In this episode of Still Here: A two-way between Miles Griffis and Betsy Ladyzhets comparing and contrasting Long COVID and ME clinical trial designs for drugs targeting immune dysregulation and viral persistence.

The transcript for this episode can be ⁠⁠⁠found on our website⁠⁠⁠, or jump to a specific part of the podcast below:

(00:00:00) ⁠Intro⁠

(00:01:36) ⁠Recap of 2nd Keystone Symposia on Long COVID⁠

(00:20:33) Research

(00:22:48) Outro

-

Mentioned in this episode:

• The Sick Times: “The field is coming of age”: Long COVID researchers gather in Santa Fe to foster collaboration
• The Sick Times: “A morale boost”: Looking ahead to the 2025 Keystone Symposia Long COVID conference with Hannah Davis
• The Sick Times: No “easy home runs”: Early Long COVID trials of Paxlovid and monoclonal antibodies failed, but the treatments still have potential
• The Sick Times: Three clinical trials for Long COVID are testing JAK inhibitors to treat immune dysregulation
• The Sick Times: Research updates, August 19
• The Sick Times: Covid-19 reinfections are further disabling people with Long Covid

Additional audio in this episode: 

• Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) 
• Youtube: Keystone Symposia 2025 closing remarks

In this episode of Still Here: A two-way between Miles Griffis and Betsy Ladyzhets comparing and contrasting Long COVID and ME clinical trial designs for drugs targeting immune dysregulation and viral persistence.

The transcript for this episode can be ⁠⁠⁠found on our website⁠⁠⁠, or jump to a specific part of the podcast below:

(00:00:00) Intro

(00:01:05) 2-way: Long COVID clinical trial design for JAK inhibitors, drugs targeting viral persistence

(00:28:37) Outro

-

Mentioned in this episode (in order of appearance):

• The Sick Times: Three clinical trials for Long COVID are testing JAK inhibitors to treat immune dysregulation
• The Sick Times: No “easy home runs”: Early Long COVID trials of Paxlovid and monoclonal antibodies failed, but the treatments still have potential
• The Sick Times: Research updates, July 8
• The Sick Times: Invivyd Chairman Marc Elia: The bureaucracy is killing people with Long COVID
• Still Here: February 25: Links and transcript

Additional audio in this episode: 

• Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) 

In this episode of Still Here: A two-way between Felicity Nelson and Betsy Ladyzhets comparing and contrasting the BC 007 and rapamycin Long COVID and ME clinical trial designs.

The transcript for this episode can be ⁠⁠found on our website⁠⁠, or jump to a specific part of the podcast below:

(00:00:00) Intro

(00:01:15) 2-way: Long COVID clinical trial design, BC 007 and rapamycin

(00:27:47) Outro

-

Mentioned in this episode (in order of appearance):

• The Sick Times: Clinical trials are testing cancer drug rapamycin for Long COVID and ME
• The Sick Times: Berlin Cures’ failed Long COVID clinical trial yields lessons on study design
• Research Square: Simmaron preprint on low-dose rapamycin clinical trial
• medRxiv: Erlangan preprint on BC 007 clinical trial
• The Sick Times: How volunteering to be a lab rat paid off

Additional audio in this episode: 

• Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) 

In this episode of Still Here: The Sick Times' team recaps the Patient-Led Research Fund summer 2025 webinar. Plus, an update about the National Institutes of Health's RECOVER-Treating Long COVID initiative.

