Real Life Diabetes

The DDG hit the road and headed to Kansas for the Live Well Diabetes EXPO. We had less than 24 hours to spread the DDG love to the people of Wichita. Along the way, we picked up a few stories from folks in the great plains area who are living the real life – diabetes style. In this episode we share our take aways and life philosophies from our time with SO many fellow PWDs and their families. 

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NOTES & LINKS:                                              

* The day has finally come – Amber shares her fears of her first CGM trial.

* Ryan is ready for the POD!

* Take Away = It’s not about cutting things out, but replacing them or at least the mindset.

You never know when you’ll run into someone who shares a similar life philosophy, but after a chance meeting in college, Mark Carter resurfaces on Okie soil. He’s real and doesn’t hold back about his love of Equal and Chik-Fil-A. In this episode, our longest one yet, he shares his journey of being an ambassador for people […]

You never know when you’ll run into someone who shares a similar life philosophy, but after a chance meeting in college, Mark Carter resurfaces on Okie soil. He’s real and doesn’t hold back about his love of Equal and Chik-Fil-A. In this episode, our longest one yet, he shares his journey of being an ambassador for people with diabetes who don’t have a voice. If you’re brave enough to listen to the whole thing, we hope you’ll leave with the thought – is diabetes a blessing or a curse?

ANNOUNCEMENTS:Do you or someone you know have diabetes? Would you like to share your story? We want to hear how you’ve lived your real life with the disease! Scope out what we look for in a guest post HERE!Amazon is kind enough to throw a little change our way whenever you click on this banner before shopping for all of your Halloween purchases.Like, click or comment on what we’re up to via our social media streams.Facebook

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InstagramSHOW NOTES:How many people are alone? He’s an incredible advocate to making sure that folks know that the diabetes community is so important.

Two kinds of people:The ones who won’t eat it.

I bet I could take a decent guess.The burden the parents of T1Ds is real.Check out Podcast 31 with T1D parent, Clayton McCook. He does a killer job of sharing his families story.Charleston is a BIG part of the Carter’s life, but he didn’t make the diabetes alert dog cut.The motto in the medical community when diagnosed is you can’t eat X items. The message is a negative one and could be changed to something like – People with diabetes can eat whatever they choose and do their best to determine how and what foods fluctuate their blood sugar.An empowered choice!

Words are powerful, especially when treating the community.In 2010, Mark had a turning point when he met Dr. Moss because he took the time to hear his story.

Dr. Moss take aways:The head, the heart, and the hands.

Diabetes is a memory disease, it remembers what you do

Diabetes doesn’t have to dictate his life.PDM (personal diabetes manager)

Low BGs vs. Panic AttackCheck out a post Amber wrote, Low BG vs. Hallucinating, Is There Really A Difference?Update your health information on your phone

Mark attended his first diabetes camp, Camp EndresTake away – PWD need someone to talk to

Do you see it as a blessing or as a curse?.Mark has to consider whether or not to use Trialnet.com, which is using knowledge gained through clinical research, TrialNet’s mission is to prevent type 1 diabetes and stop disease progression by preserving insulin production before and after diagnosis.

Can mangos lower your blood sugar? Check out this article by the Oklahoma State University.

The language of “artificial pancreas”. Is there a play on words…?

Mark truly is an ambassador for PWD. In this photo, the family sheds tears when he explains how the Omnipod works.PROOF WE HAVE SWAG:You can score one of these killer tees by leaving us an iTunes review.

The post How To Live Every Day With Adventure | Mark Carter, T1D | Real Life Diabetes Podcast 32 appeared first on Diabetes Daily Grind | Real Life Diabetes Podcast.

The post How To Live Every Day With Adventure | Mark Carter, T1D | Real Life Diabetes Podcast 32 appeared first on Diabetes Daily Grind | Real Life Diabetes Podcast.

