Akina Lindley shares her heartfelt journey of caring for her mother with glioblastoma, navigating end-of-life moments, and coping with grief. This episode offers insights into the emotional landscape of loved ones facing terminal illness and the importance of connection, compassion, and finding light in darkness.

Tumor Type: Glioblastoma
Caregiver of a Parent
Current Stage: In Memory

Connect with Akina Lindley
Facebook: https://www.facebook.com/akina.lindley/
Instagram: https://www.instagram.com/akina425/
LinkedIn: www.linkedin.com/in/akinalindley

Be a Guest
Interested in being a guest on a future episode? Visit rewired-minds.com/guest for more information and to submit your request.

Resources
Medical brain tumor terms: rewired-minds.com/terms
Brain tumor organizations: https://www.rewired-minds.com/braintumorresources

Connect with Rewired Minds
Website: rewired-minds.com
Facebook: https://www.facebook.com/RewiredMindsPod
Instagram: @rewiredmindspod
LinkedIn: https://www.linkedin.com/company/rewiredminds

Disclaimer
The stories shared here are personal accounts from the brain tumor community for informational and awareness purposes only and are not intended as medical advice. Always consult with qualified healthcare professionals regarding your specific situation. Most importantly, take care of yourself as you listen and process.

In this episode, Sarah Bare returns to share an update on her journey through brain tumor recurrence, treatment, and emotional resilience. Bri and Sarah discuss radical acceptance, managing identity, and finding strength within during challenging times.

Tumor Type: Astroblastoma
Symptoms: focal seizures
Patient
Current Stage: Recurrence

Connect with Sarah Bare
Facebook: Facebook.com/sarah.bare.21
TikTok: @bare2believe

Be a Guest
Interested in being a guest on a future episode? Visit rewired-minds.com/guest for more information and to submit your request.

Resources
Medical brain tumor terms: rewired-minds.com/terms
Brain tumor organizations: https://www.rewired-minds.com/braintumorresources

Connect with Rewired Minds
Website: rewired-minds.com
Facebook: https://www.facebook.com/RewiredMindsPod
Instagram: @rewiredmindspod
LinkedIn: https://www.linkedin.com/company/rewiredminds

Disclaimer
The stories shared here are personal accounts from the brain tumor community for informational and awareness purposes only and are not intended as medical advice. Always consult with qualified healthcare professionals regarding your specific situation. Most importantly, take care of yourself as you listen and process.

In this conversation, John Mehner shares his incredible journey of resilience and hope after being diagnosed with three skull-based benign meningiomas over 17 years. He discusses his life before the diagnosis, the initial symptoms that led to his discovery, and the emotional impact of receiving such life-altering news. John emphasizes the importance of support from family and friends, coping mechanisms that helped him through treatment, and the adjustments he has made in his life. He reflects on his mental resilience, the changes in his identity, and his current outlook on health and life. John's story is one of strength, determination, and the will to keep living despite the challenges he faces.

Tumor Type: Meningioma
Symptoms: Headache, Migraine
Treatment: Radiation therapy, surgery
Survivor
Current Stage: Wait and Watch
Recurrence

Resources
Most common medical terms relating to the brain tumor experience: rewired-minds.com/terms
Brain tumor organizations: https://www.rewired-minds.com/braintumorresources

Connect with Rewired Minds
Website: rewired-minds.com
Facebook: https://www.facebook.com/RewiredMindsPod
Instagram: @rewiredmindspod
LinkedIn: https://www.linkedin.com/company/rewiredminds

Connect with John Mehner
YouTube: youtube.com/@mybrokenbrain?si=e41mJagIJfmQ6_Gb
Instagram: https://www.instagram.com/fullofshitivity

Be a Guest
Interested in being a guest on a future episode? Visit rewired-minds.com/guest for more information and to submit your request.

Disclaimer
The stories shared here are personal accounts from the brain tumor community for informational and awareness purposes only and are not intended as medical advice. Always consult with qualified healthcare professionals regarding your specific situation. Most importantly, take care of yourself as you listen and process.

In this episode, Stacia Wagner from the Children's Brain Tumor Foundation shares the foundation's history, mission, and the comprehensive support programs they offer to pediatric brain tumor patients and their families. We explore the importance of long-term care, family support, and the innovative initiatives designed to improve quality of life and survival outcomes.

