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In this episode of Something Positive for Positive People (SPFPP), Lauren and I dive into the multifaceted world of herpes support and advocacy. As we share our experiences, we highlight the unique challenges we face, including the disparity in perceived value between paid and free resources. Many people, unfortunately, take out their frustrations on volunteers who provide free support, not realizing the immense dedication and effort involved.
We also discuss the crucial steps needed to move closer to a herpes cure from both an advocacy and support perspective. In a society that prioritizes convenience and instant results, we emphasize the need for ongoing internal work and widespread acceptance of the virus and its stigma. Only through these efforts can we pave the way for a genuine cure.
Lauren, diagnosed with oral and genital HSV-1 at 19, shares her journey and the lack of resources available when she was first diagnosed. Her advocacy work on platforms like TikTok (Bubblieinblu) aims to ensure that no one else feels as lost and alone as she once did.
For those interested in the latest research on herpes cure efforts, visit www.spfpp.org/herpes-cure-research. To support the continuation of our resources, please consider donating at www.spfpp.org/donate.
Learn more about Lauren:
4.9
114114 ratings
In this episode of Something Positive for Positive People (SPFPP), Lauren and I dive into the multifaceted world of herpes support and advocacy. As we share our experiences, we highlight the unique challenges we face, including the disparity in perceived value between paid and free resources. Many people, unfortunately, take out their frustrations on volunteers who provide free support, not realizing the immense dedication and effort involved.
We also discuss the crucial steps needed to move closer to a herpes cure from both an advocacy and support perspective. In a society that prioritizes convenience and instant results, we emphasize the need for ongoing internal work and widespread acceptance of the virus and its stigma. Only through these efforts can we pave the way for a genuine cure.
Lauren, diagnosed with oral and genital HSV-1 at 19, shares her journey and the lack of resources available when she was first diagnosed. Her advocacy work on platforms like TikTok (Bubblieinblu) aims to ensure that no one else feels as lost and alone as she once did.
For those interested in the latest research on herpes cure efforts, visit www.spfpp.org/herpes-cure-research. To support the continuation of our resources, please consider donating at www.spfpp.org/donate.
Learn more about Lauren:
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