Roots Radio

What a treat it was to have Mark on Roots Radio. This conversation is one that we will never forget - such a privilege to be able to talk to Mark about his family, his travels, and his passion for fly fishing. They ways Mark has been able to continue to pursue his passions while living with ALS, is a marvel. Thank you Mark for sharing your story with us - it has changed us for the better!

Be sure to check out Mark's website below and share with any fly fishermen or fisherwomen in your life!

https://www.winksflyfishingadventure.com/

Dance Your ALS Off 2023 - The PlayList

In episode 12 of Roots Radio we relive the amazing day that was June 23, 2023 - Lenny's Light Golf Fundraiser! Tune in to hear us recap so many incredible moments from that day and all that led up to making that day happen. 

To sign up to join Lenny's team for Team Lenny's Light - Walk to Defeat ALS on October 14th  click the link below!

https://secure.alsphiladelphia.org/site/TR/Endurance/General?team_id=1810&pg=team&fr_id=1120

Oh do we have a treat for your ears and your heart in this episode. Lenny and I had the absolute privilege of sitting down with Colleen and her husband Jeff. ALS has entered Colleen's world one too many times...and today she bravely shares with us her story as both a caregiver and as a person living with ALS. Colleen shares with us her love of music and the importance she knows in her bones - that telling her people, what they mean to her - is a privilege and an honor.

Episode 10 is a special one! Lenny and I get to interview Todd - a PAL who has been living with ALS for the last 10 years. Todd shares with us his passion for education, what drives him to keep finding ways to create purpose and meaning in his life, and the serendipitous way he and Lenny met.

Take a listen to episode 10 with Todd!

Episode 9 does not disappoint! In this incredible episode - Lenny and I have the privilege of talking to Mary. Mary is a PAL who has not let her ALS diagnosis stop her from continuing to pursue her passions. She is a political powerhouse, a courageous advocate, and a friend to so many. She shares with us her passion for political organizing and how she is now using her unique skill set to try to better the landscape for those living with ALS. She shares with us her many nicknames, this things she is grateful for, and what she wishes to impart on those living with ALS.

Mary is an absolute gem - and we were so very lucky to chat with her and be inspired by her!

This episode of Roots Radio is a special one!

Joining us on Episode 8 is Emily Korman. Emily is speech and language pathologist who lives in New Orleans, Louisiana and works as an assistive technology specialist for Team Gleason.

This incredible conversation is one that we will never forget! Thank you Emily for sharing with us your love for Team Gleason, your passion for the ALS Community, and your determination to never let those who are underestimated feel alone and without a voice.

An incredible conversation with Pennsylvania State Representative Kyle Mullins conversation about ALS, about advocacy, about family, and about this club that we never wanted to be in, but are grateful for.