SRNA Soundwaves

SRNA Soundwaves

By Siegel Rare Neuroimmune Association (SRNA)MedicineHealth & Fitness
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SRNA Soundwaves episodes

  • 202. Understanding & Managing Neuropathic Pain
    The podcast on “Understanding and Managing Neuropathic Pain” as part of TMA's Ask the Expert podcast series was held on May 9, 2014 a 1 pm EST. The physician-experts on the panel were Dr. Newsome from The Johns Hopkins Transverse Myelitis Center and Dr. Allen DeSena from University of Texas Southwestern. Over 40 people dialed-in to listen to the Live Podcast, which was moderated by our guest moderator, Samuel Hughes. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 55 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community. We are planning on future podcasts on topics of Fatigue and Cognition, Spasticity Management, and more to address your questions and concerns.
    36 min
  • 201. Understanding Autoimmunity & Rare Neuroimmune Disorders

    The podcast on “Understanding Autoimmunity and Rare Neuroimmune Disorders” as part of TMA's Ask the Expert podcast series was held on March 25, 2014 a 2 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from UTSW and Dr. Carlos Pardo from Johns Hopkins Medicine. Over 50 people dialed-in to listen to the Live Podcast, which was moderated by TMA Executive Director, Chitra Krishnan. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 55 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community. We are planning on future podcasts on topics of Fatigue and Cognition, Pain Management, Spasticity Management, and more to address your questions and concerns.

    45 min
  • 103. Children with rare neuroimmune disorders: understanding medical, educational and social considerations

    The podcast on “Children with rare neuroimmune disorders: understanding medical, educational and social considerations” as part of TMA's Ask the Expert podcast series was held on December 16, 2013 a 2 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from UTSW and Dr. Lana Harder from y. Over 20 people dialed-in to listen to the Live Podcast, which was moderated by TMA Executive Director, Chitra Krishnan. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 55 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community. We are planning on future podcasts on topics of Fatigue and Cognition, Pain Management, Spasticity Management, and more to address your questions and concerns.

    1 hr
  • 102. Understanding Repair and Recovery After non-traumatic Spinal Cord Injury
    The podcast on “Understanding Repair and Recovery After non-traumatic Spinal Cord Injury” as part of TMA's Ask the Expert podcast series was held on September 16, 2013 a 1 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from UTSW and Dr. Michael Levy from Johns Hopkins University .  Over 75 people dialed-in to listen to the Live Podcast, which was moderated by TMA Executive Director, Chitra Krishnan. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 45 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community.   We are planning on future podcasts on topics of Fatigue and Cognition, Pain Management, Spasticity Management, and more to address your questions and concerns.
    47 min
  • 101. Ask the Expert Podcast in Collaboration with RGI
    The Transverse Myelitis Association collaborated with Rare Genomics Institute to host an “Ask the Experts Podcast”. Rare Genomics Institiute (RGI) is a non-profit organization that gives families afflicted by rare genetic disorders access to genome sequencing and expert analysis. RGI helps patients with orphan diseases initiate and fund personalized research projects through a dedicated crowd-funding platform and a highly selective network of leading academic scientists and commercial institutions across the globe.Our first Ask the Expert Podcast featuring Dr. Benjamin Greenberg and Dr. Allen DeSena from the University of Texas Southwestern in Dallas, moderated by RGI's president, Dr. Jimmy Lin was held on February 7, 2013 at 7 pm EST.The podcast started with a 30-minute discussion of recent developments in technology applicable to rare diseases. Dr. Cathleen Lutz from The Jackson Laboratory discussed how mice are used in scientific research as models for developments in genomics and b
    49 min

About SRNA Soundwaves

From the publisher's feed

SRNA Soundwaves is a podcast network that brings together expert insight, research updates, and experiences from the rare neuroimmune disorder community. Through multiple series, SRNA Soundwaves…