Since 1989, Patient Services Incorporated has restored hope and health to rare disease patients. We truly admire the many perspectives we come across in our line of work.
This inspired our new podcast, Rare Perspectives, where we go beyond the diagnosis, and explore the heart of the experience!
On this episode of Rare Perspectives, we are launching a series of podcasts to discuss the false perceptions of non-profit patient assistance charities. And, to best set up this series, I want to read to you from a recent op-ed that was penned by Patient Services Incorporated’s CEO, Art Wood. In this Op-Ed, Art begins with,
“As American families continue to struggle to afford their health care, Congress has rightly begun to consider a broad range of policy proposals to help ease the financial burden on patients. From attempts to regulate drug prices to payer business practices to hospital billing, members of Congress from both sides of the aisle have offered a myriad of potential solutions to the rising cost of care. However, as Congress grapples with rising health costs, policymakers should ensure that they do not do anything to jeopardize non-profit patient assistance, a critical lifeline that helps thousands of patients afford their care.
Non-profit charitable assistance programs provide temporary support for patients and their families by helping them afford their health insurance premiums, out-of-pocket costs, or other costs associated with care, such as travel, nursing or infusion costs. As health insurance premiums and patient cost-sharing burdens have increased, the cost of simply maintaining health insurance coverage has become prohibitive for many Americans. This is particularly true for those living with a rare disease or managing a chronic condition, including HIV/AIDS, cancer, diabetes, hemophilia, pulmonary hypertension, arthritis, and others. While most uninsured patients qualify for manufacturer free-product programs, non-profit patient assistance programs were designed to help the underinsured afford their premiums or copays and prevent them from becoming uninsured.”
So, why are non-profit patient assistance charities being scrutinized? On this mini-series of Rare Perspectives episodes, we’ll talk to leading advocates in this discussion in order to help set the record straight as we go beyond the hashtag “Let Charities Be Charitable” and to the heart of the issue.
On this episode, we speak with the CEO of Patient Services Incorporated, Art Wood, about the state of patient assistance charities, some of the myths being projected, and the impact PSI is making within the rare disease community.
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