Resources
Most common medical terms relating to the brain tumor experience: rewired-minds.com/terms
Brain tumor organizations: https://www.rewired-minds.com/braintumorresources

Connect with Rewired Minds
Website: rewired-minds.com
Facebook: https://www.facebook.com/RewiredMindsPod
Instagram: @rewiredmindspod
LinkedIn: https://www.linkedin.com/company/rewiredminds

Connect with Children’s Brain Tumor Foundation
Website: https://cbtf.org/
Facebook: https://www.facebook.com/CBTF.org/
Instagram: https://www.facebook.com/CBTF.org/
TikTok: https://www.tiktok.com/@cbtf_org
LinkedIn: https://www.linkedin.com/company/cbtf/

Be a Guest
Interested in being a guest on a future episode? Visit rewired-minds.com/guest for more information and to submit your request.

Disclaimer
The stories shared here are personal accounts from the brain tumor community for informational and awareness purposes only and are not intended as medical advice. Always consult with qualified healthcare professionals regarding your specific situation. Most importantly, take care of yourself as you listen and process.

Cassie Sulfridge shares her inspiring journey from diagnosis of primary central nervous system lymphoma at age 28 to becoming a teacher and advocate. She discusses her medical journey, the importance of community, words, and hope in healing, and how her experience has transformed her perspective on life and purpose.

Tumor Type: Primary Central Nervous System Lymphoma
Symptoms: stroke, headaches, left side weakness
Treatment: Surgery, Chemotherapy, Stem Cell Transplant
Survivor
Current Stage: Survivorship
Recurrence

Resources
Most common medical terms relating to the brain tumor experience: rewired-minds.com/terms
Brain tumor organizations: https://www.rewired-minds.com/braintumorresources

Connect with Rewired Minds
Website: rewired-minds.com
Facebook: https://www.facebook.com/RewiredMindsPod
Instagram: @rewiredmindspod
LinkedIn: https://www.linkedin.com/company/rewiredminds

Connect with Cassie Sulfridge
Facebook Group: https://www.facebook.com/groups/789487114408409/?ref=share&mibextid=NSMWBT
Instagram: https://www.instagram.com/cassulfridge/
Email: [email protected]

Be a Guest
Interested in being a guest on a future episode? Visit rewired-minds.com/guest for more information and to submit your request.

Disclaimer
The stories shared here are personal accounts from the brain tumor community for informational and awareness purposes only and are not intended as medical advice. Always consult with qualified healthcare professionals regarding your specific situation. Most importantly, take care of yourself as you listen and process.

Lindsay Miller shares her inspiring journey through a brain tumor diagnosis, multiple surgeries, and her ongoing process of rebuilding her life. This conversation explores resilience, redefining identity, and finding new purpose after life-altering health challenges.

Tumor Type: Lhermitte-Duclos disease (LDD) or Dysplastic Cerebellar Gangliocytoma
Symptoms: forgetfulness, brain fog, dizziness, balance and coordination challenges
Treatment: Surgery
Survivor
Current Stage: Wait and Watch

Resources
Most common medical terms relating to the brain tumor experience: rewired-minds.com/terms
Brain tumor organizations: https://www.rewired-minds.com/braintumorresources

Connect with Rewired Minds
Website: rewired-minds.com
Facebook: https://www.facebook.com/RewiredMindsPod
Instagram: @rewiredmindspod
LinkedIn: https://www.linkedin.com/company/rewiredminds

Connect with Lindsay Miller
Facebook: https://www.facebook.com/lindsay.t.miller
Instagram: https://www.instagram.com/lindsaym313
YouTube: https://youtu.be/SesbWloCVMk?si=ZCZTfflp3Toz_QfB

Be a Guest
Interested in being a guest on a future episode? Visit rewired-minds.com/guest for more information and to submit your request.

Disclaimer
The stories shared here are personal accounts from the brain tumor community for informational and awareness purposes only and are not intended as medical advice. Always consult with qualified healthcare professionals regarding your specific situation. Most importantly, take care of yourself as you listen and process.

Matei Romancik shares his profound journey through a brain cancer diagnosis, treatment, and the transformative insights on life, meaning, and resilience that emerged from facing mortality.

Tumor Type: Astrocytoma
Tumor Grade: III
Symptoms: migraines, vomiting, blurry vision, loss of physical control
Treatment: surgery, radiation, chemotherapy
Patient
Current Stage: In Treatment

Resources
Check out a list of the most common medical terms relating to the brain tumor experience: rewired-minds.com/terms
Connect with brain tumor organizations here: https://www.rewired-minds.com/braintumorresources

Connect with Rewired Minds
Website: rewired-minds.com
Facebook: https://www.facebook.com/RewiredMindsPod
Instagram: @rewiredmindspod
LinkedIn: https://www.linkedin.com/company/rewiredminds

Connect with Matei Romancik
Facebook: https://www.facebook.com/share/1LPG3r2gRe/?mibextid=wwXIfr
Instagram: https://www.instagram.com/hexcellenthag?utm_source=qr
TikTok: https://www.tiktok.com/@hexcellenthag?_r=1&_t=ZP-96wXJO0QwaE

Be a Guest
Interested in being a guest on a future episode? Visit rewired-minds.com/guest for more information and to submit your request.