At the JDRF Summit last January in Oklahoma City, we struck up a conversation with the father of Lily, an adorable, youngster who lives with T1D. She had on this awesome-looking watch with her blood sugar. So did her Dad. We had to explore further. In this episode, Clayton shares his family’s philosophies on parenting and empowering the T1D life. While […]

At the JDRF Summit last January in Oklahoma City, we struck up a conversation with the father of Lily, an adorable, youngster who lives with T1D. She had on this awesome-looking watch with her blood sugar. So did her Dad. We had to explore further. In this episode, Clayton shares his family’s philosophies on parenting and empowering the T1D life. While not a “techie guy”, he managed to discover and use Night Scout… while continuing to develop an artificial pancreas in his basement. There’s some wisdom in this one folks.ANNOUNCEMENTS:Do you or someone you know have diabetes? Would you like to share your story? We want to hear how you’ve lived your real life with the disease! Scope out what we look for in a guest post HERE!Amazon is kind enough to throw a little change our way whenever you click on this banner before shopping for all of your Halloween purchases.PROOF WE HAVE SWAG:You can score one of these killer tees by leaving us an iTunes review.

Like, click or comment on what we’re up to via our social media streams.Facebook

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InstagramSHOW NOTES:JDRF One Walk Oklahoma City

American Diabetes Association

JDRF One Summit in OKC

Dr. Domek and Sharon Domek of Diabetes Solutions of Oklahoma

Picture of Tester (aka the Bone Pricker)

Lily first pump was a Medtronic

Originally started with the InLite CGM, but switched to Dexcom

Night Scoutopenaps.org

#wearenotwaiting

We LOVE the model for Night Scout = “pay it forward”

John Costik – Godfather of Night ScoutShout out to Kelly McKeever, PWD, RN & CDEPodcast 12: The Diabetes Naughty Or Nice List

Podcast 7: Person First Language, Low Carb vs. High Carb Diets, Skinny Pants Syndrome and How Close Is the Closed Loop?Pebble WatchDana Lewis and Scott Leibrand – artificial pancreas

Raspberry Pie via the Care Link Stick

TrialNetClayton’s words of advice for parents whose child is recently diagnosed:You’re going to be okay. You’re going to get this.

Breath deep and just take it one step at a time.Clayton shares his encouraging philosophy when Lily was younger – It’s a good number because you checked it.Cheers to the highs and lows everyone!The post A Non-Techie Father Finds NightScout | Clayton McCook on T1D Parenting Empowerment | Real Life Diabetes Podcast 31 appeared first on Diabetes Daily Grind | Real Life Diabetes Podcast.

The post A Non-Techie Father Finds NightScout | Clayton McCook on T1D Parenting Empowerment | Real Life Diabetes Podcast 31 appeared first on Diabetes Daily Grind | Real Life Diabetes Podcast.

Amber loves to travel so she hit the road and ventured to Texas (one state away from our OKC home). What better way to meet fellow PWDs than traveling the southwestern countryside? Before heading out she contacted the American Diabetes Association to see if anyone in their part of town had a story to share. They totally hooked her up […]

Amber loves to travel so she hit the road and ventured to Texas (one state away from our OKC home). What better way to meet fellow PWDs than traveling the southwestern countryside? Before heading out she contacted the American Diabetes Association to see if anyone in their part of town had a story to share. They totally hooked her up with Deirdre Murphy, a lovely woman who went from an original Type 2 diagnosis to eventually being re-diagnosed with Type 1. In the 30th show, Deirdre shares her 12+ year journey and reflects on living life with T2D… and now T1D, eventually coming to a place of relief at the type 1 prognosis (a rare event).

ANNOUNCEMENTS:

Do you or someone you know have diabetes? Would you like to share your story? We want to hear how you’ve lived your real life with the disease! Scope out what we look for in a guest blog HERE!

Amazon is kind enough to throw a little change our way whenever you click on this banner before shopping for all of your fall wardrobe purchases.

PROOF WE HAVE SWAG:

You can score one of these killer tees by leaving us an iTunes review. (We swear this is not an elaborate photoshopping effort)

SHOW NOTES:

Feel free to stalk us on Facebook, Twitter or Instagram.