The transcript for this episode can be ⁠found on our website⁠, or jump to a specific part of the podcast below:

(00:00:00) Intro

(00:01:25) Recapping the PLRF summer '25 webinar

(00:19:17) Research: RECOVER-TLC announces hybrid workshop

(00:21:41) Outro

-

Mentioned in this episode (in order of appearance):

• The Sick Times: Live blog: Following the Patient-Led Research Fund summer 2025 webinar
• The Sick Times: Lisa McCorkell reflects on five years of Long COVID research, and leaving PLRC
• The Sick Times: Live blog: Following the Spring 2025 PolyBio Symposium on Long COVID and related diseases
• The SIck Times: This surgery fuses people’s skulls to their spines to treat a condition overlapping with myalgic encephalomyelitis
• Patient-Led Research Scorecards
• The Sick Times: Research updates, July 15
• The Sick Times: Live blog: Following the RECOVER-Treating Long COVID kickoff event

Additional audio in this episode: 

• Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) 

In this episode of Still Here: Contributing writer Simon Spichak discusses what experts say are Canada's "contradictory" and "concerning" latest guidelines for Long COVID, the CAN-PCC.

Plus, in research, we talk about a new study group to test the monoclonal antibody Pemgarda for Long COVID and post-vaccine syndrome, as well as a new study from Taiwan that found 14% of children developed Long COVID after being infected with SARS-CoV-2.

And we share updates on our summer fundraiser, too. The transcript for this episode can be found on our website, or jump to a specific part of the podcast below:

(00:00:00) Intro

(00:01:55) Top story: Behind the new "concerning", "contradictory" Canadian guidelines on Long COVID

(00:19:38) Research

(00:23:53) Updates on our summer fundraiser

(00:26:44) Outro

-

Mentioned in this episode (in order of appearance):

• The Sick Times: Experts call new Canadian Long COVID guidelines “contradictory” and “deeply concerning”
• Canadian Guidelines for Post-COVID-19 Condition (CAN-PCC)
• The Sick Times: Research updates, July 8
• The Sick Times: Frustrations, Denials, Long Drives: Immunocompromised People Can’t Access a Lifesaving COVID-19 Drug
• The Sick Times: Invivyd Chairman Marc Elia: The bureaucracy is killing people with Long COVID
• The Sick Times: Summer fundraiser: Help keep our essential work going into 2026

Additional audio in this episode: 

• Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) 

In this episode of Still Here: Contributing writer Britta Shoot discusses the patchwork of care for people with complex chronic illnesses, like myalgic encephalomyelitis, and how insurance providers create a lose-lose situation for patients and healthcare providers.

Plus, in research, we're looking at a study published in Nature Communications about a new antiviral drug prototype that prevented Long COVID in mice and could also help treat the disease.

And we share a little more about our summer fundraiser, including potential donation perks!

The transcript for this podcast is⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ available on The Sick Times’ website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. You can jump to specific sections of the podcast and transcript below:

(00:00:00) Intro

(00:01:32) Why ME, Long COVID specialists charge high prices for concierge care

(00:12:38) Research: Antiviral drug prototype that prevented Long COVID in mice

(00:14:20) Summer 2025 fundraiser — help us keep our work going!

(00:16:38) Outro

-

Mentioned in this episode (in order of appearance):

• The Sick Times: Priced out: Some Long COVID and ME specialists charge high prices for concierge care
• The Sick Times x Long COVID Justice: Long COVID Essentials
• Help for Long COVID
• The Sick Times: Research updates, July 1
• The Sick Times: Summer fundraiser: Help keep our essential work going into 2026

Additional audio in this episode: 

• Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) 

In this 2-way episode of Still Here: Paul Hennessy, a COVID-19 safety advocate based in the Los Angeles area and the Activism Director for Mask Together America, shares more about getting involved in local COVID-19 organizing, a LA budget proposal that reallocated COVID-19 funds meant for cleaner air to other infrastructure upgrades, and considerations for demonstrations centering Long COVID.

The transcript of this Q&A is available ⁠on The Sick Times' website⁠. (Photo pictured courtesy of Elle Siebert.)

