Real Talk with Melody

Episode 7 of Real talk with @chronicfilm and @butyoudontlooksickofficial 

In this episode I talk with the director(Milly) and writer (Charlotte) of the film Chronic. Chronic is a short film that follows the story of a young couple, Sadie and Rob, who move in together but Sadie’s chronic illness complicates their plans and begins to govern their relationship.  We discuss the vulnerability that comes with sharing your story and what the inspiration was for this short film. We discuss how crucial it is to have members of the chronic illness community involved with films when it’s about having a disability and some of the shortcomings that other films have while not including the chronic illness perspective. 

About our guests: 

Charlotte is the writer of the short film Chronic. Charlotte has a handful of conditions that she wasn’t diagnosed with until after 6 1/2 years of being undiagnosed. She knows the struggles of having an invisible condition without a name all too well. Milly is the director of the film Chronic and has had CFS/ME since childhood. You can follow both of them @chronicfilm 

About The Host: 

Melody is a social media influencer and founder of the nonprofit "But You Don't Look Sick." After battling a rare neurological disorder for over 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com

Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.

Episode 6 of Real Talk with @butyoudontlooksickofficial and @itsbellawhit 

In this weeks episode I talk with Bella about having a chronic illness and the realities we've had to face at a young age. We talk about how being disabled makes you appreciate the fragility of life on a daily basis and how we feel like a walking reality check to abled bodied people.  

About our guest: 

Bella is a social media influencer who focuses on raising awareness on EDS and the hassle of being undiagnosed after taking years to be diagnosed herself. Bella has a Tik Tok following of over 40,000 while talking about the realities of disability. You can follow her on youtube, Tik Tok and instagram @itsbellawhit 

About the Host: 

Melody is a social media influencer and founder of the non-profit "But You Don't Look Sick." After battling a rare neurological disorder for 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. You can follow Melody on instagram @butyoudontlooksickofficial or visit our website at www.butudontlooksick.com

Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.

Episode 5 of Real talk with @positivelychronictravels and @butyoudontlooksickofficial 

In this episode we share our tips and resources for traveling while having a chronic illness.  When Katya was first diagnosed, she realized there weren't resources readily available to talk about the adjustments you need while traveling with a condition. Because of this Katya decided to create a platform called Positively Chronic Travels, which she created to answer some of the questions she had regarding traveling and having a condition.  We talk about our tips and tricks along with what struggles you can expect while traveling.  

About our guest: 

Katya is a social media influencer who focuses on sharing the realities of traveling with an illness. You can follow her on instagram, Tik Tok and YouTube @positivelychronictravels or you can visit her website https://www.positivelychronictravels.com/ 

About The Host: 

Melody is a social media influencer and founder of the nonprofit "But You Don't Look Sick." After battling a rare neurological disorder for over 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com

Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.

Episode 4 of Real talk with @jakemayerscoaching and @butyoudontlooksickofficial 

In this episode we talk about mindset while having a chronic illness and how important mindfulness is.  We talk about Jakes story with chronic lyme disease and how this eventually led him in the direction of becoming a transformational coach and founding his own company, JMC. We discuss our journies of being undiagnosed and how we developed a confidence to advocate for ourselves and others.  

About our guest: 

Jake is a transformational coach who has also had chronic lyme disease for over 13 years. Jake decided to start up JMC after having a chronic condition for years and realizing that just because you're suffering doesn't mean you can't enjoy life. Jake helps chronic illness patients take back control of their lives and develop action plans to stay in control. You can follow Jake on instagram @jakemayerscoaching  

About The Host: 

Melody is a social media influencer and founder of the nonprofit "But You Don't Look Sick." After battling a rare neurological disorder for over 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com

Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.

Episode 2 of Real Talk with @iamstamm in New York City (You'll randomly hear the sound of the city and sirens) and @butyoudontlooksickofficial

In this episode I talk with Julie about the book she published titled "Some Days We" 

This childrens book shows the perspective of a young boy named Wyatt and how he views his superhero mom with a chronic illness. 

Julie and I discuss the stigma behind being a parent with a chronic illness and how to have hard conversations with young children regarding chronic illness. We give our insight of how important it is to change the narrative regarding chronic illness and why doctors opinions aren't always worth listening to. 

About our guest:

Julie is an MS advocate who published a book titled "Some Days We" This book can currently be found on Amazon or at Barnes and Noble, and will soon be available internationally in different languages. Julie wanted to use her personal experience to give the story behind chronic illness a different narrative. Generally, chronic illness is talked about in a sad and depressing way. Julie wanted to write a book with a different perspective. One through the eyes of a young boy named Wyatt who views his mom as a superhero. You can follow Julie on instagram @iamstamm

About The Host:

Melody is a social media influencer and founder of the nonprofit "But You Don't Look Sick." After battling a rare neurological disorder for over 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients.

You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com

Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.

Episode 1 of Real talk with @itsgigirobinson and @butyoudontlooksickofficial

In this episode we talk about all things living with chronic illness and what the rollercoaster of navigating life is like!

We talk about dealing with haters, relationships, losing friends and how we both found our own ways of healing through art.

We discuss our journies of University and how we handled ableist professors. 

About our guest: 

Gigi is a social media influencer with a Tik Tok following of over 100,000. She is a chronic illness and body positivity advocate who shows the realities of life. You can follow her on both instagram and Tik Tok @itsgigirobinson

About The Host:

Melody is a social media influencer and founder of the nonprofit "But You Don't Look Sick." After battling a rare neurological disorder for over 6 years, she decided to show the realities of what it's like to live with an invisible illness and advocate for the better treatment of patients. 

You can follow Melody on instagram @butyoudontlooksickofficial or visit our website www.butudontlooksick.com

Disclaimer: The views and opinions expressed on this website are solely those of the original authors and contributors. These views and opinions do not necessarily represent those of "But You Don't Look Sick." the staff, or other contributors. The material and information contained on this website is for general information purposes only. You should not rely on information on this website as a basis for making decisions. Consult with your doctor before making any changes to your current medical routine.