Sickle Talk

Sickle Talk

By American Sickle Cell Anemia AssociationHealth & Fitness
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Sickle Talk episodes

  • Sickle Talk: Running the Shores feat. Bianca Griffin

    September is National Sickle Cell Awareness Month.


    Welcome back to another episode, where we speak with our first guest, Bianca Griffin, President and Spokeswoman of the Jack and Jill Erie Shores Chapter. On September 8th, the Erie Shores Chapter and the American Sickle Cell Anemia Association will be holding a 5K Run/Walk, Running the Shores, where we honor the memory of the late founder of the ASCAA, Dr. Edgar B. Jackson, Jr. We will also be spreading awareness and education about sickle cell anemia during this inaugural event.


    Register for Running the Shores here!


    Learn more about Jack and Jill Erie Shores Chapter here and here.


    Subtitles Coming Soon!

    Creative and have sickle cell anemia? Send your artwork, photographs, stories, and more to [email protected]. Your art could be featured in an episode!
    Sickle Talk is owned and operated by the American Sickle Cell Anemia Association and funded by viewers and listeners like you. Thank you!
    Support our organization by donating here or by buying t-shirts, hoodies, or mugs here!
    For More Information:
    Website: www.ascaa.org
    Follow Us!
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    The American Sickle Cell Anemia Association is a 501(c)(3) nonprofit in Cleveland, Ohio. Since 1971, ASCAA has tested, counseled, and assisted individuals, families, and the population at risk of Sickle Cell Anemia. ASCAA is affiliated with multiple major hospitals in our local area, including, but not limited to, Cleveland Clinic Foundation, Cleveland Clinic Children's Hospital, University Hospital, MetroHealth Hospital, Rainbow Babies and Children, and local clinics and community centers.
    Mission Statement:
    ASCAA is a comprehensive health organization whose mission is to connect with families, inspire hope, and improve their quality of life. We are ultimately working to create a world without sickle cell disease.
    Disclaimer:
    All information is merely for educational and informational purposes for sickle cell anemia. It is not intended as a substitute for professional advice. Please seek medical advice from an appropriately qualified and licensed physician. Should you decide to act upon any information given, you do so at your own risk.
    While we have verified the information to the best of our abilities, we cannot guarantee that there are no mistakes.
    We reserve the right to change this policy, which will be promptly updated. To ensure you are up to date with the latest changes, we advise you to frequently visit this page.

    21 min
  • Sickle Cell Explained: The Basics

    After some brainstorming, we've decided to break down what Sickle Cell Disease is, including components of the blood, hemoglobin, immunocompromise, population-at-risk, a bit more about genetics, and a few other tidbits of information surrounding what makes sickle cell, sickle cell.


    Need captions? Episodes are later uploaded to YouTube with captions.


    If you want your questions answered or wish to share your story or art, send your inquiries to [email protected].

    17 min
  • Rare Disease Day and Myths and Misconceptions about Sickle Cell Anemia

    Welcome back to another episode! Join Lucy as we discuss myths and misconceptions surrounding Sickle Cell Anemia, Rare Disease Day, and how you can support Sickle Cell Programs within your region, or even the American Sickle Cell Anemia Association.

    Creative and have sickle cell anemia? Send in your artwork, photographs, stories, and more to [email protected]. Your art could be featured in an episode!
    Sickle Talk is owned and operated by the American Sickle Cell Anemia Association and funded by viewers and listeners like you. Thank you!

    13 min
  • The Oldest (Community-Based) Sickle Cell Agency

    Sickle Talk is back! After a hiatus, Sickle Talk is making its return as a podcast. After three long years since our last episode, we return to talk about the American Sickle Cell Anemia Association, and how this organization got its start over 50 years ago, and the Newborn Screening Program. This federal and state program tests newborn babies for dozens of debilitating disorders, including sickle cell anemia.

    Creative and have sickle cell anemia? Send in your artwork, photographs, stories, and more to [email protected]. Your art could be featured in an episode!
    Sickle Talk is owned and operated by the American Sickle Cell Anemia Association and funded by viewers and listeners like you. Thank you!
    Support our organization by donating today!
    For More Information:
    Website: www.ascaa.org
    Follow Us!
    Facebook
    Instagram
    Twitter (X)
    Threads
    Spotify

    YouTube (Podcasts)

    The American Sickle Cell Anemia Association is a 501(c)(3) nonprofit in Cleveland, Ohio. Since 1971, ASCAA has tested, counseled, and assisted individuals, families, and the population at risk with Sickle Cell Anemia. ASCAA is affiliated with multiple major hospitals in our local area, including, but not limited to: Cleveland Clinic Foundation, Cleveland Clinic Children's Hospital, University Hospital, MetroHealth Hospital, Rainbow Babies and Children, and local clinics and community centers.
    Mission Statement:
    ASCAA is a comprehensive health organization whose mission is to connect with families, inspire hope, and improve their quality of life. We are ultimately working to create a world without sickle cell disease.
    Disclaimer:
    All information is merely for educational and informational purposes for sickle cell anemia. It is not intended as a substitute for professional advice. Please seek an appropriately qualified and licensed physician for medical advice. Should you decide to act upon any information given, you do so at your own risk.
    While the information has been verified to the best of our abilities, we cannot guarantee that there are no mistakes or errors.
    We reserve the right to change this policy, which will be promptly updated. If you want to ensure you are up to date with the latest changes, we advise you to frequently visit this page.

    10 min

About Sickle Talk

From the publisher's feed

The American Sickle Cell Anemia Association connects with families and works to enhance their quality of life. ASCAA is using technology like podcasting and videos to educate and raise awareness about Sickle Cell Anemia. We are working to create a world without sickle cell disease.