Sign up to save your podcasts
Or
Share Stronger Every Day: For Parents of Children with Rare Diseases
Share to email
Share to Facebook
Share to X
Share to email
Share to Facebook
Share to X
Or
Stronger Every Day: For Parents of Children with Rare Diseases
Stronger Every Day: For Parents of Children with Rare Diseases episodes
- SED 555: Tess in the ER and ICU
Recently Tess had a seizure and went to the ER, so I want to tell you about it.
10 min - 8 min
- SED 553: Find a Way to Entertain Yourself
Today I'll be telling you the first part of our recent trip to Syracuse.
7 min - 5 min
- SED 551: The Tess Schedule
Today I'll be telling you about Tess's schedule on a typical day.
I wrote about Tess's special diet on my blog here and made a two-part Stronger Every Day podcast episode you can find here and here.
11 min - 9 min
- SED 549: What's Working So Far This SummerToday I'll be sharing about summer and what's working for me so far.
Super Focus: Flow State Music - Alpha Binaural Beats, Study Music for Focus and Concentration
https://youtu.be/p2_zDvtPQ-g?si=vINWreezp6K2tp5M
6 min - SED 548: Helping Tess with MRELD
Today I'll be sharing a bit about Tess's progress when it comes to spoken language.
She has a language deficit called Mixed Receptive-Expressive Language Disorder.
10 min - 7 min
- SED 546: Melatonin, or Travels in Iceland
Today I'll be sharing a bit about our family's recent trip to Iceland.
16 min
About Stronger Every Day: For Parents of Children with Rare Diseases
From the publisher's feed
This show tells stories about life with Tess, age 15, who has a rare genetic disorder called Hao-Fountain syndrome, Bo Bigelow is Tess's father and primary caretaker. Her disorder causes nonverbal autism, communication disorders, and epilepsy. Bo is an award-winning speaker, writer, filmmaker, and advocate for people with disabilities. He is also a practicing disability-rights attorney.
Bo is a co-founder of DISORDER: The Rare Disease Film Festival and The Disorder Channel.
Over the years, he's told Tess's story to NPR, NBC News, ABC News, The Washington Post, and The Atlantic.