Take a listen to the full DDG theme song by Mike Hosty, HERE.

You have to be your own advocate because a lot of physicians unfortunately don’t have the knowledge to diagnosis someone with diabetes and/or properly treat you.

Find an Endocrinologist

Novo Nordisk

Cornerstones4Care

ADA

Eli Lilly and Company

Moms – LET IT GO!

Methodist Hospital in San Antonio

Their message was kind and clear – It’s not a death sentence.

After a year of giving injections, Deirdre chose to use the Animas® Vibe® system and Dexcom G4 Sensor

Deirdre’s cute wristlet carries all of her supplies. 

We LOVE Deirdre’s Life Philosophy: I chose to continue living my life instead of seeing my diagnosis as a death sentence. So my feeling is that I am not a diabetic, but rather a person living with diabetes.

Finding the right endocrinologist is key. Amber shares her recent mishap in, Back To The Drawing Board With A New Endocrinologist. 

Deirdre’s Words of Advice

See an Endo.

It’s not a death sentence

No shame

BTW: One of my diabetes culinary partners in crime resides in S.A. is coughing in the background.

A special thanks to the OKC and San Antonio American Diabetes Association Chapters for helping us score this podcast.

The post From T2D to T1D – The Re-Diagnosis Saga | Deirdre Murphy | Real Life Diabetes Podcast 30 appeared first on Diabetes Daily Grind | Real Life Diabetes Podcast.

The post From T2D to T1D – The Re-Diagnosis Saga | Deirdre Murphy | Real Life Diabetes Podcast 30 appeared first on Diabetes Daily Grind | Real Life Diabetes Podcast.

One can only talk oneself for so long, right? Wrong, Amber and Ryan dedicated an entire show to each other (we thought they talked plenty already about themselves in ordinary episodes). In conversation a week prior, they realized much of life had passed by since they had a good sit-down chat. It was time t0 […]

Yes, behind Amber’s face is Kelly McKeever (in RLD 28) cropped out. We move on to the next episode quickly.

One can only talk oneself for so long, right? Wrong, Amber and Ryan dedicated an entire show to each other (we thought they talked plenty already about themselves in ordinary episodes). In conversation a week prior, they realized much of life had passed by since they had a good sit-down chat. It was time t0 “catch-up” on life, diabetes, and pick-up strategies (Ryan heads to the trail and Amber heads to Whole Foods). Amber elaborates on a DDG post about her recent extraordinarily ignorant endocrinologist visit, while Ryan updates on his new, old-school approach to diabetes management.

ANNOUNCEMENTS:

Do you or someone you know have diabetes? Would you like to share your story? We want to hear how you’ve lived your real life with the disease! Scope out what we look for in a guest blog HERE!

Amazon is kind enough to throw a little change our way whenever you click on this banner before shopping for all of your fall wardrobe purchases.

SHOW NOTES:

Amber’s recap, and entertaining version, of her trip to the Endo. 

Yes, we know. 

How to tell your Congress rep to lower insulin prices in this petition.

Feel free to stalk us on twitter or IG @diabetesgrind

Take a listen to the full DDG theme song, by Mike Hosty, HERE.

Cheers to the highs and lows everyone. 

The post The Catching-Up Show: Who Are You Again? | Amber and Ryan | Real Life Diabetes Podcast 29 appeared first on Diabetes Daily Grind | Real Life Diabetes Podcast.

The post The Catching-Up Show: Who Are You Again? | Amber and Ryan | Real Life Diabetes Podcast 29 appeared first on Diabetes Daily Grind | Real Life Diabetes Podcast.

Amber and Ryan sweet talked past guest, fellow T1D, and long-time diabetes camp enthusiast, Kelly McKeever, into joining a summer edition of the show. Kelly’s had 13+ years at camp and shares what keeps him coming back, now in a medical personnel role. In this episode they catch up on life with diabetes, cutting edge developments in […]