The latest e-Newsletter from Retina UK.

Please consider donating to Retina UK through a monhtly or quartely direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit https://retinauk.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821442

Join us for our next webinar which is an exploration of a community members experiences of genetic testing with input from a genetic counsellor.

If you would like more information on genetic testing, you can head to our website where you will find guidance on how genetic testing may help you and your family discover more about your inherited sight loss condition and how to unlock choices. The page can be found here: https://retinauk.org.uk/genetics/

If you would also like to watch Rob's video, that can be found here: https://retinauk.org.uk/genetics/genetic-testing/

Join Lauren as she chats with Paula McGrath, Deputy CEO of Retina UK, about the 2025 Sight Loss Survey - why it matters, how your voice can drive real change, and how you can take part.

Every three years, we carry out this survey to ensure our work continues to meet the needs of our community. Your voice matters, and we need your input to shape the future of our services, campaigns, and advocacy efforts for those living with inherited sight loss. 

The survey should take approximately 40 minutes. You can either complete it online by visiting RetinaUK.org.uk/survey, or call our office on 01280 821334 to book an appointment with a member of our team to complete the survey on your behalf over the telephone. The deadline for completed surveys is Friday 25 April 2025.

If you have any questions, please email [email protected].

This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2025 (Issue 185). You can download a copy in PDF and Word format on the Retina UK website: ⁠⁠⁠⁠RetinaUK.org.uk/resources⁠⁠⁠⁠.

Contents in this edition are as follows:

• Tell us about you – Tina Garvey
• You can influence positive change
• A golden opportunity for your workplace
• Marking 50 years of Retina UK
• Experimental therapy by Retina UK funded researchers leads to ‘life changing improvements’
• A passion for genetic engineering
• Dates for your diary
• With opportunity, support and determination, anything can happen
• Research round-up
• From bake sales to challenges – get involved in 2025!
• Finding a place to thrive
• Thank you
• Help us raise awareness and vital funds in 2025
• Paid Advertisement from: Seable Holidays for Blind and Partially sighted

The latest e-Newsletter from Retina UK.

Please consider donating to Retina UK through a monhtly or quartely direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit https://retinauk.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821442

At Retina UK, we believe that together, we can make a real difference in the lives of those affected by retinal conditions. That’s why we’re inviting you listen to our webinar, "Together We Can: Ways You Can Get Involved!" – your guide to exciting fundraising opportunities in 2025.

Whether you’re a seasoned fundraiser or new to supporting us, this webinar is packed with ideas and inspiration to help you get involved. From taking on iconic challenges like marathons and walks to hosting your own events, we’ll explore a variety of ways you can contribute to raising awareness and vital funds for research into inherited retinal diseases.

Listen to hear from members of our fundraising team, meet passionate supporters, and learn how you can make 2025 the year you take action and make a lasting impact.

In this podcast we talk to Dr Jasleen Jolly, Associate Professor at Jolly Vision Science and Honorary fellow at Melbourne University. We are also joined by Yvette Chivers, Helpline Coordinator at Retina UK, who is living with Retinitis Pigmentosa (RP) and experiences CBS.

Charles Bonnet Syndrome is phenomenon where some people with sight loss experience visual hallucinations. Tune in to find out more about CBS, Yvette's experience and the work that Dr Jasleen Jolly is doing.

We are joined today by Tina Garvey, Chief Executive Officer at Retina UK.

In this episode we reflect on the year 2024, taking a

We’re excited to announce that Mark Baxter, our Information and Support Coordinator, will be sharing his experience of his holiday to Las Vegas, where he attended the CES 2025! CES is the world’s leading tech event, showcasing the latest innovations that could transform the lives of people with vision impairments.

Hosted by Matthew Carr,  Mark will discuss the cutting-edge technologies he encounters at CES that have the potential to impact those with retinal conditions. From advancements in assistive devices to breakthroughs in accessibility, Mark will provide insight into how the tech world is evolving to support people with vision loss and how these innovations may help improve the lives of those affected by inherited retinal diseases.

The latest e-Newsletter from Retina UK.

Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving/ to sign up, or, if you prefer, call us on 01280 821334.