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During this episode we learn of a decades-long journey to bring a children’s hospital to a province that had none - but the story is about so much more than building a hospital. It is about Canadian health system improvement for children and families. It involves:

• Developing and maintaining partnerships with like-minded organizations locally and across the country
• Engagement with government and health system leaders
• Open, transparent, tailored communications
• Listening deeply to and serving your constituents, whoever they may be
• The use of technology for, for example, knowledge sharing and donor management
• The role of philanthropy as catalysts to child health system change

 Success enables broader health system improvement, lessons learned for other health system leaders, attracting varied and specialists locally provinces to ensure that children and their families receive quality, specialized pediatric care (as children are not just little adults).

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If you ever needed healthcare (or if you work in healthcare) for kids you probably know how fragmented the system is, how long some waitlists are, and how the quality of care often depends on where you live and even who you are. In this episode we discuss how creating a Learning System in Child Health can help begin to address some of these issues at a regional, provincial, and national level. 

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Children’s Healthcare Canada and our members have called for a national, evidence-informed formulary of medications for children and funding for related pediatric drug research and development. In the most recent Speech from the Throne, the federal government reiterated its commitment to a national, universal pharmacare program to ensure that all Canadians can access the medications they need. 

Children and youth have unique drug needs, which have long been neglected. Approximately half of Canadian children and youth require at least one prescription in any given year. Children and youth rely heavily on compounded and off-label prescription drugs, which impacts safety, efficacy, palatability, and cost. Reimbursement decision-making bodies do not appropriately value the unique benefits of pediatric drugs, including child-friendly formulations, improved quality of life for children and families, and cost-savings outside the healthcare system. 

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The UNICEF 2020 Report Card revealed that while Canada ranks among the countries with the strongest economic, environmental, and social conditions for growing up, it ranks 30th of 38 countries in measures of children’s mental and physical health, education, and social wellbeing.  As well, existing inequities have worsened as a result of the COVID-19 pandemic. The time to make children a priority is NOW!

Working in collaboration and partnership with passionate stakeholders, we are co-designing a bold cross-sector framework to improve the health and wellbeing of children, youth, and families. This ambitious but achievable framework will be used as a roadmap to organizational, community, and governmental action to improve our global standing and create a Canada fit for children.

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To come...

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