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After a week on anti-seizure meds, we see what might be a personality change in our girl.
Checking in with Tess's neurologist. A guy we have some history with, actually. Trying to get some answers about the T-Bird.
Our family puts our heads together to solve a new problem for Tess. And we totally crush it. Sort of.
Four incredible boys unite to start up a lemonade stand, a special one. Not to get candy money, but to help our Tess.
Hey! Watch some local news features about the lemonade stand: |
"Local Lemonade Stand Makes National Difference" / News Center Maine - WCSH & WLBZ |
"Local Kids Raise Money For Rare Genetic Mutation Research" / WGME
From the publisher's feed
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7…