-

Mentioned in this episode (in order of appearance):

• The Sick Times: Los Angeles’ $13M COVID-19 relief funds could go to building upgrades, not Long COVID care
• Los Angeles County Public Health: Public Health Virtual Town Hall on Long COVID
• Clean Air LA 
• The Wayside
• The Sick Times: Summer fundraiser: Help keep our essential work going into 2026

Additional audio in this episode: 

• Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) 

In this episode of Still Here: Disabled writer and photographer Megan E. Doherty talks about her recent op-ed covering Illinois advocates' work on legislation that would ban mask bans in Illinois. And writer and artist Kelsey Simpkins discusses a gallery exhibit that opened last month in Colorado showcasing the work of artists with Long COVID.

Plus, in research, we're looking at the rapid responses to a op-ed in The BMJ (British Medical Journal) that spread false claims about ME, and we'll also give a short update on RECOVER-TLC.

The transcript for this podcast is⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ available on The Sick Times’ website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. You can jump to specific sections of the podcast and transcript below:

(00:00:00) Intro

(00:02:14) Working to ban mask bans in Illinois

(00:11:25) Colorado art exhibit uplifting artists with Long COVID

(00:22:52) Research: Rapid responses to false claims about ME/CFS in a BMJ op-ed; update on RECOVER-TLC

(00:25:46) Outro

-

Mentioned in this episode (in order of appearance):

• Podcast feedback survey
• The Sick Times: Illinois could become the first state in the country to ban mask bans. Here’s how we created the bill to do it.
• The Sick Times: Colorado art exhibition showcases creative expressions of Long COVID, advocates for research and treatment
• The Sick Times: Research updates, May 27
• RECOVER-TLC Intervention Information Request form

Additional audio in this episode: 

• Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) 

In this episode of Still Here: Reporter Laura Weiss covers the slew of COVID-19 vaccine policy changes that have occurred since Department of Health and Human Services Secretary Robert F. Kennedy assumed office.

Plus, in research, we're looking at a study published in Pediatric Research that found pregnant people who were infected with SARS-CoV-2 during their first trimester were more likely to have smaller newborns.

The transcript for this episode is available on The Sick Times' website. You can jump to specific sections of the podcast and transcript below:

(00:00:00) Intro

(00:01:29) COVID-19 vaccine policy changes

(00:17:51) Research: Impact of SARS-Cov-2 exposure in first trimester on childbirth

(00:20:38) Outro

-

Mentioned in this episode (in order of appearance):

• The Sick Times: The federal government is restricting COVID-19 vaccine access. Here’s what that means for the ongoing pandemic and people with Long COVID.
• Wall Street Journal: RFK Jr.: HHS Moves to Restore Public Trust in Vaccines (archive.ph link, free to access)
• Your Local Epidemiologist
• Vaccine Integrity Project
• Your Local Epidemiologist: Four ways to anticipate next week's ACIP
• The Sick Times: Research updates, June 17
• The Sick Times: Research updates, June 3

Additional audio in this episode: 

• Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece) 

In this episode of Still Here: The Sick Times' team recaps the Spring 2025 PolyBio Research Symposium on Long COVID. And disabled journalist Lygia Navarro talks about the language we use for Long COVID, rounding up reader responses to a survey about terms used to describe aspects of the Long COVID experience.

The transcript for this podcast is⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ available on The Sick Times’ website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. You can jump to specific sections of the podcast and transcript below:

(00:00:00) Intro

(00:01:07) Recapping the Spring 2025 PolyBio Research Foundation Symposium on Long COVID

(00:14:55) A Long COVID language revolution

(00:28:42) Outro

-

Mentioned in this episode (in order of appearance):

• The Sick Times: Live blog: Following the Spring 2025 PolyBio Symposium on Long COVID and related diseases
• PolyBio Research Foundation Youtube: PolyBio Spring 2025 Symposium
• The Sick Times: Live blog: Following the Fall 2024 PolyBio Symposium on Long COVID research
• The Sick Times: I want a Long COVID language revolution — not language imposed onto my sick, disabled body

Additional audio in this episode: 

• Rude Mechanical Orchestra: Which Side Are You On? (orig. Florence Reece)