutinized? On this mini-series of Rare Perspectives episodes, we’ll talk to leading advocates in this discussion in order to help set the record straight as we go beyond the hashtag “Let Charities Be Charitable” and to the heart of the issue.On this episode, we speak with the CEO of Patient Services Incorporated, Art Wood, about the state of patient assistance charities, some of the myths being projected, and the impact PSI is making within the rare disease community.Stay Connected with PSI!Facebook: www.facebook.com/PSI4Patients/Twitter: twitter.com/PSI4PatientsLinkedIn: linkedin.com/company/patient-services-incAre you or someone you know living with a chronic illness and in need of financial assistance? Visit www.patientservicesinc.org20 min
About Rare Perspectives
From the publisher's feed
Since 1989, Patient Services Incorporated has restored hope and health to chronic and rare disease patients. We truly admire the many perspectives we come across in our line of work. This inspired our…
new podcast, Rare Perspectives, where we go beyond the diagnosis and explore the heart of the experience. Our goal is to shed light on the paths that patients walk and highlight different perspectives. We hope their stories help to educate you about chronic illness.