In this episode of Rarely Typical, host Gerry dives into the heartbreaking realities of the American healthcare system for chronically ill patients. She shares her personal experiences with both poor and exceptional medical care, highlighting the shocking disparities that exist. Gerry discusses the financial burdens, startling statistics about healthcare costs, and the exhausting fight many patients face to receive proper treatment. She emphasizes the importance of advocacy, self-advocacy, and pushing for a healthcare system where compassionate, comprehensive care should be the standard—not a specialty. Tune in for an honest, eye-opening conversation about why the system needs to change and how you can be part of that change.
Get involved by sharing your story
NORD Rare:
https://rarediseases.org/share-your-story/
NIH.gov:
https://www.nih.gov/about-nih/who-we-are/share-our-stories
Chronic Disease Coalition:
https://chronicdiseasecoalition.org/take-action/share-your-story
Pulmonary Hypertension Association:
https://phassociation.org/get-involved/share-your-story/
Disclaimer: Rarely Typical is based on my personal experiences and is not intended to be medical advice. Always consult with a qualified healthcare professional for any medical concerns or decisions.
Rarely Typical is a reader-supported publication. To receive new posts and support my work, consider becoming a free or paid subscriber.
Get full access to Rarely Typical, by Gerry Langan at itsgerrylangan.substack.com/subscribe
