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In celebration of International SCN2A Awareness Day on February 24th, we explore how SCN2A, a rare genetic disease, impacts each child. You'll hear from four moms with four very different children. They will show us what life has looked like for them since their diagnosis and what they are doing as a result of knowing the genetic cause for their children's medical conditions.
A BIG thank you to the four parents who shared their voices and stories for this episode.
Other episodes from SCN2A parents
Seizing Joy and Grace with Tracy Umezu
Growing a Family Gratefully with Rachael Lividini
A Dad's Eye View
The Art of Supporting the Special Needs Mom
Links
FamilieSCN2A Foundation
FamilieSCN2A Global Support Group
SCN2A Related Autism & Epilepsy: The FamilieSCN2a Foundation
SCN2A Australia
SCN2A Insights Podcast
SCN2A Families UK - FB page
SCN2A Europe
Simon Searchlight - SCN2A (Research)
SPARK for Autism - SCN2A
A Walk with Jo Facebook Page
Eye Gaze - Think Smart Box
Look to Learn - Activities for Eye Gaze
Children's Hospital of Philadelphia - Dr. Ingo Helbig
Children's Mercy - Dr. Coffman
By Angie Auldridge and Megan Barrett5
1818 ratings
In celebration of International SCN2A Awareness Day on February 24th, we explore how SCN2A, a rare genetic disease, impacts each child. You'll hear from four moms with four very different children. They will show us what life has looked like for them since their diagnosis and what they are doing as a result of knowing the genetic cause for their children's medical conditions.
A BIG thank you to the four parents who shared their voices and stories for this episode.
Other episodes from SCN2A parents
Seizing Joy and Grace with Tracy Umezu
Growing a Family Gratefully with Rachael Lividini
A Dad's Eye View
The Art of Supporting the Special Needs Mom
Links
FamilieSCN2A Foundation
FamilieSCN2A Global Support Group
SCN2A Related Autism & Epilepsy: The FamilieSCN2a Foundation
SCN2A Australia
SCN2A Insights Podcast
SCN2A Families UK - FB page
SCN2A Europe
Simon Searchlight - SCN2A (Research)
SPARK for Autism - SCN2A
A Walk with Jo Facebook Page
Eye Gaze - Think Smart Box
Look to Learn - Activities for Eye Gaze
Children's Hospital of Philadelphia - Dr. Ingo Helbig
Children's Mercy - Dr. Coffman

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