Disclaimer
The stories shared here are personal accounts from the brain tumor community for informational and awareness purposes only and are not intended as medical advice. Always consult with qualified healthcare professionals regarding your specific situation. Most importantly, take care of yourself as you listen and process.

Joyce McCann, diagnosed with a meningioma at 51, spent 20 years managing mysterious headaches before an MRI in December 2017 finally revealed the tumor wrapped around her optic nerve and artery. She shares the whirlwind from diagnosis to a 10 hour surgery, the loss of her partner a year later, and the seizures now bringing her back into a season of uncertainty. Through it all, Joyce holds onto faith, family, and a determination to keep living for her children, no matter what the next scan shows.

Tumor Type: Meningioma

Symptoms: headaches, seizures, deja vu

Treatment: surgery

Survivor

Current Stage: Wait and Watch

Recurrence

Resources

Check out a list of the most common medical terms relating to the brain tumor experience: rewired-minds.com/terms

Connect with brain tumor organizations here: https://www.rewired-minds.com/braintumorresources

Connect with Rewired Minds

Website: rewired-minds.com

Facebook: https://www.facebook.com/RewiredMindsPod

Instagram: @rewiredmindspod

LinkedIn: https://www.linkedin.com/company/rewiredminds

Connect with Joyce McCann

Facebook: https://www.facebook.com/joyce.mccann.10

Email: [email protected]

Be a Guest

Interested in being a guest on a future episode? Visit rewired-minds.com/guest for more information and to submit your request.

Disclaimer

The stories shared here are personal accounts from the brain tumor community for informational and awareness purposes only and are not intended as medical advice. Always consult with qualified healthcare professionals regarding your specific situation. Most importantly, take care of yourself as you listen and process.

In this inspiring interview, Colin Gerner shares the story of StacheStrong, a nonprofit born from his brother G.J.'s battle with glioblastoma. Discover how their journey from personal tragedy to impactful fundraising has funded over $7 million in brain cancer research and created a global community of support.

Tumor Type: Glioblastoma

Tumor Grade: Grade IV

Treatment: surgery, chemotherapy, radiation, recurrence

Current Stage: In Memory

Resources

Check out a list of the most common medical terms relating to the brain tumor experience: rewired-minds.com/terms

Connect with brain tumor organizations here: https://www.rewired-minds.com/braintumorresources

Connect with Rewired Minds

Website: rewired-minds.com

Facebook: https://www.facebook.com/RewiredMindsPod

Instagram: @rewiredmindspod

LinkedIn: https://www.linkedin.com/company/rewiredminds

Connect with StacheStrong

Website: https://stachestrong.org/

Facebook: Facebook.com/StacheStrong

Instagram: @StacheStrong

LinkedIn: https://www.linkedin.com/company/stachestrong-inc/

Be a Guest

Interested in being a guest on a future episode? Visit rewired-minds.com/guest for more information and to submit your request.

Disclaimer

The stories shared here are personal accounts from the brain tumor community for informational and awareness purposes only and are not intended as medical advice. Always consult with qualified healthcare professionals regarding your specific situation. Most importantly, take care of yourself as you listen and process.

In this episode, Brian Aurich shares an update on his journey with glioblastoma over the past year, including treatment updates, the role of innovative therapies like vaccines and Optune, and how he manages scan anxiety and treatment decisions. Check out episode 2 to hear the beginning of Brian’s experience.

Tumor Type: Glioblastoma

Tumor Grade: Grade IV

Treatment: surgery, radiation, chemotherapy, Optune, vaccine in Germany

patient

Current Stage: In Treatment

Resources

Check out a list of the most common medical terms relating to the brain tumor experience: rewired-minds.com/terms

Connect with brain tumor organizations here: https://www.rewired-minds.com/braintumorresources

Connect with Rewired Minds

Website: rewired-minds.com

Facebook: https://www.facebook.com/RewiredMindsPod

Instagram: @rewiredmindspod

LinkedIn: https://www.linkedin.com/company/rewiredminds

Connect with Brian Aurich

Instagram: @outside.perception

Be a Guest

Interested in being a guest on a future episode? Visit rewired-minds.com/guest for more information and to submit your request.

Disclaimer

The stories shared here are personal accounts from the brain tumor community for informational and awareness purposes only and are not intended as medical advice. Always consult with qualified healthcare professionals regarding your specific situation. Most importantly, take care of yourself as you listen and process.