What we need from prenatal care, each other and to know about t 13 and t 18.

If you have a rare trisomy child who has a CHD (heart complication) get consults. now! Always!

When do I ask for fair care? Full care? And what do I do?

All my children have a future in them. Glimpses of their personality and gifts come often. What a joy to see what they can become and do as they join Society, my dAugnter with t 18, she will too!

To finish the pod cast “home scary home” coming home from hospital life can be a hard transition, but also a time for growth. The transition is hard, but you can do it!

When the time came to head home from the nicu I felt scared and it was hard.I can say now, it was worth it!

Rose wears glasses! How did we know she needed them? How did we get her prescription? How has she done with them? Let me tell ya!

Welcome, and congratulations! A hello, and a few suggestions and resources. Please share with all new parents!

When interacting socially the question “what’s wrong with your child “ or stares or medical curiosity can hinder our time engaging in fun and social life!

The early times of medical parenting can feel isolating and confusing. Like being put in a foreign county or parallel universe, you need time to adjust and integrate your “old” ways with the current life.