SMA News Today’s multimedia associate, Price Wooldridge, discusses strategies to keep your child with Spinal Muscular Atrophy (SMA) in school during the cold and flu season.

Forums Director Kevin Schaefer reads the introductory column from our newest writer, Ari Anderson.

To learn more about spinal muscular atrophy, visit our website at www.smanewstoday.com.

In episode 74, host Kevin Schaefer talks with Katie Napiwocki and Andy Rusch from Wisconsin Rapids. Katie is a columnist for SMA News Today, and her partner Andy is also her primary caregiver. Listen to the story of how they met at MDA camp and learned about the nuances of being in an interabled relationship.

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Link to Katie’s column: https://smanewstoday.com/category/a-wildflower-in-the-wheelderness-a-column-by-katie-napiwocki/

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To learn more about Evrysdi, please visit http://www.ApprovedForSMA.com

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To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

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For the most up-to-date information regarding SMA, please visit http://www.smanewstoday.com

SMA News Today’s multimedia associate, Price Wooldridge, discusses the Cure SMA three-part webinar series on wellness topics for the Spinal Muscular Atrophy community.

Typically a taboo topic, sex and SMA isn’t discussed often. Forum members and columnists have stepped up to the plate to open the discussion on dating and relationships, helping break the stigma that those with disabilities aren’t sexual beings.

Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

SMA News Today’s multimedia associate, Price Wooldridge, discusses a higher dose Spinraza trial now enrolling Part B after no safety issues were found.

Also, DeAnn Runge shares her personal experience after switching from Spinraza to Evrysdi.

Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Brianna Albers, The Wolf Finally Frees Itself, “This Year, I Want to Be Brave”.

Forums Director Kevin Schaefer talks about the challenges that come with pursuing independence and his goals for the future.

Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

SMA News Today’s multimedia associate, Price Wooldridge, discusses how non-professional caregivers who care for children with Spinal Muscular Atrophy (SMA) carry a high daily burden that negatively affects their lives.

As the moderators return from holiday break the most relevant topics are being discussed on the forums. Recovering from spinal fusion surgery, going to a chiropractor, setting goals for the New Year, dating as well as life hacks are all among what is being talked about.

Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Zolgensma is linked in three cases to a serious but treatable blood disorder.

Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgensma approval in Canada for the treatment of young Spinal Muscular Atrophy patients.

Also, Forums Director Kevin Schaefer tells the story of a kidney stone and a trip to the ER during the holidays.

Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

In episode 73, host Kevin Schaefer talks with Tyler Dykema from Grand Rapids, Michigan. Tyler is an artist, musician, and punk rock connoisseur who has SMA Type II. He talks in this episode about growing up with SMA, his artistic passions, concert accessibility, and more. Happy New Year!

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To learn more about Evrysdi, please visit www.ApprovedForSMA.com

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To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

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For the most up-to-date information regarding SMA, please visit www.smanewstoday.com

SMA News Today’s multimedia associate, Price Wooldridge, discusses administering Spinraza (nusinersen) via a paramedian injection to shorten procedure times and reduce adverse events.

SMA News Today’s forums moderator, DeAnn Runge, discusses one of the most difficult aspects of living with a disability, which is navigating the healthcare system. Brianna Albers latest column, I Can’t Get Evrysdi Yet, Thanks to a Broken Healthcare System, goes into detail on some of the struggles faced while maneuvering this faulty system.

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To learn more about Evrysdi, please visit www.ApprovedForSMA.com

================================

To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

================================

For the most up-to-date information regarding SMA, please visit www.smanewstoday.com